Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

I hope I’m posting in the correct place... 

I’m looking for answers for my 84 year old grandmother who was diagnosed with celiac disease about 8 years ago. Her health was beyond poor when she was finally diagnosed, and though much better, she still continues to struggle in many ways. 

One of the most troublesome symptoms she experiences is SEVERE pain in her lower right abdomen, through to her back. And this is not a woman who likes to admit she’s in pain, or has a low tolerance for such. If she says it’s bad, it is. 

Today it was so bad she actually went to the ER. Something she avoids at all costs. But I know she’s frightened they’re missing something serious as this is not her first time with such pain. In fact, she has had this off and on for years now, though it has become more severe/frequent.

I just kept thinking this is related to her celiacs disease, as I know for a fact she is not strict about her diet. 

She had an ultrasound today. Nothing. She’s had multiple scans, etc over the years. Nothing. Typically they tell her she has a bladder infection and put her on antibiotics. But she does not have a bladder infection every time the attack’s occur. She also had her gallbladder removed long ago. 

I hate watching her suffer with no answers. I’ve sat in the ER with her in the middle of the night while she’s moaning in pain. 

Could this possibly all be from her celiac disease? Does anyone else get severe pain through to their back? I’d so love to be able to tell her that it could all be the result of her not being strict about avoiding gluten. That there is a relatively easy solution.. 

 

 

Share this post


Link to post
Share on other sites

Hello Nicole

My thoughts would go straight away to some sort of issue with the ovaries, or appendix, but presumably these things have been checked?  Has she had a colonoscopy in recent months?

In my own case I've had pain on the left side, in the groin and pelvic area, which goes through to my back (not the spine area but just around the hip).  I've been told it is a sacroliac joint problem.  Having had a sigmoidoscpy and scans on my ovaries I have had to accept that diagnosis.

The pain is definitely worse if I lift heavy objects, or eat dairy.  In the case of the latter, I think the bloating that dairy causes just puts a lot of pressure in the area and adds to the pain.  That's a theory - it has never been explained.

I am strict with my diet but have had this pain regardless. 

So just a thought really - could it be to do with her hip/back, and the pain is referring to the front?

I really hope she gets the answers she needs so badly.

 

Share this post


Link to post
Share on other sites

Hi Nicole,

i had severe back pain centred on the left side of my back for many years. I thought it was due to an old back injury but it turned out that going strictly gluten free cured it and I now suspect the disk prolapse was a symptom of gluten rather than the cause of the back pain. 

Disclaimer, I'm not diagnosed celiac.

if I slip on the diet the pain can return. Your grandma is probably unlikely to change at this age, but she has every incentive to stick strictly to the diet as the pain is horrible and it's difficult to escape it. It blighted my life for many years and cost me a great deal.

best of luck to you both :)

matt

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,756
    • Most Online
      4,125

    Newest Member
    Nicki2019
    Joined
  • Forum Statistics

    • Total Topics
      112,047
    • Total Posts
      956,565
  • Who's Online (See full list)

  • Forum Discussions

    I suppose the juices you described would be fine, but remember,  you are trying to heal from inflammation.  Sugar, even in the form of juices, is inflammatory (start researching that topic).  I personally only consume coffee, water and black tea.  Boring?  Yes.  It is safe for not only my gluten-free diet, but in managing my diabetes (TD2).   The diet does allow for Gatorade.  There are other options for obtaining electrolytes and most people do not exercise enough to ever warrant it.  But some
    Kareng, I think you are fundamentally incorrect in stating that "the point of the (Fasano) diet is not to give someone lots of choices".  The point of the diet is to allow healing by eliminating all potential sources of gluten, not to unnecessarily limit one's food options for no good reason!  The fact that the diet IS rather limiting in food options is a secondary aspect of the diet, not it's primary goal. I do indeed want to follow both the letter and the spirit of the diet, in order to a
The point of the diet is not to give someone lots of choices.  The point is to severely limit the foods for a short period of time to be absolutely certain no gluten can sneak in.   So the fact that some herbal teas are made with barley might be why they don't want to even chance that.   I would guess that the OJ you described would probably be fine.  The fact is, I have seen people who really are serious about the Gluten Elimination Diet and others that follow parts of it.  I suppose
  • Blog Entries

  • ×
    ×
    • Create New...