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Kate Duong

Concern about lymph nodes

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Hi everyone,

This is my first post. I am happy to find a forum for being shared and being answered. I am really despressed with my all symptoms and got confused with tons of information from google :((. Sorry if my story below is long and spend your time. I just want to be shared my worries. Thanks

I experienced some symptoms such as abdomen pains, diarrhea, fatigue, one side heachade and enlarged lymph nodes. These things are appeared more frequently after I gave birth to my baby 2 years ago. Recently, it becomes quite bad. I have met some family doctors, they did not concern anything until the recent one. She said that I should try gluten free for 1 month, diary free for 2 weeks, then returned. But I still do not do any tests for comfirming except for CBC test and ultra sound for lymph nodes. All results were normal, except for one indicator in blood test a little low (mchc). The doctor said that she had no concern. I have travelled a lot, so it was hard to eliminate gluten totally. I have had some accidentally gluten eating, so I still feel sick, especially abdomen pain and lymph nodes. I am now in strictly diet for 1.5 weeks and feel quite better, except for the lymph nodes. After 2 months, I finally can return doctor office for more discuss, though I am very worried. To talk about the lymph nodes, I have one in gland for 1 year, not movable; another in neck for about 4-5 months, movable. They are in size of a bean. Are they too big? They seem not enlarge or down size from the day I felt them. Recently, I am very scared to find that there are 2 or 3 on going in the lower neck and groin area. They are at the size of peas. And no one is bad pain, just a little discomfortable. Oh my god, I hope you guys can share my feeling... just some days you wake up and find out that some new lumps growing up in your body. That's a terrible feeling. Has anyone experienced the enlarged lymph nodes? Before or after going gluten free diet. Could the diet help to reduce their size or they will still there. I read about the link between celiac and lymphoma. I am really really scared. My daughter, she is just 2. I will have doctor appointment next week, beside the tests to comfirm celiac, should I ask her to check the lymph nodes again also. Any one got celiac and lymphoma at the same time? Please share your experience.

Thank you.

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2 minutes ago, Kate Duong said:

Hi everyone,

This is my first post. I am happy to find a forum for being shared and being answered. I am really despressed with my all symptoms and got confused with tons of information from google :((. Sorry if my story below is long and spend your time. I just want to be shared my worries. Thanks

I experienced some symptoms such as abdomen pains, diarrhea, fatigue, one side heachade and enlarged lymph nodes. These things are appeared more frequently after I gave birth to my baby 2 years ago. Recently, it becomes quite bad. I have met some family doctors, they did not concern anything until the recent one. She said that I should try gluten free for 1 month, diary free for 2 weeks, then returned. But I still do not do any tests for comfirming except for CBC test and ultra sound for lymph nodes. All results were normal, except for one indicator in blood test a little low (mchc). The doctor said that she had no concern. I have travelled a lot, so it was hard to eliminate gluten totally. I have had some accidentally gluten eating, so I still feel sick, especially abdomen pain and lymph nodes. I am now in strictly diet for 1.5 weeks and feel quite better, except for the lymph nodes. After 2 months, I finally can return doctor office for more discuss, though I am very worried. To talk about the lymph nodes, I have one in gland for 1 year, not movable; another in neck for about 4-5 months, movable. They are in size of a bean. Are they too big? They seem not enlarge or down size from the day I felt them. Recently, I am very scared to find that there are 2 or 3 on going in the lower neck and groin area. They are at the size of peas. And no one is bad pain, just a little discomfortable. Oh my god, I hope you guys can share my feeling... just some days you wake up and find out that some new lumps growing up in your body. That's a terrible feeling. Has anyone experienced the enlarged lymph nodes? Before or after going gluten free diet. Could the diet help to reduce their size or they will still there. I read about the link between celiac and lymphoma. I am really really scared. My daughter, she is just 2. I will have doctor appointment next week, beside the tests to comfirm celiac, should I ask her to check the lymph nodes again also. Any one got celiac and lymphoma at the same time? Please share your experience.

Thank you.

You should get the lymph nodes checked.

You need to be eating a regular gluten containing diet to get the best & most accurate results for celiac disease.

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Celiac disease is a bit like a chameleon in symptoms with over 500 known combinations (someone else said this number). It being a autoimmune disease it would not be unheard of it effecting the lymph nodes and in fact early on my first signs of a CC was tightening and swelling of the ones in my neck. I have not noticed this with my past few encounters in the past 2 years. But as I said it is a chameleon in symptoms. You will need to be eating gluten daily for about 12 weeks for the celiac blood panel which is the standard for testing with this disease. And keep eating it for 2 weeks prior to a follow endoscope and biopsy to check for intestinal damage. You can read up more in the link http://www.cureceliacdisease.org/screening/

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Thank you for your advices, Kareng and Ennis_TX. Hope you guys are still doing well with celiac. I will ask my doctor about the preparation for the Celiac screening and lymph node checking. By the way, do these test cost much?

To Ennis_TX: Did you do any test or check for your lymph nodes, when you noticed them swelling. And did you have many of them? did you member their size? Were they hurt you. Sorry for asking to much. My doctor just told me do ultra sound. I dont know should I ask her to do another tests to make sure the reason of swelling lymph nodes

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I’m not sure if you will see this but what happened to your lymph nodes since this post? My endoscopy is coming up in 3 days, my whole celiac disease panel was positive. A couple of weeks ago I found a lymph node on the side of my neck. It is quite hard/firm. It’s not bone hard but not soft either. I think it’s kind of round in shape, maybe the size of a chickpea or bean. It is very movable though, I think it feels harder when I move it around because it is close to the muscles in my neck. Very scary since it has not gone away. I’m going to the doctors in a couple of weeks to go over the results from my endoscopy and I have this sore on my scalp that she wants to look at. I’ll get her to check this lymph node and the one behind my ear on the same side. That lymph node is very small but it’s tender and hard and doesn’t move. 

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    To the OP, once in a while this stuff happens.  Please feel free to start a new topic if that would make it easier.  I am afraid this is just part of forums on the internet. I hope this didn’t chase you off.  
    @anasss Nobody in this thread has called anyone "ignorant," so please don't say that if it did not happen. Also, the use of all capitals is, in forums and other places on the Internet, generally considered yelling and impolite, and there ...
    Bshake, Look up the "baking soda test" ...it is a nice home test to see if your daughter could have low stomach that is triggering the ulcers or creating the perfect conditions for ulcers to develop....mastic gum as has been mentioned...
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