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sarahapril224

vomiting ALL foods with celiac??

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I made this account to ask this question and i dont know if this is the right place but please help 

Someone I know was diagnosed about 1 year ago and she’s getting worse I think. 

Everything she eats she vomits whether it’s glutened or not. 

I’m really worried!!

Always feeling pukey which she says is normal but this pukey!!? she cant even take pills

please please PLEASE someone help!! 

edit: she’s taking b12, d3, and a few others that aren’t for main things just like side affects. - sa

Edited by sarahapril224

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4 hours ago, sarahapril224 said:

I made this account to ask this question and i dont know if this is the right place but please help 

Someone I know was diagnosed about 1 year ago and she’s getting worse I think. 

Everything she eats she vomits whether it’s glutened or not. 

I’m really worried!!

Always feeling pukey which she says is normal but this pukey!!? she cant even take pills

please please PLEASE someone help!! 

edit: she’s taking b12, d3, and a few others that aren’t for main things just like side affects. - sa

That is not normal for Celiac.  She should see a doctor and consider that she might have something in addition to Celiac wrong.

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I would consider something else, many with this disease develop other food intolerance issues. In these cases if we eat said trigger foods our bodies puke it up. Best thing to do if this is the case is a food diary, you keep track of everything you eat. You also need to go on a food elimination diet (please google) and remove all processed foods going to whole foods only eating only 2-4 ingredients a meal including spices, sauces, oils, etc. This way you can very quickly track down triggers.
In some cases it can be something else like the way the food is fixed, or something consumed or drank with a meal causing digesting issues like extra tannin preventing proteins from breaking down, high histamine foods triggering a histamine response, high lectin foods triggering the vomiting via lectin intolerance.
Heck I still can not eat high fatty foods, animal fats, animal meats, and some tough foods without digestive enzymes which could be another issue she could consider. If you lack the enzymes to break down proteins, fats, carbs, etc. Your going to vomit them up hours after the meal since you can not break them down.
There is also a various causes for gastric emptying, where say you eat a meal high in protein, fats, or tough solid foods, or a trigger food (for me garlic, onions, and certain spices) in certain amounts might cause your stomach not to dump to the small intestines, Depending no the issues dietary changes, supplements, surgery can fix this but you need to talk to a doctor about these issues.
Do you need post on intolerance, allergies, and enzyme issues?  I posted in the past and can dig them up for you for relevance sake.

One last thought, many celiacs do not quite get the whole 100% gluten free thing and think eating out, the occasional gluten, or shared environment with gluten eaters is safe. Trace amounts of gluten still getting into the system can trigger reactions also.

PS one other thought, constipation, is very common with this disease, if your low on magnesium and do not go daily with a BM you can get backed up....with no where else to go meals can be puked up as they can not go down. I used to have this issue with extreme issues. And found drinking a hot beverage with magnesium citrate, (Natural Vitality Calm) a hour or two before a meal will get my system moving. This fixed my morning vomiting issues I started having years ago where it seemed my tract bogged down at night and could not handle breakfast in the mornings.

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has to make sure  she is really 100% gluten free and NO CHEATING.

I threw up every day for 6 months  until they  figured out it was  celiac. Three days  after that I was ok again.  

 

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13 hours ago, Ennis_TX said:

I would consider something else, many with this disease develop other food intolerance issues. In these cases if we eat said trigger foods our bodies puke it up. Best thing to do if this is the case is a food diary, you keep track of everything you eat. You also need to go on a food elimination diet (please google) and remove all processed foods going to whole foods only eating only 2-4 ingredients a meal including spices, sauces, oils, etc. This way you can very quickly track down triggers.
In some cases it can be something else like the way the food is fixed, or something consumed or drank with a meal causing digesting issues like extra tannin preventing proteins from breaking down, high histamine foods triggering a histamine response, high lectin foods triggering the vomiting via lectin intolerance.
Heck I still can not eat high fatty foods, animal fats, animal meats, and some tough foods without digestive enzymes which could be another issue she could consider. If you lack the enzymes to break down proteins, fats, carbs, etc. Your going to vomit them up hours after the meal since you can not break them down.
There is also a various causes for gastric emptying, where say you eat a meal high in protein, fats, or tough solid foods, or a trigger food (for me garlic, onions, and certain spices) in certain amounts might cause your stomach not to dump to the small intestines, Depending no the issues dietary changes, supplements, surgery can fix this but you need to talk to a doctor about these issues.
Do you need post on intolerance, allergies, and enzyme issues?  I posted in the past and can dig them up for you for relevance sake.

