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Symptoms of celiac or something else?

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I'm still trying to figure out this whole "celiac" thing... Since going gluten free parts have gotten better. My appetite has returned (but with a vengeance) and I don't feel so nauseous and haven't had too many other issues digestion. But I've been feeling very fatigued all the time. I can never get enough rest but can never seem to actually relax either. I've had horrible headaches and migraines since starting gluten-free diet. And I've noticed I have souch more pain through out my entire body. My joints feel like they are on fire and my muscles ache constantly. I feel bruised from head to toe. I've had terrible brain fog and can't seem to concentrate on the smallest tasks. Is this normal for everyone? 

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Platinum,

Magnesium can help your chronic fatigue.

Here is the National Institute of Health's Fact sheet on Magnesium.

https://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/

find a Magnesium Citrate or Magnesium Glycinate and your body will think you with increased energy, muscle cramps that disappear as if by by magic and vivid dreaming will replace your fatigue.

quoting from the NIH.

Groups at Risk of Magnesium Inadequacy

"Magnesium inadequacy can occur when intakes fall below the RDA but are above the amount required to prevent overt deficiency. The following groups are more likely than others to be at risk of magnesium inadequacy because they typically consume insufficient amounts or they have medical conditions (or take medications) that reduce magnesium absorption from the gut or increase losses from the body.

People with gastrointestinal diseases

The chronic diarrhea and fat malabsorption resulting from Crohn’s disease, gluten-sensitive enteropathy (celiac disease), and regional enteritis can lead to magnesium depletion over time [2]. Resection or bypass of the small intestine, especially the ileum, typically leads to malabsorption and magnesium loss [2]."

 It is estimated almost 75% of us are low in it and we don't know it.

we are said to wast away without enough Magnesium. 

Magnesium is needed for animals the way chlorophyll is needed by plants to make energy.

People who have low stomach acid can have trouble absorbing enough Magnesium from their food.

see this thread where some of these things are summarized.

you might also want to have your Vitamin D levels checked.  I was low in  Vitamin D when I received my NCGS/Celiac diagnosis.

I hope this is helpful.

****this is not medical advice I only know it helped me.

  2 Timothy 2:7 "Consider what I say; and the Lord give thee understanding in all things." this included.

Posterboy by the Grace of God,

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How long have you been gluten free? There can be an adjustment period, sort of withdrawal, after going gluten-free. May we ask your relative age? All of the things you describe have been associated with Celiac disease but usually not all at the same time. Have you been tested for rheumatoid processes and fibromyalgia? 

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13 minutes ago, trents said:

How long have you been gluten free? There can be an adjustment period, sort of withdrawal, after going gluten-free. May we ask your relative age? All of the things you describe have been associated with Celiac disease but usually not all at the same time. Have you been tested for rheumatoid processes and fibromyalgia? 

I've been gluten free since December. I was diagnosed with Celiac's in January. I'm 24 and no I haven't yet. I planned on asking my doctor more about it my next visit. But thought maybe I could try to get some answers here first to make sure I'm not worrying for nothing. 

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2 hours ago, Platinum said:

I've been gluten free since December. I was diagnosed with Celiac's in January. I'm 24 and no I haven't yet. I planned on asking my doctor more about it my next visit. But thought maybe I could try to get some answers here first to make sure I'm not worrying for nothing. 

The whole cramps, fatigue, never feeling rested or being able to rest match with magnesium deficiency. Do you have daily bowel movements? Constipation, If yes then use Natural Vitality Calm start with small 1/4tsp dose and slowly up it to the full 2 tsp or you get loose stools then back it back down, dosing to tolerance, a scare and going by grams is useful. If you do not have constipation then use Doctors Best Magnesium the powder is a glycinate just take 1 scoop a day in the evenings you will find you relax and sleep much better and the aches will go away.
Both me and posterboy found our salvation from many issues in magnesium

You might also as mentioned want to get your vitamin D checked but other common issues are full B-vitamins, since they work together you need a complex, this can help with energy and fog. I use Liquid Health Stress & Energy and the Neurological Support from that company 1 tbsp each 3 times a day. Works wonders.

