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LexieA

Depression feelings when things are quieter?

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Not related to a food necessarily, but more like when I finally get some time to collect my thoughts and the world stops spinning I get a sense of - suddenly seeing the larger picture of what's happened with me for the last year or even my whole life. Instead of just a quiet reflection feeling like I used to get I sometimes get a depressed kind of feeling. The quiet down time I used to love can sometimes, not always feel more like I'm finally having time after some kind of traumatic event to realize in a bigger way what happened. When you were too very busy with the details to know or care.

And how to deal with that feeling. In a way it's happening when I finally slightly caught up with things. I don't know how this sounds to anyone, that's the best way I can describe it. Maybe like a kind of grief or sadness. I might be mildly depressed though. But when I'm busy-at the time I think I'm doing okay. Until everything stops and then I have this realization that it's not been really okay. That I'm tired and maybe just want to cry and tired of hearing about Halloween and everything. I can snap out of that too though and think who the hell cares really.

When it hits really bad though what could I do to not just stand there feeling like crap? Or would it be okay to just stand there feeling like crap? I'm sorry to sound like a baby but I don't have any family members to advise me or hug me or tell me it's okay, just do this or that.

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2 hours ago, LexieA said:

Not related to a food necessarily, but more like when I finally get some time to collect my thoughts and the world stops spinning I get a sense of - suddenly seeing the larger picture of what's happened with me for the last year or even my whole life. Instead of just a quiet reflection feeling like I used to get I sometimes get a depressed kind of feeling. The quiet down time I used to love can sometimes, not always feel more like I'm finally having time after some kind of traumatic event to realize in a bigger way what happened. When you were too very busy with the details to know or care.

And how to deal with that feeling. In a way it's happening when I finally slightly caught up with things. I don't know how this sounds to anyone, that's the best way I can describe it. Maybe like a kind of grief or sadness. I might be mildly depressed though. But when I'm busy-at the time I think I'm doing okay. Until everything stops and then I have this realization that it's not been really okay. That I'm tired and maybe just want to cry and tired of hearing about Halloween and everything. I can snap out of that too though and think who the hell cares really.

When it hits really bad though what could I do to not just stand there feeling like crap? Or would it be okay to just stand there feeling like crap? I'm sorry to sound like a baby but I don't have any family members to advise me or hug me or tell me it's okay, just do this or that.

I hear you on this, I live alone, isolated by allergies, and this disease often, spending the evenings alone wishing someone would come by and join me for tea, coffee, or hell even board games sound great at times.  I find myself trying to help others on these boards with my knowledge, feel useful and needed. I drink flavored teas, from republic of tea, and coffee flavored like desserts from Christopher bean coffee to "treat myself" and I try to sometimes get online like I used to as a kid and play video games (nerve damage makes games frustrating , hard, and I can not do multiplayer anymore)

Best thing to do is distract yourself, workout, clean the house is always mentally rewarding, hobbies (if you can afford them). I also find peddling on a stationary bike while reading or watching a show to help burn off energy/stress while distracting my mind.

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I got a personal trainer and go to the gym twice a week. It's nice to think about other things. And I don't go crazy at the gym. Light workout so I stop breaking things all the time. I haven't torn a tendon in months. :)

 

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In some ways it is a traumatic event. Celiac can totally change the trajectory of your social/personal life, without your consent. I've found the best thing for me to do is focus 110% on my life goals as it helps to propel me forward

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13 hours ago, Ennis_TX said:

I hear you on this, I live alone, isolated by allergies, and this disease often, spending the evenings alone wishing someone would come by and join me for tea, coffee, or hell even board games sound great at times.  I find myself trying to help others on these boards with my knowledge, feel useful and needed. I drink flavored teas, from republic of tea, and coffee flavored like desserts from Christopher bean coffee to "treat myself" and I try to sometimes get online like I used to as a kid and play video games (nerve damage makes games frustrating , hard, and I can not do multiplayer anymore)

Best thing to do is distract yourself, workout, clean the house is always mentally rewarding, hobbies (if you can afford them). I also find peddling on a stationary bike while reading or watching a show to help burn off energy/stress while distracting my mind.

