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Isabel Z

Can anyone relate and help?

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I’m a teen with celiacs. It’s so hard for me for many reasons. 1. at social events it is so awful to not be able to eat anything except snacks from home. 2. I am still very short and it’s embarrassing! 3. i have to go to the doctor every 3 months for lots of blood work. Is every celiac’s life like this or just mine? Can anyone help me cope with celiacs?

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Thanks so much for the tips! I told my mom them and she thought they were pretty clever. And I never realized how lucky I was to have medical help. I’ll be much more careful with personal information. I was going to delete the post in case it had too much info but i can’t unless you delete your reply. It’s ok though. Thank you!

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I fix meal packs in a food prep kit I got online called a jax pack I can fix enough for 1-3 days depending on which pack I fill. I find fixing full on meals in advance...think something that looks great bento style and smells amazing to make others jealous and make it look pretty so you can smile when you pull it out and brag about it.....I had to go the ego route with it sometimes to comfort myself. This allows me to go out and eat sometimes with others. I learned to cook and offer to cook for others...perhaps you can practice and amaze your friends by fixing up some gluten-free dish like crock pot roast, or chicken shred it and have a nacho party? Think of something easy, naturally gluten-free and can bring everyone together and amaze them with your cooking skills. 

I have comprehensive list of gluten free foods, while we do normally suggest a whole foods only diet, there are options now days for instant meals, and all those standard kids quick foods like hot pockets, cheese sticks, nuggets, tots, corn dogs, etc now from other companies so you can also look the part and not feel that different.

You are indeed very lucky to have medical services...I have not been able to see a actual doctor since last fall when I lost insurance....I have some friends who are doctors who help out and a chiropractor that will work with me but I can not get blood or labs done.....imagine having to trouble shoot everything and go hit and miss all the time.....

https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/

 

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Hi Isabel,

Your body needs nutrients to grow.  Nutrients not absorbed well when we have celiac disease damage in our guts.   But, if you do a good job of avoiding gluten, the gut damage should heal and you will be able to absorb nutrients again.

The thing to remember is celiac disease is an immune system reaction.  Immune reactions are very sensitive and just a tiny amount of gluten can get them going.   And they can last for months.  So it;s very important to avoid all gluten all the time, to keep the immune reaction down.  Keeping the immune reaction down keeps the damage down, and the healing can keep up.

You may start to grow more if you can absorb nutrients better.  Some extra vitamin pills might be a good idea.  Your doctor should know.

 

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You don't have Turner's Syndrome do you? My niece was diagnosed with celiac disease which later led to a diagnoses of Turner's. There is evidently some sort of connection between the two. They gave her shots of HGH to help her grow because she too was very short.

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