Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up

Rate this topic

Recommended Posts

I have been doing a lot of research and trial/error on finding the right products and food. It’s been 1 year since my diagnosis and it hasn’t been easy but definitely found my way. 

Anyway...the main reason I’m making this post is because I need to find a way to make companies aware of making gluten free products. I see too many of them are using shared equipment and it’s frustating!!!!! 

Thats like....giving something that is peanut free to a child but made in a facility where peanuts are all over the place. Why would they emphasize gluten free when it is not. I really wanna push companies to providing a separate room or building to manufacture their products. If they have the money, why not spend it knowing consumers such as myself would purchase it especially if it is gluten free?! 

Any ideas? 

Share this post


Link to post
Share on other sites

Do not buy from them? Buy the products and have them tested by a lab, then if positive file lawsuit? File complaints.

Not really much we can do, I trust a few things from companies like Beanitos says same facility but tested negative and I have never known a celiac who get sick from them. I have used a collagen powder same thing where it says facility and shared equipment, tested it, negative, and never gotten sick.
On the other hand I have bought coconut flakes, shared equipment that said gluten free on the front from Thrive Market. I got sick from it....tested positive on a nima...and I just threw it out...it had the warning that it was made on shared equipment...which acts as a legal disclaimer for them so not much I could do.
I have even gotten certified gluten free hemp protein.....and 8 out of 10 canisters over the past year or so have been contaminated and made me sick and tested positive...even lab tested by a 3rd party. The companies I complained to just said it happens with the crop and their is nothing the could do about. One even after demanding lot and date codes just started stone walling me after I gave them the info......I think they found contamination and just went dark.

If only I had my dream of island nation gluten and grain free where everything is screened and tested before being allowed on lol.
Anyway that is just the way this disease is and living with it, find the brand your trust and stick to them....and yeah there are some stupid things like birdseye etc. frozen veggies now using the same equipment for the gluten sauced veggies as the plain and just hosing them down.....why I stopped buying from them. But you even have slight chances with shelf produce at the grocery stores if across from a open air bakery -_-.

Gluten Free Watch Dog often follows up with companies for false gluten free claims and is doing multiple petetions with the FDA for stricter practices and gluten free labeling. I am a proud subscriber to her cause and find her reports great, I have sent in a few things myself over the years.

 

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
1 1

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×