Jump to content
  • Sign Up
Jennie-Lee

Do I have celiac disease

Rate this topic

Recommended Posts

My family doctor had me do a blood test and stool sample. I was told I tested positive for celiac disease. 

My doctor sent a referral to a gut specialist who immediately sent a note back stating he did not think I have celiac disease. Now because I am not considered urgent I could wait a year for a biopsy.

I get bloated to the point I look pregnant, I have missed my period, it took me 3 years to conceive my son and had to take fertility drugs, I am always tired, always feel sick, get cramps, feel nauses, have to unbutton my pants at work after eating because I am so uncomfortable. I do have some good days. I have been sick my entire life and have always been underweight. What do I do? Signs point to celiac but how do I confirm it without a biopsy? I cannot go on like this for another year. Would really appreciate any insight. Thank you.

Share this post


Link to post
Share on other sites

Hi Jennie-

I'm sorry you feel so miserable.  Do you have a copy of the labs results?  That might help shed some light on how best to make your plea to the GI to get you in sooner. 

Regardless of whether you have celiac or not, it sounds like something is going on. 

There are several steps you could take depending on the results. 

1. Labs are really negative- work with PCP on other possible diagnoses, keep a food diary and symptoms diary and try to pin it down yourself, go on a gluten free diet and see if that helps your symptoms (but if it helps, you will have to do a gluten challenge in the future and sometimes the reactions after being gluten-free are more severe)

2. Labs are really positive and the GI was wrong - send a letter to the GI doc and he sees his mistake and makes you an appt next week or go gluten free until 2 weeks before your appointment, then start a gluten challenge until your scope.

Good luck!

 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...