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DebLee Salzman

Gluten Exposure for Celiac

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3 hours ago, DebLee Salzman said:

Celiac diagnosed in 1992. Ate Domino's gluten free pizza (1 small slice every evening for 2 weeks)

Experiencing severe bone pain similar to pre-diagnosis. Wondering how long it will last. 

Anyone else have this following gluten exposure?

DebLee

Eating a Dominos pizza with all the possible CC is something I would not do.  I don't think having a reaction to it makes you "super sensitive".

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5 hours ago, DebLee Salzman said:

Celiac diagnosed in 1992. Ate Domino's gluten free pizza (1 small slice every evening for 2 weeks)

Experiencing severe bone pain similar to pre-diagnosis. Wondering how long it will last. 

Anyone else have this following gluten exposure?

DebLee

LOL sorry but really? You trust that, dominos, papa johns, and pizza hut ALL say they can not 100% guarantee their gluten-free pizza are celiac safe. THEY USE the same prep areas, same ingredient bins, same ovens and in many cases the same cutters and spoons used to spread the sauces and cut the pizza. I doubt the employees would even bother changing gloves between pizzas during rush.   Seriously if you want a gluten free pizza....gut a premade one in the freezer section from UDI, Dayia, RealGoodPizza or a crust from cappellos or califlower foods and make your own....Here please save yourself here is a list. BTW Pizza hut uses UDI crust and just tops them with their sauce etc....CCing in most cases and delivering them. Also the REAL good pizza will mail you cases of their pizzas fully made. Califlour foods and capello will mail you empty crust by the case. SO you can order them if  local stores do not carry them.


http://udisglutenfree.com/product-category/pizza-crust/
https://daiyafoods.com/
http://iansnaturalfoods.com/products/gluten-free-cheesy-french-bread-pizza/
https://www.geefree.com/collections/all/products/cheese-pizza-pocketshttps://cappellos.com/collections/pizza
*^Grain Free Pizza crust to make your own with using eggs, coconut and arrowroot for a base crust blend. The Naked pizza crust is dairy free. Order frozen by the case and they ship them to you.
https://realgoodfoods.com/productpage/
*^Grain Free Pizza They use Dairy Cheese blended with chicken breast to form personal pizza crust. You can order them frozen and shipped to you. NEW PRODUCTS they do Enchiladas NOW
https://www.califlourfoods.com/collections
*^ This is the only one I buy, grain free, low carb crust, and the plant based one is great, NOTE these make a New york style flat crust, I use 15 min prebake before adding toppings to make them extra crispy
http://glutenfreedelights.com/our-sandwiches/
^Gluten free hot pockets? YES they make them for when you need the old instant hotpocket, odd craving but I know they hit sometimes.
CRUST MIXES Grain free
https://www.simplemills.com/collections/all/products/almond-flour-pizza-crust-mix
https://julianbakery.com/product/paleo-pizza-crust-mix-gluten-grain-free/

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Hey Deb,

In theory (based on some studies), your small instestine should heal pretty fast (within weeks), but often there is collateral damage that can take longer (like your bone pain).  For me, personally, a gluten exposure can set me back three to six months.  My antibodies can last over a year.  And worse, I now developed autoimmune gastritis and hives.  Yikes!  

I had  some hip and rib cage pain when I was first diagnosed.  Two months later I fractured some vertebrae.  I had been undiagnosed for so long, that I developed osteoporosis.  I assume that once on a gluten free diet, your pain should diminish based on a strict adherence to the diet and  your previous experience.  

I hope you feel better soon!  

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Maybe get your vitamin D levels checked.  And take some K-2. K-2 is supposed to help vitamin D absorb into bones.  Oh, and skip the Dominos next time! :)

We all make mistakes at times,.

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Ouch I am sorry . I know how painful bone,  joint, muscle pain can last weeks for me . Hopefully you'll be able to clear it quickly if otherwise you have been healthy this season.

As others suggested some TLC , vitamins, mineral to assist may help. I find accupuncture helpful too or massage.

As for a gluten-free pizza I can no longer have them due to additional intolerances to milk. I in past days found sabatassos gluten free pizza carried at my local Costco pretty yummy if you can find it.

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