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celichris

Testing after Gluten exposure

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Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

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I haven't had a doctor do a panel on me since I was diagnosed. IMHO your doctor would be better off checking your vitamin levels and for anemia, liver function etc. If your still having D then stool testing to make sure you didn't get food poisoning or something along those lines would be in order. There really isn't anything they can do to help us get over a severe glutening so maybe he/she is doing the test because he/she thinks you want it done? Have you asked why they are doing it?

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2 hours ago, celichris said:

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

I do not get it either.  While nice to check on follow-up visits,  the jury is still out on the relationship of antibodies and intestinal damage.  

I test positive to only the DGP IgA.  My GI has ordered the the entire panel a few times and now just orders the DGP IgA if I request it.  It saves money for sure.  I confess that I have mostly returned a month or so for testing after what I think was a hidden gluten exposure.  I go, because my post-glutening symptoms change so much.  In five years I have never had a normal DGP IgA.  For piece of mind, I want to be able to figure out what may have glutened me (but I have never definitively been able to identify a source — lots of speculation).  

So, I plan on getting another endoscopy to make sure I have healed over the past five years or at least confirm that my gluten-free diet is working.  

So, what else could elevate my DGP IgA?  Another AI (I already have Hashimoto’s)?  I find very little on the subject.    Celiac disease does not receive much funding and post diagnosis studies are not in abundance.  

Ask your doctor why.  

 

Edited by cyclinglady

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57 minutes ago, celichris said:

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

Unless its prolonged - like 12 weeks, it probably wouldn't show in a Celiac person's blood test.  Maybe your doctor is trying to convince you you don't have Celiac buy showing you negative tests?  

Actually- how does your doctor even know you were "glutened"?  I don't all my doctor up if it happens.  She can't do anything about it

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