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Hereditary Hemochromatosis

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Hi ~ Haven't been on site for quite awhile now but back and searching for answers!  

I am almost 8 years celiac, totally gluten free, paleo diet for past 4 years,  and yippee, now I find that I have  Hereditary Hemochromatosis with genes provided by both parents. (thanks mom & dad!).  My ferritin levels are at 1200, should be 50, and am currently doing the weekly blood letting.  Sigh.  Just feel like I am getting weaker and weaker.  Muscle and joint pains, my vanity is shot as hair and eye lashes are falling out.  Feeling quite like an ugly sloth.  How was that for a Pity Party??! 

Basically just looking for anyone else out there going through this and any words of advice.  Help????  

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On ‎10‎/‎25‎/‎2017 at 12:12 PM, cyclinglady said:

Sigh!  Patience is not one of my virtues. lol  Now my hemoglobin is so low they cant take any more blood.  Feeling like I am caught in the middle. 



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    To the OP, once in a while this stuff happens.  Please feel free to start a new topic if that would make it easier.  I am afraid this is just part of forums on the internet. I hope this didn’t chase you off.  
    @anasss Nobody in this thread has called anyone "ignorant," so please don't say that if it did not happen. Also, the use of all capitals is, in forums and other places on the Internet, generally considered yelling and impolite, and there ...
    Bshake, Look up the "baking soda test" ...it is a nice home test to see if your daughter could have low stomach that is triggering the ulcers or creating the perfect conditions for ulcers to develop....mastic gum as has been mentioned...
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