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Vonney

I'm sick, tired, and confused

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Hey, this is my first post. I got a celiac panel done a while ago, here are my results: 

Gliadin igA 12.0 standard range: 0.00-<7.0

Gliadin igG 0.8 standard range: 0.00-<7.0

TT igG AB <0.6 standard range: 0.00-<7.0

TT IGA AB 0.6 standard range: 0.00-<7.0

So everything is within range except the first one. I'm confused. My doctor said I likely don't have it due to everything else being fine, but why would I have such a high value? This was in December of 2017. Right after that since I was having lots of abdominal pain, I was ultrasound since my live was fine and everything was coming back fine. They found stones and said its my gall bladder. So I have that scheduled to remove... Well I started having worse symptoms after January of 2018.

Since July of 2017 I was having abdominal pain and really loose stools 5 times a day. Told I have IBS. Well from January 2018 - now I've had loss of appetite, migraines, low grade fever, abdominal pain, fluctuations between constipation and loose stools, fatigue even after getting lots of sleep, Nassau, and dizziness. I was anemic for years but as of early march I am now at 12.1 and the standard range is above 12.0. So while not super high, its there. 

I apologize for such a long message, but I'm so tired of this feeling. Tired of being told idk what's wrong. You probably just have IBS. I have an upper endoscopy and colonscopy scheduled for April 16. So while thats a little under a month, I am done waiting. They will biospy my stomach for h pylori, chrons, and celiac, but since my doctor said he doubt a I have celiac I'm scared the GI will fins nothing wrong with me and I'll be back at square one suffering while no one knows what's wrong with me. 

Today I told a friend I felt better then I've had in a while and she goes " do you think it was all in your head?"..... This is what I can't continue to face.

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Welcome to the board. You only need one test to be positive to have celiac. In fact you can be negative on all blood tests and still have celiac! Your doctor seems to be unaware of this and should have had you get an endo after they had that positive test. Do be sure to keep eating a regular gluten diet until after your endo. Also make sure they are taking the biopsies of the small intestine they need to take for celaic. They should take at least 6. Keep in mind that damage can be patchy and missed. After all celiac related testing is done get onto the diet strictly. Go with whole foods for a bit. Limit dairy and don't try gluten free oats until you are well healed.  The gluten free lifestyle can take some getting used to and we are here to help in any way we can. Be sure to read the Newbie 101 thread as it will have a lot of info to keep you safe.  Enjoy your favorite gluten foods over the next couple weeks. Have some puff pastry for me. It is the only thing I haven't found a gluten free replacement for but most other stuff like pizza, artisan breads, cakes and cookies etc have good replacements to try after you have healed a bit.

There is a light at the end of the tunnel but it can take a bit of time to heal. Be patient with your body and I hope your constant pain and D resolve quickly.

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I think Ravenwoodglass meant a GI and not an Endocrinologist! But her advice is spot on.  It is critical for you to keep consuming gluten until that endoscopy! 

Now your blood tests.  Yes, you have a positive!  It only takes one positive.  Why so many celiac tests?  Because they are not perfect.  If they just offered one type, they might miss some celiacs (researchers found this out at the expense of a few celiacs.). How do I know?  Like you, I only had or have ever had a positive on the Gliadin IgA (DGP IGA), yet my biopsies revealed patches of moderate to severe damage.  I also had anemia at the time of my diagnosis.  I also had my gallbladder removed, not for stones, but it was non-functioning and infected.  I would probably have been able to keep and heal my gallbladder if I had known I had celiac disease and treated my body by eliminating ating gluten.    But that is my non-medical theory!  

Keep eating gluten.  Talk to the GI about Celiac disease and how it can affect the gallbladder.  You might consider postponing that surgery to see if a gluten free diet will heal it too.  Celiac disease is systemic and goes beyond the small intestine.  

Research.  Learn all that you can about celiac disease.  It is NOT in your head!

 

 

 

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6 hours ago, ravenwoodglass said:

Welcome to the board. You only need one test to be positive to have celiac. In fact you can be negative on all blood tests and still have celiac! Your doctor seems to be unaware of this and should have had you get an endo after they had that positive test. Do be sure to keep eating a regular gluten diet until after your endo. Also make sure they are taking the biopsies of the small intestine they need to take for celaic. They should take at least 6. Keep in mind that damage can be patchy and missed. After all celiac related testing is done get onto the diet strictly. Go with whole foods for a bit. Limit dairy and don't try gluten free oats until you are well healed.  The gluten free lifestyle can take some getting used to and we are here to help in any way we can. Be sure to read the Newbie 101 thread as it will have a lot of info to keep you safe.  Enjoy your favorite gluten foods over the next couple weeks. Have some puff pastry for me. It is the only thing I haven't found a gluten free replacement for but most other stuff like pizza, artisan breads, cakes and cookies etc have good replacements to try after you have healed a bit.

There is a light at the end of the tunnel but it can take a bit of time to heal. Be patient with your body and I hope your constant pain and D resolve quickly.

