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Hey there, I'm new! I've spent quite some time on this site reading up and thought I'd ask the experts.

In end of November I started experiencing symptoms (toilet and gas focus) which in January really started escalating enough to send me to the doctor. I explained my symptoms and got a blood test and results about 10 days ago. My 'Deamidated Gliadin IgA was high at 31 U/mL (normal being <15) while the other results were all normal. Doc told me to go to GI for endoscopy, although stated this isn't a 'huge' increase. Meanwhile my symptoms started escalating to the occasional vomit, massive fatigue and feeling like I would collapse while walking to work. I'm reading a lot about this now (though still don't feel knowledgeable at all), and I'm wondering 1) does this number give any indication of celiac as a stand alone?  No family history. 2) Is it possible that if it could be celiac, that it can happen so quickly?  It just seems to be so sudden so I'm quite confused. 

I'm seeing the GI next week for next steps. It's just been a tough couple of weeks and I don't seem to get much help from the GP. Any tips would be appreciated! 

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For me most my life I had tale tale symptoms, and stuff was happening for so long I considered many things to be "Normal" I did something stupid in my early 20s that shocked my immune system and made my symptoms change to things much more noticeable as puking, worsened fatigue, gut pain so bad I sometimes could not leave the bed, random bouts of extreme confusion where my mind would just start looping leading to anger and violent outburts, constipation lasting over a week,...Everyone is different symptom wise with this disease and it shows in various ways always changing. Shocks to the immune system can sometimes cause changes or even bring a dormant gene for the disease out and make it suddenly just appear.

For now just keep eating gluten daily so your test will be accurate, get the testing done and go from there. Just incase might consider doing your food bucketlist of stuff you will have to stop eating now if you come back positive.

Fatigue can be addressed by figuring out the cause, many cases it is related to a nutrient deficiency in combination with your body fighting something. Look into perhaps B-Vitamin supplements like Liquid Health Stress & Energy and a magnesium is another common on, a glycinate like doctors best if you have a bowel movement daily. If you have hard stools, or constipation look like Natural Vitality Calm and dose small 1/4tsp at first and work up to full dose or you get loose stools then back down the dose.

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6 hours ago, sezza61 said:

Hey there, I'm new! I've spent quite some time on this site reading up and thought I'd ask the experts.

In end of November I started experiencing symptoms (toilet and gas focus) which in January really started escalating enough to send me to the doctor. I explained my symptoms and got a blood test and results about 10 days ago. My 'Deamidated Gliadin IgA was high at 31 U/mL (normal being <15) while the other results were all normal. Doc told me to go to GI for endoscopy, although stated this isn't a 'huge' increase. Meanwhile my symptoms started escalating to the occasional vomit, massive fatigue and feeling like I would collapse while walking to work. I'm reading a lot about this now (though still don't feel knowledgeable at all), and I'm wondering 1) does this number give any indication of celiac as a stand alone?  No family history. 2) Is it possible that if it could be celiac, that it can happen so quickly?  It just seems to be so sudden so I'm quite confused. 

I'm seeing the GI next week for next steps. It's just been a tough couple of weeks and I don't seem to get much help from the GP. Any tips would be appreciated! 

Keep eating gluten until  you see your GI or your test results (biopsies via endoscopy) may be inconclusive.  Consider taking this time to bid a fond farewell to some of your gluten favorites.  That is what I did.  I just had anemia when my doctor suggested celiac disease testing.  I waited seven weeks for my endoscopy due to work constraints.  By the end of seven weeks (and a loaf of sourdough bread a day — I kid you not!), I knew in my head and gut that gluten was making me sick.   You really only have to eat a slice of bread or two a day (or equivalent).  Sometimes a few crackers are enough, but I lean (like the University of Chicago) towards a more conservative amount because the goal is to insure a firm diagnosis.  

The DGP IgA?  Yep, mine was elevated like yours.  All other tests on my celiac panel were negative, even in follow-up testing.  The TTG is good, but does not catch all celiacs (most doctors do not know this fact).   My biopsies revealed moderate to severe damage.  So, just because your number is not “off the charts”, it does not correlate necessarily with the amount of intestinal damage.  I had no family history.  I am the first diagnosed celiac.  Finally, celiac disease is like a chameleon, symptoms can change or ebb and flow.   It is why testing is necessary as so many symptoms overlap with other illnesses.  

Worried about not eating gluten for the rest of your life?  Don’t be.  There is a gluten-free (gluten free) substitute for everything.  

Welcome!  

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As Ennis had said, I had telltale signs got sick from eating different foods, which looking back they all were gluten foods, but I thought everyone had these problems eating them that's just the way it was....my doctors told me they didn't know what was causing my GI problems, and had basically said that it was in my head and nothing wrong, years later I became so ill that I couldn't function in a normal way, fatigue,  nerve pain, bloat , constipation, my body started to shut down, was told I was terminal w/ 6 months to live if that. I left the hospital to never return, I did my own research and diagnosed myself,  went to my GI doctor and told him what I thought and I wanted to be tested for Celiac,  he asked about my diet, I told him that I hadn't consumed gluten since had diagnosed myself 6 months earlier ....he laughed and said I needed to start eating gluten for the test to be acurate, I told him that there was NO way I would, he said the test would be negative and it would be a waste of his time. I said to him to prove me wrong, he agreed... test was an absolute positive.....he didn't know what to say, he looked quite embarrassed,  he wanted me to do a whole bunch of other test as he thought this was a false positive I refused and told him I no longer would need him or any other doctors ......this was 6 years ago, take the gluten free challenge.....it's a lot less painful and harmless to your body. I am now 100+ lbs lighter, lost 20" in waist, my body is still healing, I honestly think if I had done the gluten challenge to appease him I would be dead.

Bottom line you know your body better than ANYONE , listen to it.

Edited by David Stockman
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I also felt the disease came suddenly. I was already in my 30s. I guess you need the right constelation of factor to allign and make you vulnerable enough for it to manifest itself. This seems to match the views of Dr. Alessio Fasano, a very respected specialist in celiac disease (check out some of his interviews on youtube). 

In my case, I had moved to a different country, where I started to eat more wheat and where my sun exposure was much lower (low vit.D, low immunity). This lead to multiple URT infections, for which I was always prescribed antibiotics. The antibiotics devastated my microbiome and made me even more vulnerable. The tipping point was a stomach flu, a bad one. By then my insides must have been leakier than a colander. I never was the same again. 

Two years after that stomach flu and a lot of complaining I was finally tested and diagnosed. 

 

 

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