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queenofcups

Confused about actual diagnosis/if more diagnostics are indicated

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Hi, 

Do these lab values warrant more diagnostics like a small bowel biopsy? I am currently symptomatic. I apologize as I find this confusing (brain fog isn't exactly helping.) 

Summer 2016:

EliA Celikey IgA (Tissue Transglutaminase Ab IgA) 1.1 U/mL <7.0 U/mL
This test is analyzed using the Phadia 250 method specificreagent kit, the 
recommended reference intervals using thisplatform are:<7 Negatiive7-10 
Equivocal>10 Positive
Gliadin DP IgA Ab 5.9 U/mL <7.0 U/mL
This test is analyzed using the Phadia 250 method specificreagent kit, the 
recommended reference intervals using thisplatform are:<7 Negatiive7-10 
Equivocal>10 Positive
Gliadin DP IgG Ab 3.1 U/mL <7.0 U/mL
This test is analyzed using the Phadia 250 method specificreagent kit, the 
recommended reference intervals using thisplatform are:<7 Negatiive7-10 
Equivocal>10 Positive
Reticulin Ab IgA Negative   Negative
Additional Testing not indicated.    

Fall 2017: (was gluten free for 8 months and started reintroducing it but then the joint pain, flushing, brain fog, dizziness, rashes/poor skin healing, and frequent colds/URIs commenced)

 

Component Your Value Standard Range
Deamidated Gliadin Ab, IgA 13 units 0 - 19 units

Negative 0 - 19
Weak Positive 20 - 30
Moderate to Strong Positive >30

The result says negative but my doctor insists I go gluten free again. Would someone shed any light? 

Thank you.

 

 

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Looks like you tested negative on the celiac blood tests.  Who ordered the tests?  Reticulin has not been used for more than a decade.   This makes me think that your doctor may not be so celiac-savvy.  Why does that matter?  Some 10% of celiacs are seronegative.  If celiac disease is strongly suspected, a  GI might want to confirm with an endoscopy.   Also, you did not say how long your gluten challenge was before that last blood test.  A challenge requires a person to be on a gluten diet for 8 to 12 weeks:

http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/

Do you have any risk factors, like family history, another autoimmune disorder, IBS?  

https://www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220

It seems like the Gluten Free diet is helping your current symptoms of joint pain and rashes.  So, then you would be considered Non-Celiac Gluten Sensitive/Intolerant.  That diagnosis is done when celiac disease has been ruled out.  I can see why he recommended the gluten free diet.  You felt better!  

You are going to have to decide if pursuing a celiac disease diagnosis is necessary for you.  I wish you well.  

 

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