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Jenn2005

Got Glutened Have A Question

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My husband got glutened about a week & a half ago and he is still feeling terrible. Almost worse now than in the begining. I've been trying to keep track of everything he's been eating to see if its something else thats contaminated or causing the problem. We are very careful and I keep everything clean & no gluten at home. I know it can take a while to get over it but how many seem to get worse that far into it. He is still having bad D and the colors have even changed from one day almost blackish, one day pale, then one day normal colored (or as normal as it gets for celiac). This is his first time getting glutened since he started back on the gluten-free diet (after he did the gluten challenge) and he's been gluten-free for about 9 weeks. It gets very frustrating and I feel so bad for him - It seems like as soon as he starts to feel just a little bit better something happens. Last time he was starting to feel better the dr had him do a gluten challenge and he was just starting to get over that and now this. Hopefull he'll start feeling better soon I'm like the worried mother hen I guess. Any input would be appreciated.

Jennifer

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You should call his doctor and let him know that your husband had the blackish stool. Black stool can sometimes mean there is some bleeding. It can also be caused by other things, like food, iron supplements and even pepto-bismol, but I'd mention it to the doctor. Here's a link for more info - http://ibscrohns.about.com/cs/otherdisease...sophageal+ulcer

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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It's normal for his reactions to be worse now that he's been gluten-free for a while. It's unfortunate, but I guess all you can do is ride it out. The good news is the accidental episodes should get to be fewer and farther between.

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May I ask how he got glutened?


Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06

Diagnosed: Gluten Sensitive through enterolab 11/17/05

Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06

I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein

Peanuts (can handle very small amounts)

Any kind of additives or preservatives

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Nantzie - I believe your right about the pepto. I think that was the problem with the color of the stool. He had been using it a couple of times a day for about a week. I did talk to the dr and he agreed because he had just had a fecal occult test that was negative and 2 endoscopys and 2 colonoscopys in the last 4 months.

Dark Angel - Thanks for the reassurance. We are riding it out and today he actually seems to be doing a little better. He can at least say he's feeling better than he did yesterday so maybe he's turning the corner.

Danikali - He got glutened from Frito Lays Bakenettes. I called to verify that they were gluten and casein free (the hot one's are the ones I asked about). The lady I spoke with said all the Bakenettes (pork rinds)

were gluten-free & cf and that she would send me a coupon and a list of all the products that were gluten-free & cf. During this time he had 2 of the snack size bags of the hot kind & 1 bag of the bbq. He started feeling bad the afternoon of the first bag and we weren't sure what it was because he had been using some caulking and he seems to get sick every time he uses it so we were thinking it was that but when the list from Frito Lay came the bbq Bakenettes are not included and they are made in a facility that uses gluten and on the same lines as products made with gluten so there is a possiblity of cross contamination. He got sick and sicker after each bag so we narrowed it down to that and there will be no more Bakenettes at my house. Thanks for asking.

Has anyone else ever had a problem with the items listed on the Frito Lay list or the Bakenettes in particular?

Jennifer

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