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Just a thought, after my diagnosis, I found that I had all of the symptoms you are having, along with my body simply being swollen all of the time. I went back for more testing and and allergist confirmed that I have allergies along with Celiacs. As soon as I cleared up my diet the symptoms went away.  This is what I did by the advice of my mother in law who is a nurse: I took a benedryl to see if things got a better for me. If it works for you it is more than likely you have some food allergies that need to be addressed.  As I started my gluten-free diet I found myself eating more dairy, corn, soy , oats than I have ever before, all of which effect me negatively, Milk being an actual allergy, the others are just very harsh on the gut.  

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2 hours ago, Lovebucket said:

Just a thought, after my diagnosis, I found that I had all of the symptoms you are having, along with my body simply being swollen all of the time. I went back for more testing and and allergist confirmed that I have allergies along with Celiacs. As soon as I cleared up my diet the symptoms went away.  This is what I did by the advice of my mother in law who is a nurse: I took a benedryl to see if things got a better for me. If it works for you it is more than likely you have some food allergies that need to be addressed.  As I started my gluten-free diet I found myself eating more dairy, corn, soy , oats than I have ever before, all of which effect me negatively, Milk being an actual allergy, the others are just very harsh on the gut.  

Watch the Benedryl.  It crosses the blood brain barrier.  Consider a second generation antihistamine instead. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3667286/

New studies show it may cause dementia which is more concerning to me because I am old! ?

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I would not worry.  Give the gluten free diet a chance to work.  Be sure to get follow-up testing and care.  

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/

While it is very possible to have more than one autoimmune issue, see if symptoms resolve on the diet.  It might be just celiac-related.   The diet has a very steep learning curve.  Most here take months or a year or so  to heal depending collateral damage.  

 

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Taking one Benedryl as a precursor is not a problem what so ever. I am well aware of this study and do not take it except for on occasion. I have a prescription for another medication should I accidentally eat something i'm allergic to.

Edited by Lovebucket

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On 2/20/2018 at 10:57 AM, cyclinglady said:

Watch the Benedryl.  It crosses the blood brain barrier.  Consider a second generation antihistamine instead. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3667286/

New studies show it may cause dementia which is more concerning to me because I am old! ?

I found this recently in my search for something in case I have a bad reaction to something again, free of most crap including corn syrup, dyes, gluten, soy, etc. Has some stuff I would rather avoid but sure as hell beats the reactions to allergens. Think it would be safe? http://www.texaclear.com/product/texaclear-allergy-relief/

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1 hour ago, Ennis_TX said:

 

I found this recently in my search for something in case I have a bad reaction to something again, free of most crap including corn syrup, dyes, gluten, soy, etc. Has some stuff I would rather avoid but sure as hell beats the reactions to allergens. Think it would be safe? http://www.texaclear.com/product/texaclear-allergy-relief/

I would suggest consulting with a pharmacist.  Pick a time when they are not so busy (e.g. Sunday afternoon at a hospital) and ask.  They have a huge resource catalog, plus they have years of education!  

 

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4 hours ago, Lovebucket said:

Taking one Benedryl as a precursor is not a problem what so ever. I am well aware of this study and do not take it except for on occasion. I have a prescription for another medication should I accidentally eat something i'm allergic to.

Good to know.  Sometimes, I tend to respond not just to the poster, but to others who might read the thread.  Sorry!  

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Hello,

I have no idea what it could be, but I had joint pain at some point between 6 mos to two years after diagnosis with celiac disease. I got a battery of allergy tests (via blood) and nothing came back positive. Eventually the pain went away.

Maybe get some inflammation markers tested? That would be my only thought.

Since I've done a lot of reading recently about sugar and inflammation (Gary Taubes, Dr Lustig, Dr Terry Wahls), I tend to think of chronic conditions like celiac disease as just one manifestation, and as Dr Wahls says, at bottom it's all the same thing, be it thyroid, celiac disease, SLE, etc...More information than you are bargaining for, I realize.

Good luck.

Plumbago

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12 hours ago, cyclinglady said:

I would suggest consulting with a pharmacist.  Pick a time when they are not so busy (e.g. Sunday afternoon at a hospital) and ask.  They have a huge resource catalog, plus they have years of education!  

 

I love pharmacists!

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