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AJS3849

Do enzymes help mitigate inadvertent gluten ingestion?

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I have celiac and have followed a strict gluten-free diet for seven years.  Now that we are retired, my husband and I travel a lot and that means dining out a lot.  I always inform wait staff of my celiac disease and my need to avoid gluten but still occasionally get glutened and suffer the miserable results.  I see ads for enzymes that break down gluten and wonder if they are effective in mitigating the reaction.  I understand that they are not designed to allow celiacs to consume gluten freely, but I would like to be able to have an antidote that will at least make the reaction less severe.  Has anyone found these to be effective in that way?

Edited by AJS3849
Needed to correct incorrect wording.

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They are supposed to make the symptoms shorter and less severe be eliminating some of the gluten. In theory they work, I know when I tried them years ago....I saw no effect, gluten was gluten and I was sick. This is why I am so against them and their marketing scheme and have advocated against them for a long time. PS some people on this board are paid by the companies for referrals, link clicks etc. -_- I just kicked a  hornets nest but this much is true.  I think for the $100 dollar cost of pills, the fact your still doing damage to you intestines or worse, and still get sick regardless they are not wort it. NOW if you take samples well, a NIMA Sensor can be used to detect gluten in food when eating out. Still very expensive, it is HYPER sensitive and will go off often on things less then 20ppm with even the tiniest bit of gluten. It can enable you to test you food and avoid the entire OH they glutened me I am sick, weeks worth of raised antibodies etc.
PS I am a ambassador for NIMA Sensor, but I am not paid or compensated here for sales/purchases etc. I just love how it opened up some foods that were iffy to my diet and I can sometimes try new things with peace of mind.

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I find they do work. I currently use  Enzymedica Digest Spectrum (it does gluten and a bunch of other things). I used to use Enzymedica Gluten Ease but as I got older I like the broader spectrum digestive enzymes better. I find if I do get cross contamination taking 2 will eliminate the symptoms of needing to urgently go to the bathroom right away. If I don't have any on me then I need to go, and go, and go. But if I do then after the 1st time and then I take the pills I'm good. 

If I go to a new restaurant or someplace I am not sure of I try to take them at the beginning of the meal. Then I never know if I got glutened at all. Many times on a trip I just take them before every meal so I don't have to worry about it.

I still seek out the safest restaurants where the personnel seem to know what they are doing and tell them it is a gluten allergy order.

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I think you should look for ones that are fairly new and made by an actual doctor that is doing research on a world wide level.  They are developing one but the clinical trials in the US will make it take a while to get out.  So.... maybe they have released it as a "supplement"?  But it won't be some of the ones that have no real scientific research .

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i use them whenever i'm not sure or if i feel a sudden mood change after eating.  They do help a lot, but only for small amounts of gluten.  I also purchased a nima sensor.  expensive but worth it. Best thing to do when eating out is to check reviews for celiac safe restaraunts ,most will tell you if they are celiac friendly. also if youi like india food, almost everything is gluten free naturally.  gem of india is now my favorite safest and delicious place to eat.

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On 11/14/2017 at 5:15 AM, Ennis_TX said:

They are supposed to make the symptoms shorter and less severe be eliminating some of the gluten. In theory they work, I know when I tried them years ago....I saw no effect, gluten was gluten and I was sick. This is why I am so against them and their marketing scheme and have advocated against them for a long time. PS some people on this board are paid by the companies for referrals, link clicks etc. -_- I just kicked a  hornets nest but this much is true.  I think for the $100 dollar cost of pills, the fact your still doing damage to you intestines or worse, and still get sick regardless they are not wort it. NOW if you take samples well, a NIMA Sensor can be used to detect gluten in food when eating out. Still very expensive, it is HYPER sensitive and will go off often on things less then 20ppm with even the tiniest bit of gluten. It can enable you to test you food and avoid the entire OH they glutened me I am sick, weeks worth of raised antibodies etc.
PS I am a ambassador for NIMA Sensor, but I am not paid or compensated here for sales/purchases etc. I just love how it opened up some foods that were iffy to my diet and I can sometimes try new things with peace of mind.

What's the benefit of the NIMA Sensor? It's $5.00 per test for food that either already ordered and/or in front of me or I'm at an event and not sure of the contents of the food so want to test it? That's a steep cost to know if I can eat something that I may not come into contact with again. Anything else, I'd have the ingredients list for or be making myself. I'm sure there's something I'm missing....I'm new to this.

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3 hours ago, mommy2x said:

What's the benefit of the NIMA Sensor? It's $5.00 per test for food that either already ordered and/or in front of me or I'm at an event and not sure of the contents of the food so want to test it? That's a steep cost to know if I can eat something that I may not come into contact with again. Anything else, I'd have the ingredients list for or be making myself. I'm sure there's something I'm missing....I'm new to this.

With me I use it differently now days, I take a sample from food I buy not labeled gluten free and test it, NOTE I am talking about order 10-25lbs at a time and testing a bit to make sure the whole batch is "probably safe" In the past there were some foods I used it on to test as I was unsure of (Uptons BBQ. Certain Chips, Spices, Seasonings, Sauces, etc), and when I used to eat out a few times a year...I have not eaten out in over a year so only test some stuff when new shipments come in IE cases of ground meats, huge bags of nut, or seed flours.....I bulk buy for food services I run.

Many people just use them when they are eating out for special occupations or getting something made by others, IE birthdays, weddings, cruises, vacations. I can't Imagine risking my life daily eating out in mixed places and spending extra to test each food on my plate, and sides every day multiple times a day.

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GliadinX (full disclosure...they are a sponsor) Makes an enzyme that has been shown to break down Gluten in the stomach in several studies, and has been mentioned in a publication by Dr. Stefano Guandalini, Department of Pediatrics, Section of Gastroenterology, Hepatology and Nutrition, University of Chicago Celiac Disease Center-Comer Children’s Hospital, Chicago, IL, and was published in Nutrients 2018, 10(6), 755:

 

"12. Treatment of the Extra-Intestinal Manifestations of CD
the only one that is currently on the market is the gluten-specific enzyme, GliadinX (AN-PEP). Unfortunately, it is only capable of detoxifying 0.2 g of gluten or roughly that of 1/8 of a slice of gluten-containing bread. For this reason, it should only be used as an adjunct to the GFD when there are concerns for accidental gluten contamination and in an effort to ameliorate symptoms, not as a replacement for the GFD."

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