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John Burlingame

I"m Soy free, getting there was hard.

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Soy destroys my life entirely. I know what has soy and what does not, by touch taste or smell. I can tell if it contains soy in a few seconds. Being soy free is a acquired lifestyle. Everything I eat, I make from scratch, candy, chocolate,cookies, crackers,chips, flavored drinks. I do no t wear deodorant, can't. Cant drink most sodas, most contain soy now. Handshakes are a thing of the past after shaking a hand of a doctor and getting a soy contact, must have used moisturizers (vitamin E) manufactured from soy. All my meds are compounded. My neosporin is one my most expensive drugs, on 7$ tube runs me $80 compounded. My Ibuprofen 200mlg $1 a pill. pain meds a ton more.  Going to a store, any store is adventurous. The air fresheners contain soy. makes a bad day for me real quick. I've left stores in a hurry due to the soy contact that overcomes me.  Today, I'm looking into air mask so I can go into stores with out risking a soy contact, also finding gloves are hard. most of the easy fit gloves contain a soy powder. I have a facebook page dedicated to being soy free (Soy Lecithin) crossbones for a pic. My life of becoming soy free was a real adventure. I feel great, until I mistakenly come in contact with it. Soy starts With brain Fog, memory loss, then the panic attacks start. get overwhelming fast. Some days I feel trapped in my own body. Outside is land mines just waiting for me to eat, taste,smell or touch.

 

In the past I would have been fine, but all these regulations has made it easy to have soy in everything manufactured. Its the cheapest thing to use, so was asbestos, maybe one day they will realize what soy does to your brain, as its doing to mine 100 fold. Soy is in almost everything, If you cant make it your self than its in it. My start in going soy free, the day I realized it was soy,soy lecithin killing me slowly. I was suicidal, a few days at best before I realized it was soy. There is no info out there about i. If there is, Soy manufactures have snuffed it out. 

Edited by John Burlingame
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I am highly allergic to corn....I feel your pain in a way. Personally I avoid pure soy as the distress it does to my gut and body. Soy lectin sometimes is in a few things and I try to avoid but it is damn near impossible.   

Oh mask, I got some allergy mask from this one company that work great and look cool. www.respro.com/store/product/techno-mask  is the one I got check out their others.

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2 hours ago, John Burlingame said:

Soy destroys my life entirely. I know what has soy and what does not, by touch taste or smell. I can tell if it contains soy in a few seconds. Being soy free is a acquired lifestyle. Everything I eat, I make from scratch, candy, chocolate,cookies, crackers,chips, flavored drinks. I do no t wear deodorant, can't. Cant drink most sodas, most contain soy now. Handshakes are a thing of the past after shaking a hand of a doctor and getting a soy contact, must have used moisturizers (vitamin E) manufactured from soy. All my meds are compounded. My neosporin is one my most expensive drugs, on 7$ tube runs me $80 compounded. My Ibuprofen 200mlg $1 a pill. pain meds a ton more.  Going to a store, any store is adventurous. The air fresheners contain soy. makes a bad day for me real quick. I've left stores in a hurry due to the soy contact that overcomes me.  Today, I'm looking into air mask so I can go into stores with out risking a soy contact, also finding gloves are hard. most of the easy fit gloves contain a soy powder. I have a facebook page dedicated to being soy free (Soy Lecithin) crossbones for a pic. My life of becoming soy free was a real adventure. I feel great, until I mistakenly come in contact with it. Soy starts With brain Fog, memory loss, then the panic attacks start. get overwhelming fast. Some days I feel trapped in my own body. Outside is land mines just waiting for me to eat, taste,smell or touch.

 

In the past I would have been fine, but all these regulations has made it easy to have soy in everything manufactured. Its the cheapest thing to use, so was asbestos, maybe one day they will realize what soy does to your brain, as its doing to mine 100 fold. Soy is in almost everything, If you cant make it your self than its in it. My start in going soy free, the day I realized it was soy,soy lecithin killing me slowly. I was suicidal, a few days at best before I realized it was soy. There is no info out there about i. If there is, Soy manufactures have snuffed it out. 

That's really rough. I am so sorry you have to go thru this. How do you go about your general life? How do you work? Are you working with a doctor on any of this?

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Have you been tested formally for a soy allergy by an allergist? I am allergic to soy (+ via skin prick), but don't generally have a problem unless I ingest it or have it put directly on my skin. Soy allergies tend not to be anaphylactic.

To be clear I'm not doubting your experience -  it's quite possible that your allergy is more severe than mine. But... I found that initially, when I was still healing that I had a hard time telling the difference between a glutening and a soy exposure, because there is some overlap in my symptoms and my immune system was pretty out of control/erratic, making association between events and symptoms very difficult. Now it is more clear that many of the events I thought might be soy-related were probably more celiac-related, as with time the reactions became more delineated. I would honestly consider that first, as what you seem to be describing in terms of symptoms seems pretty celiac-related, not allergy-related.

I'll certainly sympathize that avoiding soy is quite difficult - the amount it gets pushed in America is absurd, considering that it is a top 8 allergen. I don't think my diet would change much if I was somehow magically able to stop being celiac because nearly all processed foods, personal care products and medications (even many allergy meds!) contain soy. Although it is probably not entirely necessary as these ingredients should not contain soy proteins, I do choose to avoid soy lecithin, unspecified tocopherol and natural flavours in what I ingest or put on my skin. That said, in the case of a handshake, you're looking at a trace of a trace at worst... I might consider that perhaps there are other more likely sources for your problems. I had to get rid of all processed food before I started noticing big improvements, and I'm very certain this had more to do with trace amounts of gluten (at a level that is tolerated by most celiacs, but apparently not me) than it did with soy.

You do have my deepest sympathies here - I certainly remember being super, super sick, having no idea what was causing it, feeling crazy and feeling like everything was out to get me. As an aside, if you're looking for gloves, you can get the powder-free, nitrile kind as well (I work at a hospital, and this is the only kind we use due to allergy issues).  Hope things get better!

Edit: if you're having problems with perfumes/fragrances, you might also have an allergy to that. My mother does, and she gets headaches/nausea/vomiting from being near people who wear heavy perfume/cologne, or in environments featuring scented candles etc. She is also allergic to soy, amongst many other things. I do not seem to have a problem with fragrances though... so her issues are likely unrelated to soy specifically.

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