Yeah if I was there I would totally play board games!! You are the most helpful person ever. I've read and used so much of what you've written on here. I don't feel in a place to help much though I could play the forum games or chat in the non celiac area. I never think to. I do help out on some other forums of different topics, but only randomly. Maybe I should write down the things I do randomly and any other ideas on a notepad so when I feel especially down I can do some of them. I do have some teas I like too but when I'm down I often forget to make any. I am going to look at those deserts to see if I could eat any of them! But I get you, have some comfort foods on hand to cheer yourself up & make a nice hot drink. Online games would be fun. I used to do that too and multiplayer. I'm so sorry you got nerve damage. Those games take a lot of repeated movements too. I haven't played the multiplayer game I loved in ages. It used to be like half my life, lol. Sad but true. But there are lots of low key games I just need to treat leisure stuff as just as important as everything else. I only used to cook occasionally for fun and now it takes a lot of time. Which is fine, I still really enjoy it. But I need to make sure I still do some pure fun things especially when I get like this.

Distract myself sounds like the best thing for me. A hobby! I had forgotten that was a thing, lol. There's a bunch of stuff I want to try doing. None of them involve a lot of money. I think I just need to make the effort. Actually get the supplies I need and put them all in a basket or somewhere easy to grab. Like get a table all set up and designated for that.

Oh, by the way there are some very cool solo player board games. I'll put them on here later. I have about 4 or 5 and they are actually pretty fun. On Amazon there are some discussions about them. I just totally forget I have them. OMG, I love the idea of a stationary bike. I need to start exercising again anyway and that sounds like a great idea!!:)

12 hours ago, tessa25 said:

I got a personal trainer and go to the gym twice a week. It's nice to think about other things. And I don't go crazy at the gym. Light workout so I stop breaking things all the time. I haven't torn a tendon in months. :)

 

That sounds fab tessa! It would be worth it to hire someone that could keep you on track. I forgot how you can daydream at the gym, lol. You are busy but mostly people are just concentrating on themselves so yeah you can think about stuff. If that's what you meant. I'm so glad you've had good results like that! I'm gonna look at the gyms around here. I used to like the gym and it would help get rid of stress. And the stationary bike idea of Ennis too - would give me something different to do than feeling sad and get rid of stress at the same time! While watching Netflix? :rolleyes:

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15 minutes ago, Hobbes said:

In some ways it is a traumatic event. Celiac can totally change the trajectory of your social/personal life, without your consent. I've found the best thing for me to do is focus 110% on my life goals as it helps to propel me forward

Wise words Hobbes. I heard something recently talking about how not to let constant demanding events consume you and stop you from moving towards your dreams. Celiac can definitely take a big chunk and time out of your life but it's not my purpose for being here on the planet. Focus is an excellent remedy to my wandering about crying and stuff. Also I used to do this thing called Pomodoro. It just helped me stay on track and maybe I'll get back to that again. Write down my goals & try to be more constructive.

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hi yes yes n yes! its kinda silly but like u said there’s nothing to focus on! are u on east coast?? im always looking for new friends! but anyway its like im in a funk! i had a heart procedure in may then i was diagnosed w celiacs along w my father! so my fam is supportive as well as my physical therapy which i used up! but just got diagnosed w vertigo n they are treating me for that! but ive been screaming for a vacation pr sm to look forward to! i also just turned 40 so myb mid life crisis! lol but i know exactly how u feel!! 

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4 hours ago, Ennis_TX said:

I hear you on this, I live alone, isolated by allergies, and this disease often, spending the evenings alone wishing someone would come by and join me for tea, coffee, or hell even board games sound great at times.  I find myself trying to help others on these boards with my knowledge, feel useful and needed. I drink flavored teas, from republic of tea, and coffee flavored like desserts from Christopher bean coffee to "treat myself" and I try to sometimes get online like I used to as a kid and play video games (nerve damage makes games frustrating , hard, and I can not do multiplayer anymore)

Best thing to do is distract yourself, workout, clean the house is always mentally rewarding, hobbies (if you can afford them). I also find peddling on a stationary bike while reading or watching a show to help burn off energy/stress while distracting my mind.

i luv tea and coffee!! if we lived close together the 3 of us would make great friends

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9 hours ago, Lorjenn22 said:

hi yes yes n yes! its kinda silly but like u said there’s nothing to focus on! are u on east coast?? im always looking for new friends! but anyway its like im in a funk! i had a heart procedure in may then i was diagnosed w celiacs along w my father! so my fam is supportive as well as my physical therapy which i used up! but just got diagnosed w vertigo n they are treating me for that! but ive been screaming for a vacation pr sm to look forward to! i also just turned 40 so myb mid life crisis! lol but i know exactly how u feel!! 

