Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Guest tracey and emma

We Have Just Found Out The Results Of Emmas Test....

Rate this topic

Recommended Posts

Guest tracey and emma

hi i post hear a few weeks ago saying they were waiting for the hand count of my daughters biopsys. after an abnormal count was found in the first instance. well on the hand count they found the same, and with her symptoms; sleepy, diorea (although not all the time) reluctance to eat (so is tube fed) she had a fundoplication operation (so the could close her tummy so she could not vomit up wards anymore, diagnosed as server gastrophical reflux) and the fact that even with neocate formular pumped into her every night, she is just reached 9kgs at 2 1/2yrs!!! they have decided she probably has celiac. they have now taken a blood test, to check for antibodies as well.

so we are going on a gluten free diet! which would be fine.............but i have just moved with the family to germany, and don´t speak or read a word! (learning but german is so hard!!!!!) so how the hell do i read what she can and can not have!! i have an apointment with the dietican in a week as family are coming out next tuesday so i can go and get lists of words and talk though things! but what do i do till then?

just thought i would let you guys know as i promiced i would get back to you!

just a few quick questions..... if you don´t mind

does this have to be so gluten free that i have to completely even down to giving my son a bisuit and then geting emma a gluten free one, at the same time be extreamly carefull? and work surfaces do they need to be seperate? what about kitchen equipment? i have been told these things by friends but am not sure if this is going totally over the top!! or is it ?

i have no idear, what about buying meat do i have to ask for gluten free? i have been told this to! as you can see i have know idear what i am doing! and also silly one.... but again it is in german can she have heinz tomato sauce because she is going to ask for it tonight as after the operation it helps her to swallow?

sorry everyone feel like i am swimming in the ocean at the moment and have know idear how far i need to take the gluten restiction to! and any one by any chance got an ingredients list that she can not have in german! i know it is not likely but thought i would ask just in case!

thanks for any help

tracey and emma

Share this post


Link to post
Share on other sites
hi i post hear a few weeks ago saying they were waiting for the hand count of my daughters biopsys. after an abnormal count was found in the first instance. well on the hand count they found the same, and with her symptoms; sleepy, diorea (although not all the time) reluctance to eat (so is tube fed) she had a fundoplication operation (so the could close her tummy so she could not vomit up wards anymore, diagnosed as server gastrophical reflux) and the fact that even with neocate formular pumped into her every night, she is just reached 9kgs at 2 1/2yrs!!! they have decided she probably has celiac. they have now taken a blood test, to check for antibodies as well.

so we are going on a gluten free diet! which would be fine.............but i have just moved with the family to germany, and don´t speak or read a word! (learning but german is so hard!!!!!) so how the hell do i read what she can and can not have!! i have an apointment with the dietican in a week as family are coming out next tuesday so i can go and get lists of words and talk though things! but what do i do till then?

just thought i would let you guys know as i promiced i would get back to you!

just a few quick questions..... if you don´t mind

does this have to be so gluten free that i have to completely even down to giving my son a bisuit and then geting emma a gluten free one, at the same time be extreamly carefull? and work surfaces do they need to be seperate? what about kitchen equipment? i have been told these things by friends but am not sure if this is going totally over the top!! or is it ?

i have no idear, what about buying meat do i have to ask for gluten free? i have been told this to! as you can see i have know idear what i am doing! and also silly one.... but again it is in german can she have heinz tomato sauce because she is going to ask for it tonight as after the operation it helps her to swallow?

sorry everyone feel like i am swimming in the ocean at the moment and have know idear how far i need to take the gluten restiction to! and any one by any chance got an ingredients list that she can not have in german! i know it is not likely but thought i would ask just in case!

thanks for any help

tracey and emma

I would encourage you to talk to your doctor (I presume you're dealing with one in Germany) and find a local support group. With the number of people over there who seemed to speak English when I visited, chances are, at least one person in the support group will speak English, and can help translate for you.

Share this post


Link to post
Share on other sites
just a few quick questions..... if you don´t mind

does this have to be so gluten free that i have to completely even down to giving my son a bisuit and then geting emma a gluten free one, at the same time be extreamly carefull? and work surfaces do they need to be seperate? what about kitchen equipment? i have been told these things by friends but am not sure if this is going totally over the top!! or is it ?

i have no idear, what about buying meat do i have to ask for gluten free? i have been told this to! as you can see i have know idear what i am doing! and also silly one.... but again it is in german can she have heinz tomato sauce because she is going to ask for it tonight as after the operation it helps her to swallow?

sorry everyone feel like i am swimming in the ocean at the moment and have know idear how far i need to take the gluten restiction to! and any one by any chance got an ingredients list that she can not have in german! i know it is not likely but thought i would ask just in case!

Yeah, you have to keep work places separate and have separate condiment jars. I suggest buying meats, vegetables, plain rice, fruits, ect in Germany and I agree with Aziah that maybe you could purchase gluten-free foods online until you learn some German. Here are some more websites:

http://www.kinnikinnick.com/

http://www.thaikitchen.com/ http://www.thaikitchen.com/dietaryinfo.html

http://www.gluten free.com/

I believe that Heinz tomatoe sauce is fine in Canada, but I don't know about other countries.

Share this post


Link to post
Share on other sites

I'm in Holland, not Germany, but heinz tomato sauce is gluten free here, and I think it's the same in germany, too.

I'll have a look around if i can find some info about gluten free foods in Germany...

Pauliina

German celiac society: http://www.dzg-online.de/

There was only one page of info in English, but I think your best bet would be to contact them. I'm sure they could put you in touch with someone locally who speaks English and can help with shopping in the beginning.

In the meanwhile, plain unprocessed fruit, veggies, meat, fish, eggs...

Hope this helps!

Pauliina

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...