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I have been gluten free since I was diagnosed 10 weeks ago.  I have noticed a slight improvement in some of my symptoms but other symptoms seem to be staying the same or maybe even getting worst.  I have also had the worst nausea almost every single time I eat for the past month.  Does this sound like a normal part of the healing process? I am getting so discouraged, I have been eating so carefully and feel like I am getting further and further away from my old self.  Any advice or encouragement would be much appreciated!

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1 hour ago, Maddiecl said:

I have been gluten free since I was diagnosed 10 weeks ago.  I have noticed a slight improvement in some of my symptoms but other symptoms seem to be staying the same or maybe even getting worst.  I have also had the worst nausea almost every single time I eat for the past month.  Does this sound like a normal part of the healing process? I am getting so discouraged, I have been eating so carefully and feel like I am getting further and further away from my old self.  Any advice or encouragement would be much appreciated!

I am sorry that you are sick.  Ten weeks is just a short amount of time to expect healing.  Things can actually get worse.  The gluten free diet has a very steep learning curve.  So, expect to take a step forward and some days you will step back.  Consider reducing processed foods and avoid eating out until you feel better.  Check out our Newbie 101 section under “Coping” for forum member tips.  

Remember, that celiac disease is an autoimmune disorder.  Your antibodies can take months to over a year to come down (I kid you not!).   They take time to ramp up and then come down.  Everyone is different in terms of healing because they have different types of collateral damage (like gastritis, osteoporosis, other autoimmune issues, anemia) which take time to heal.  Not to mention that a damaged gut is a leaky gut and intolerances are common (e.g. lactose).  Some of those intolerances will resolve and others will not.  

Be sure to get good follow-up care (like antibodies checked in three to six months) as recommended by celiac centers.

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/

Hang in there!  

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