One last thought, many celiacs do not quite get the whole 100% gluten free thing and think eating out, the occasional gluten, or shared environment with gluten eaters is safe. Trace amounts of gluten still getting into the system can trigger reactions also.

PS one other thought, constipation, is very common with this disease, if your low on magnesium and do not go daily with a BM you can get backed up....with no where else to go meals can be puked up as they can not go down. I used to have this issue with extreme issues. And found drinking a hot beverage with magnesium citrate, (Natural Vitality Calm) a hour or two before a meal will get my system moving. This fixed my morning vomiting issues I started having years ago where it seemed my tract bogged down at night and could not handle breakfast in the mornings.

you mentioned the environment thing.. she’s with family members in the house and they still all eat gluten. but when making her food hands are washed, and all foods are kept seperately. she doesn’t FEEL glutened, just always pukey and sometimes even puking. more like dry heaving? i guess

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She should rule out active celiac disease (gluten in her diet) with a follow-up antibodies test.  This should be done a few months after the initial diagnosis and then yearly with her GI.  

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/

If her antibodies tests have returned to the normal range, her doctor can look for something else as the cause if her current vomiting.  

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7 hours ago, sarahapril224 said:

you mentioned the environment thing.. she’s with family members in the house and they still all eat gluten. but when making her food hands are washed, and all foods are kept seperately. she doesn’t FEEL glutened, just always pukey and sometimes even puking. more like dry heaving? i guess

Some can live in a shared environment if proper steps are taken, like having dedicated gluten free cookware, dedicated area for fixing gluten free foods, avoiding using fresh flour like etc. Others like me and some others here, had to move out as relatives could not comprehend sensitivity and constant mistakes made us constantly sick til we had to move to a dedicated gluten-free home/kitchen.  Shared condiment jars with double dipped spoons/knife used on gluten foods, touching gluten foods with hands or utensils then touching gluten free food, scratched pots/pans, shared toasters, crumbs on prep counters, air borne flour. are all common issues with CC.

You mention no symptoms...puking is one...there are over 300 symptoms to this disease and it manifest differently in everyone. Level of exposure, sensitivity, etc. also effects our reactions and it constantly changes. Funny thing is, one crumb can set off a antibody reaction for weeks, up to months. Initial reactions normally last a day to a few weeks, but damage and others symptoms can take longer as the antibody reactions go down. This disease, your body mistakes the gluten protein (smaller then a germ) for something dangerous to the body and produces antibodies and goes on a rampage, It will normally attack our intestines, but can and will attack other areas. This causes the internal damage and leads to many other possibilities for complications. And your body will keep producing antibodies even after the gluten is gone to make sure it is. Gluten being a protein, not a germ is not destroyed by soap, antibacterial soap, or bleach. Think of it like trying to destroy blood where a CSI tech can not find it with their lab kit -_-. On the same note you can decontaminate something with a 500F oven self cleaning cycle.

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I ended up with gastroparesis which causes delayed gastric emptying. Look into this as well. I ended up severely sick with this , not sure if celiac caused this but I have both. Chronic nausea and vomiting. Can not take any medications/supplements bc they do not leave my stomach quickly enough and build up toxicity very quickly.  There is a test that can be done for this done by GI. You have to eat something while being x-rayed/scanned, takes about 4 hours. 

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3 hours ago, ccrew99 said:

I ended up with gastroparesis which causes delayed gastric emptying. Look into this as well. I ended up severely sick with this , not sure if celiac caused this but I have both. Chronic nausea and vomiting. Can not take any medications/supplements bc they do not leave my stomach quickly enough and build up toxicity very quickly.  There is a test that can be done for this done by GI. You have to eat something while being x-rayed/scanned, takes about 4 hours. 

Excellent suggestion!  😄

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    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.