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Dj1

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Hi

I am new to this forum and indeed celiac, diagnosed 3 months ago, I have been on a gluten free diet since and a lot of my previous symptoms have disappeared which is like a new lease of life but I am really suffering with bone/muscle pain and aches. I've been researching on the internet and now thinking is it Nightshade food causing the problem ( I was previously able to eat these foods with no problem)or perhaps leaky gut, just don't know. Back to GP tomorrow but don't hold out much hope as GPs wont sent me for any allergy testing and I cant bear the thought of bring prescribed pain killers instead of getting to the root of the problem. Cold be vitamin D deficiency but I take over the recommended dose daily so not sure if that's connected. Any help would be much appreciated. Thank you for reading this

 

Lizzy

 

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4 hours ago, Dj1 said:

Hi

I am new to this forum and indeed celiac, diagnosed 3 months ago, I have been on a gluten free diet since and a lot of my previous symptoms have disappeared which is like a new lease of life but I am really suffering with bone/muscle pain and aches. I've been researching on the internet and now thinking is it Nightshade food causing the problem ( I was previously able to eat these foods with no problem)or perhaps leaky gut, just don't know. Back to GP tomorrow but don't hold out much hope as GPs wont sent me for any allergy testing and I cant bear the thought of bring prescribed pain killers instead of getting to the root of the problem. Cold be vitamin D deficiency but I take over the recommended dose daily so not sure if that's connected. Any help would be much appreciated. Thank you for reading this

 

Lizzy

 

B-vitamins, and Magnesium are common issues for this in deficiencies, look them up and see if they seem to ride in with any other symptoms you have. I have suggestions on brands and dosing that I swear by if interested.

It could also be a inflammatory reaction to a food like you were thinking. Keep a food dairy writing down everything that you consume and how you feel hours later.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Welcome to the board. Bone and muscle pain are not uncommon with celiac. Neither are other intolerances. The food diary Ennis suggested can help you figure out a pattern. In some cases intolerances can be delayed so it might not be a food you ate right before the pain that got you. The diary can help you pinpoint a pattern. Without one I would have never realized that my intolerance to soy protein was contributing to my discomfort. I found a simple OTC anti-inflammatory to help a great deal along with gentle stretching after a good hot shower or bath. if the pain is related to celiac it can take some time to improve. It was about 6 months before I got a good deal of relief. If you haven't already do check the Newbie 101 thread at the top of the Coping section. It has a lot of good info on what all we need to do to be safe.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Thank you very much for your advice, much appreciated, interesting that soy was a contributing factor to your discomfort, I started eating soy base products about 3 months ago, not that this is a factor for me but certainly cant rule that out either, but thanks again, hopefully things will get better

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