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Mermaidzen

Gluten sensitivity

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Hi I hope you can help. My daughter has had chronic constipation for the last 7 yrs. she was tested for celiac a few years ago and it came back clear. I have at last got her seen by a paediatrician after years of trying. She has said to come of gluten for 4-6 weeks. She started it with doing faecal impaction regimen so had a good clear out. 

I am wondering how long it will take till we know if gluten is the cause. 

As to clearing out. She has her own spreads and have checked everything in the kitchen and make sure that everything is well washed before she uses it to make sure no gluten contamination 

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1 hour ago, Mermaidzen said:

Hi I hope you can help. My daughter has had chronic constipation for the last 7 yrs. she was tested for celiac a few years ago and it came back clear. I have at last got her seen by a paediatrician after years of trying. She has said to come of gluten for 4-6 weeks. She started it with doing faecal impaction regimen so had a good clear out. 

I am wondering how long it will take till we know if gluten is the cause. 

As to clearing out. She has her own spreads and have checked everything in the kitchen and make sure that everything is well washed before she uses it to make sure no gluten contamination 

I am sorry your daughter is ill.  

Be sure to read the Newbie 101 thread under the “Coping” section.  Things like a dedicated colander and toaster are in order.  

Just because she tested negative a few years ago, does not mean she does not have celiac disease. It can develop at any time.  You might want to check to see if a complete panel was run.  Not all celiacs test positive on the standard screening TTG test (like me).  Some celiacs are seronegative.  In that case, they might go directly to an endoscopy. 

But it sounds like your doctor wants you to try the gluten free diet.  Six weeks might not be long enough to recover or tell if the diet is working.  Why?  We all heal differently, we often have different intolerances/systemic issues beyond the gut and that take time to identify, and the diet has a steep learning curve.  You may have to give it more time.  

In the meantime, read.  The more you know, the better you are able to work with your doctor to improve your daughter’s health.  They can not keep up on everything!  

 

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As mentioned above check out the newbie thread, also a few simple and easy ways to prevent CC issues, get new microwave cookware like the nordic ware omlette maker, steamer, grilling plate (with cover) rice cooker etc. Cheap easy and disposable if you mess up with that price. Crock pot liners will make preventing CC and doing stews in a crock pot easy with whole foods. Butcher/Freezer paper makes a nice clean prep surface and eating mat for kids that you can just toss when done. Might use food service gloves if your handling gluten, gluten is a protein smaller then a germ, anti bacterial and bleach do not destroy it. 500F in a oven self clean will if you want to decon cast iron and some high temp metal cooking dishes. Think of it as blood that a CSI team is looking for, are you sure you removed it and they will not find it?

https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

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