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vickyloveaimee

How many times your child go to poop a day?

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Some celiacs are chronically constipated, others are just have  “normal” bowel movement and others have diarrhea.   If I recall, your child had a positive on the DGP IgA (exactly how I tested).   Are they going to retest?  

Edited by cyclinglady

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Agree with Cycling Lady. My friend's daughter with Celiac is chronically constipated and takes Miralax daily. My daughter was diagnosed 9 weeks ago. She initially had diarrhea 5-6 times a day. Now that she is gluten free, she has 1-3 formed BM's a day. 

One thing I've really learned is the symptoms vary so very much from person to person.  

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Cycling lady 

good memory! I do bring my daughter to consult celiac doctor at university of Chicago ,we may repeat one more time of celiac panel to decide do scope or not,doctor also told me only gliandian Iga positive it’s usually not what they look, so I’m postpone scope for now, thanks for your reply , wish you good health and I wish  my daughter will not have truly celiac .

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I hope it works out for you.  No one wants a sick child.  My heart goes out to her.  

Again, I have NEVER had a positive in the TTG or EMA tests.  I have had the test run at least four times in either  a follow-up visit or after a severe glutening.  Only my DGP IgA is ever elevated.  I have researched like crazy.  I know everyone thinks the TTG is the best, but the reality is not everyone is the same and there is no “one size fits all” approach when diagnosing celiac disease.  

Because your daughter has tested out this way, consider getting the biopsies if her DGP IgA is still elevated.  If my initial GI had not ordered the entire panel, my diagnosis would have been missed.  As it stands, I had anemia, still have Osteoporosis, and another autoimmune issue that will never resolve.  Please keep this in mind as she ages. 

I wish you the best!  

Edited by cyclinglady

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