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SahiraHyena

Antibodies still super high?

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2 hours ago, SahiraHyena said:

As I explained in a post before hand, getting a job is not just "going out and getting a job" for me, i have not been able to hold a job for the life of me due to my mental disabilities. 

EXACTLY I can handle 2-4 hours max around people....even with gluten free and supplements....between the ADHD, Aspergers, supposedly I been told Bipolar and OCD but I just get where I can not be around people, I have to be alone, doing my own thing, with music, and pedaling on a bike.....otherwise I start getting urges to break/run away from it all and go into a corner and do my own thing without any other input from the world....ONLY time this does not apply is when I have been at a convention in a costume.....oddly I just do not feel the pressure this way (I often cosplay when I head out to the city).....and yeah I did the whole psychologist, therapy and drugs for over 20 years stuff does not make me "Function".........
I started my own gluten free cottage home bakery and chef work where I can work in blocks that fit my function time, and allow to be comfortable in my safe place and only have to be around people at the markets........and I only really do those out of necessity for money again only ever stayed like 5 hours max.
Going to admit it has improved, prior to being gluten free...I was prone to violent outburst of confusion and rage being unable to rationalize the feelings and thoughts would loop with brain fog.....like snap and start punching a wall.

 


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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I've had mental problems since before I was ever diagnosed with celiac. I really doubt things will clear up in the mental department for me. I had struggled for so many years and struggled hard before I was ever diagnosed with celiac.

I can relate to you Ennis_TX, the world is not kind to people like us, who really do not want to be around other people. I'm the same way about conventions, that's why I love writing so much, roleplaying takes me away from society and lets me make my own world. 

I wish I could hold my own job, it would definitely make gluten free easier, but with my struggles I really doubt much will change. Especially where my city has one of the highest unemployment rates, there's no jobs here. 

 

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I wouldn't worry about eating rice as there is a very low risk of cross contamination. I have looked at my rice grains and they all look the same to me. It is theoretically possible that some gluten dust could have gotten on them at some point but I don't think that happens very often. 

Processed food like corn tortillas are more likely to be cross contaminated than whole foods like rice.  


Wheat sensitive. Probably Celiac disease but it could be an allergic response. I get very strong anxiety and then autistic symptoms whenever I eat wheat. It is probably a form of encephalitis (swelling in the brain due to wheat) but I am not sure.  Things that I avoid: All grain, alcohol, eggs, dairy, processed food.

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Have you looked into trying to get food stamps? I don't know if that would work or not but it is an idea.


Wheat sensitive. Probably Celiac disease but it could be an allergic response. I get very strong anxiety and then autistic symptoms whenever I eat wheat. It is probably a form of encephalitis (swelling in the brain due to wheat) but I am not sure.  Things that I avoid: All grain, alcohol, eggs, dairy, processed food.

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45 minutes ago, SahiraHyena said:

I've had mental problems since before I was ever diagnosed with celiac. I really doubt things will clear up in the mental department for me. I had struggled for so many years and struggled hard before I was ever diagnosed with celiac.

I can relate to you Ennis_TX, the world is not kind to people like us, who really do not want to be around other people. I'm the same way about conventions, that's why I love writing so much, roleplaying takes me away from society and lets me make my own world. 

I wish I could hold my own job, it would definitely make gluten free easier, but with my struggles I really doubt much will change. Especially where my city has one of the highest unemployment rates, there's no jobs here. 

 

Only thing I can suggest is perhaps doing small under the table jobs like making and selling stuff on etsy, ebay, etc. I have hand issues and had to give up many hobbies but get by on the bake sales, and chef jobs for what I can...and some other things at time.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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13 hours ago, SahiraHyena said:

I've had mental problems since before I was ever diagnosed with celiac. I really doubt things will clear up in the mental department for me. I had struggled for so many years and struggled hard before I was ever diagnosed with celiac.
 

 

That could have been the first manifestation of celiac.  I have seen Psychiatrists off and on since age 11 and for a long time thought my life was going to be a neverending rollercoaster of emotions.  I still have PTSD although that is not associated with the celiac. I am off the rollercoaster though and am on much more level mental footing and have been since a few months gluten free. I have DH and other neuro symptoms (severe ataxia) so I did have to be, and still am very strict.  When glutened I am first hit with a sledgehammer of depression that makes me feel worthless and I go to a very dark place. Thankfully now that I am gluten free that lifts in a day or two so I can cope with it unmedicated.  It and the violent D and skin blisters are great incentive to be careful.

Ennis has given you some good advice.  When I first had to find a way to support myself and was still homebound pre-diagnosis I used thrift stores and Ebay.  Then I took the big step and volunteered for a food bank and thrift store a couple hours a week and when I could increase those hours I went to work in a store. That didn't work with my residual damage so I found a job that did. I have been there 5 years now.  It can hard to figure out what to do after we have been ill for a long time. When you are feeling better take baby steps.  Don't get discouraged if the first few things you try don't work out. Eventually you will find something that is a good fit.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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On 3/14/2018 at 11:22 AM, SahiraHyena said:

I really don't clean my rice and have NO CLUE what to look for.... Gluten residue? What does that even look like?

You forget, I don't have the transportation to go to the store every week. I couldn't even live off of 47 a week if i tried. All I know is, I've tried it before, and I ran out. The money for the bus destroyed my budget, among other things. 

I seen them, but I hate minute rice, it's super gross. Uncle Ben's is no better. 

Sorry if I was confusing.

I was suggesting rinsing off dried rice and dried beans before cooking as an extra precautionary measure. Although rice and beans are typically quite safe, rinsing beforehand ensures that any potential gluten residues (which are not visible) get removed. There might be residue if say, the conveyor belt that was used to pack the rice was used previously to pack a gluten-containing grain, and didn't get washed between runs. If you rinse your rice (or beans), this should take care of any potential residue that might be there.

While you're rinsing, you can also look for any weird looking grains. If you see something that doesn't belong (ie. doesn't look like rice or beans), then I'd toss the bag. I buy a lot of rice and beans, and it's only happened once... and that bag had a gluten-free label on it!:huh: 

I'm giving you this info so that you might feel more comfortable buying rice that is not labelled gluten-free. If you visually inspect your rice and wash it, that's probably the safest food you're going to get, and certainly much better than what most processed gluten-free food manufacturers are doing for you when they make bread/cookies/whatever. 

 

 

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That is wonderful news SahiraHyena! Keep up the good work!


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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