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Hi, new here and need advice :)

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Hi everyone,

Since Christmas 2013 I have had some reactions to certain things I eat, usually bread products, biscuits and cake.  It started out with severe stomach cramps and diarrhoea an hour or two after eating it which went on for two or three hours and then would disappear.  There was never any pattern so it took a long time for me to join the dots and realise it could be from stuff I'd eaten.

More recently I've been getting a horrible burning rash, which look like raised pimples which when I squeeze fluid comes out - although I try not to because once I've got scabs they take ages to heal!

In March my doctor did some blood tests and the marker for celiac came back ok but I was very low in vitamin B, D and iron.  The vitamin D went up with tablets but the vitamin B and iron hasn't improved so I am finally being referred to gastroenterology to find out what is going on.  I've taken photos of the rash as I can never get an appointment to see the doctor when it flares up! 

What I need to know is do different products affect people in different ways? i.e, at the moment I am ok with eating pasta, and fresh bread (crusty baguette versions) are worse than normal sliced bread.




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I have seen this with many where they find different gluten foods, triggered different severity and types of reactions among celiacs.
You need to keep eating gluten and see about the full blood test and endoscope with multiple biopsies for them to check, your skin issue might be DH. I do not have the DH symptoms but for those that do the gut damage is normally less pronounced, I hear they can take a biopsy from the skin next the the lesion if it is DH and test it that way for celiac disease. https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/

Vitamin B, iron, magnesium, D, E and a whole list of others are very common with celiac disease. You have damaged villi in your intestines and you can not absorb nutrients or break down foods properly hence the issues. Many of us have to supplement for years til they heal and some of us for life like I do.

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