Yeah, it's when too many things happen at once and you suddenly have to take all this time and thought to deal with them, plus the stress on top of it. That's a LOT you had in a very short time. I hope things settle down for you soon but I know it takes time to figure everything out. Omg, a vacation in Hawaii or something, lol, then I'll be okay! ^_^ But I think what I'm figuring out is that you have to MAKE your own mini vacations every single day or you go insane. So the suggestions people made above are really good I think to redirect your attention to goals and actively DO something towards them. Even playing games and things like that can be a goal. There's goals inside the game and also the goal of giving your mind a break and treating yourself well. I don't do this at all lately and I'm feeling it. Just spinning round inside my head :wacko: and I need to STOP that now. lol. Even though you have so much going on I hope you can find time in the day too to be good to yourself.

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9 hours ago, Lorjenn22 said:

i luv tea and coffee!! if we lived close together the 3 of us would make great friends

That would be awesome! We could go out for coffee or round each others houses and play some games or just chat like Ennis said. :) By the way I suck at most games except a few so you or Ennis are almost guaranteed a win! But I have fun anyways, haha.

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Love these ideas >.< I just finished a entire pot of Banana Forester Coffee from Christopher bean. LOVED it. bit of sweetener and OMG heaven. Many of their coffees are dead on I have been doing reviews on them and sampling for months PS I think the code was 5BEAN or 10BEAN to get you 5-10usd off your orders the flavored ones are the BOMB.

I would love a game night wish you all lived closer to my area of Texas, I been having odd cravings for old games I used to play like Bargain Hunter, Thunder Road, Life, Monopoly. etc.

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22 hours ago, LexieA said:

Not related to a food necessarily, but more like when I finally get some time to collect my thoughts and the world stops spinning I get a sense of - suddenly seeing the larger picture of what's happened with me for the last year or even my whole life. Instead of just a quiet reflection feeling like I used to get I sometimes get a depressed kind of feeling. The quiet down time I used to love can sometimes, not always feel more like I'm finally having time after some kind of traumatic event to realize in a bigger way what happened. When you were too very busy with the details to know or care.

And how to deal with that feeling. In a way it's happening when I finally slightly caught up with things. I don't know how this sounds to anyone, that's the best way I can describe it. Maybe like a kind of grief or sadness. I might be mildly depressed though. But when I'm busy-at the time I think I'm doing okay. Until everything stops and then I have this realization that it's not been really okay. That I'm tired and maybe just want to cry and tired of hearing about Halloween and everything. I can snap out of that too though and think who the hell cares really.

When it hits really bad though what could I do to not just stand there feeling like crap? Or would it be okay to just stand there feeling like crap? I'm sorry to sound like a baby but I don't have any family members to advise me or hug me or tell me it's okay, just do this or that.

With chronic illness like Celiac and other immune disorders I believe one after diagnosis goes through the actual shock of the diagnosis and goes through something similar to  the Kübler-Ross model (the five stages  of grief ) . While this model is tied to the emotions experienced of survivors of an intimate's death, I believe people with life threatening illness or chronic illness experience something similar. The model encompasses five stages of emotions- denial, anger, bargaining, depression and acceptance.

https://en.wikipedia.org/wiki/Five_Stages_of_Grief

Once one begins to experience some relief from the physical symptoms, the emotional can erupt during times of quiet. IMHO this would be natural to the process for us. Only you know if you agree. I think it is normal, natural, for us to experience.

Letting it out, journaling, poetry, writing, creative outlet is helpful and then moving on to the healthy skills/hobbies the other posters above discuss are all helpful. And as many mention in other posters make sure your body is getting the vitamins you need.

This can be socially isolating since society focuses so much on food especially around the holidays.

Cut yourself some flak, your not alone, and as you see above their is a wonderful community here to support you.

 

Best Wishes

Edit: I forgot one more hobby-music. I have since my middle school years have loved music to express what lies within the soul. If you don't play an instrument or the fall out of the illness causes difficult write, sing it, any outlet you can. There is a song for every moment of life. If it gets to intense to express let music express it for you :)

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18 hours ago, Hobbes said:

In some ways it is a traumatic event. Celiac can totally change the trajectory of your social/personal life, without your consent. I've found the best thing for me to do is focus 110% on my life goals as it helps to propel me forward

Got that right. I describe it as buying a roller coaster ride ticket and then finding out you can't get off. You white knuckle it, accept it, then ride the ride, while learning much about yourself , your strength, and emerging coping skills by default ;)

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2 hours ago, Ennis_TX said:

Love these ideas >.< I just finished a entire pot of Banana Forester Coffee from Christopher bean. LOVED it. bit of sweetener and OMG heaven. Many of their coffees are dead on I have been doing reviews on them and sampling for months PS I think the code was 5BEAN or 10BEAN to get you 5-10usd off your orders the flavored ones are the BOMB.

I would love a game night wish you all lived closer to my area of Texas, I been having odd cravings for old games I used to play like Bargain Hunter, Thunder Road, Life, Monopoly. etc.

I would totally join for the games and tea. Alas I am in the Midwest :(

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6 hours ago, LexieA said:

That would be awesome! We could go out for coffee or round each others houses and play some games or just chat like Ennis said. :) By the way I suck at most games except a few so you or Ennis are almost guaranteed a win! But I have fun anyways, haha.

I also would crash your event too people for the comradery, the tea, social outlet, and hopes of getting some of Chef Ennis food-. He shares many of my issues and I would be hopeful to eat something I didn't have to make, that I likely would not react too .......

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15 hours ago, Lorjenn22 said:

hi yes yes n yes! its kinda silly but like u said there’s nothing to focus on! are u on east coast?? im always looking for new friends! but anyway its like im in a funk! i had a heart procedure in may then i was diagnosed w celiacs along w my father! so my fam is supportive as well as my physical therapy which i used up! but just got diagnosed w vertigo n they are treating me for that! but ive been screaming for a vacation pr sm to look forward to! i also just turned 40 so myb mid life crisis! lol but i know exactly how u feel!! 

I am glad you got your diagnosis and I am pleased to hear you heart procedure went well. 

I wish you much comfort and healing on your path.

"but just got diagnosed w vertigo n they are treating me for that!"

Oh gosh I have had bouts of vertigo over 20 plus years -I know ell what you speak of. I refer to it as my "fun house" periods.

 

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18 hours ago, Hobbes said:

In some ways it is a traumatic event. Celiac can totally change the trajectory of your social/personal life, without your consent. I've found the best thing for me to do is focus 110% on my life goals as it helps to propel me forward

Celiac can totally change the trajectory of your social/personal life, without your consent. Very much so.

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Hi LexieA,

It's perfectly ok to grieve or feel down because of a diagnosis of celiac disease.  Feelings are not obligated to perform on command.  But, over time you can adjust to the new diet reality and even like it.  Getting used to eating mostly whole foods and more natural foods is a good thing.  There are lots of new food ideas to explore and learn.

There's a thread on 5 minute microwave buns on the forum somewhere.  Plus threads on bread recipes.  Breakfast ideas thread, snack ideas threads etc.  I don't do much baking myself but sometimes I make gluten-free peanut butter cookies, 3 ingredients and they taste great.  So there's a lot of neat stuff to learn and it does get easier in time.

There is a gab/chat section of the forum which can be helpful at times.  There used to be an online message chat feature on the forum but I don't know if that is still active.

Edited by GFinDC
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On 11/18/2017 at 1:24 PM, LexieA said:

I don't do this at all lately and I'm feeling it. Just spinning round inside my head :wacko: and I need to STOP that now. lol.

That sense of your thoughts being in a non productive loop is a classic depression symptom I can certainly recognise!

The good news is that those patterns you can fall into you can also train yourself to get out of. 

Some of the best results come from Cognitive Behavioural Therapy or CBT for short. You could try here: https://www.getselfhelp.co.uk/step1.htm for an introduction. 

 

 

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    Bloating can be managed by eliminating gluten from the diet which is why a gluten-free diet is necessary for people suffering from celiac disease.
    Fatigue
    Constant feeling of tiredness and low energy levels is another common symptom associated with celiac disease. If you experience a lack of energy after in taking gluten, then you need to consult a physician to diagnose the condition. Now fatigue can also result from inefficient thyroid function, infections, and depression (a symptom of the coeliac disease). However, almost 51% of celiac patients suffer from fatigue in a study.
    Itchy Rash
    Now the chances of getting a rash after eating gluten are slim, but the symptom has been associated with celiac disease in the past. The condition can cause dermatitis herpetiformis, which causes a blistering skin rash that occurs around the buttocks, knees, and elbows. 
    A study found out that almost 17% of patients suffering from celiac disease might develop dermatitis herpetiformis due to lack of right treatment. Make sure you schedule an online appointment with your dermatologist or visit the nearest healthcare facility to prevent worsening of symptoms.
    Even with such common symptoms, diagnosing the condition is imperative for a quick recovery and to mitigate the long-term risks associated with celiac disease. 
    Sources:
    ncbi.nlm.nih.gov  Celiac.com ncbi.nlm.nih.gov  mendfamily.com