 

1 hour ago, cyclinglady said:

I think Ravenwoodglass meant a GI and not an Endocrinologist! But her advice is spot on.  It is critical for you to keep consuming gluten until that endoscopy! 

Now your blood tests.  Yes, you have a positive!  It only takes one positive.  Why so many celiac tests?  Because they are not perfect.  If they just offered one type, they might miss some celiacs (researchers found this out at the expense of a few celiacs.). How do I know?  Like you, I only had or have ever had a positive on the Gliadin IgA (DGP IGA), yet my biopsies revealed patches of moderate to severe damage.  I also had anemia at the time of my diagnosis.  I also had my gallbladder removed, not for stones, but it was non-functioning and infected.  I would probably have been able to keep and heal my gallbladder if I had known I had celiac disease and treated my body by eliminating ating gluten.    But that is my non-medical theory!  

Keep eating gluten.  Talk to the GI about Celiac disease and how it can affect the gallbladder.  You might consider postponing that surgery to see if a gluten free diet will heal it too.  Celiac disease is systemic and goes beyond the small intestine.  

Research.  Learn all that you can about celiac disease.  It is NOT in your head!

 

 

 

This has been the best responses I have ever received so far. I appreciate this very much. I am 19, and in college currently. Which this has put a toll on my school work, and I'd really like this to be solved so I can improve my grades, especially next year as I'll be a junior. 

I was not aware that any positive is a positive, so I'm confused as to why my doctor disregarded the results. Anyway, if you want, I can come back to this thread and let you both know my results from my upper endoscopy and colonoscopy.

T-minus 20 days. 

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3 hours ago, cyclinglady said:

I think Ravenwoodglass meant a GI and not an Endocrinologist! But her advice is spot on.  It is critical for you to keep consuming gluten until that endoscopy!

 

 

 

I meant the doctor should have done an endoscopy not that she should be referred to an Endocrinologist. Sorry if that wasn't clear enough.

OP Yes do let us know how things go with the endoscopy. You can start the diet the day it is done you don't have to wait for the results since they have already done blood tests. You may find you have some relief before you even get the results.

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17 hours ago, Vonney said:

fatigue even after getting lots of sleep

Vonney,

This can be a sign of low Magnesium.  WE need magnesium to make energy.

Magnesium Citrate or Magnesium Glycinate are the best forms to take it in.

3/day works well (with each meal) for most people.

Iron deficient anemic people often have low energy levels as well.

see this link on Iron deficiency anemia.

https://www.mayoclinic.org/diseases-conditions/iron-deficiency-anemia/symptoms-causes/syc-20355034

here is a good thread on IDA.

I hope this is helpful.

Posteboy by the grace of God,

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2 hours ago, ravenwoodglass said:

I meant the doctor should have done an endoscopy not that she should be referred to an Endocrinologist. Sorry if that wasn't clear enough.

OP Yes do let us know how things go with the endoscopy. You can start the diet the day it is done you don't have to wait for the results since they have already done blood tests. You may find you have some relief before you even get the results.

I thought that was weird!  My bad.  Geeze Louise.  I should have read your posting better.  ?

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13 hours ago, ravenwoodglass said:

You only need one test to be positive to have celiac.

Vonney,

 I knew I was forgetting something.

Here is huffpost article confirming ravenwoodglasses' point.

https://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html

quoting dr. hyman.

he says in "In light of the new research on the dangers of gluten sensitivity without full blown celiac disease"

"Many doctors (often my words) consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant."

"We can no longer say that (He says). Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease."

and I wish more doctor's knew that. . . it sure would make getting a celiac diagnosis easier.

Again I hope this is helpful.

posterboy,

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On 3/27/2018 at 4:55 PM, Posterboy said:

Vonney,

This can be a sign of low Magnesium.  WE need magnesium to make energy.

Magnesium Citrate or Magnesium Glycinate are the best forms to take it in.

3/day works well (with each meal) for most people.

Iron deficient anemic people often have low energy levels as well.

see this link on Iron deficiency anemia.

https://www.mayoclinic.org/diseases-conditions/iron-deficiency-anemia/symptoms-causes/syc-20355034

here is a good thread on IDA.

I hope this is helpful.

Posteboy by the grace of God,

Are there any other signs I'm lacking magnesium?

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39 minutes ago, Vonney said:

Are there any other signs I'm lacking magnesium?

Vonney,

There are a lot!

We are said to waste away when we when we don't have enough magnesium.

the most exhaustive article I have read on it is this article by the britsh medical journal entitled Subclinical magnesium deficiency: a principal driver of cardiovascular disease and a public health crisis

http://openheart.bmj.com/content/5/1/e000668

probably the chronic fatigue is the one might most associate with it . . but in very severe forms it can cause horrible leg cramps.

I used to have nightly spasms that got better after taking Magnesium Citrate.

After a few years on Mangeisum Citrate . .. I recently began taking Magnesium Glycinate and a racing heart/ atrial fibrillation that had plagued me for years got better.

Most literature on it says to take Magensium Taurate for arrythmias but I am in love with magnesium Glycinate at the moment.

see this article entitled Complementary vascular-protective actions of magnesium and taurine: a rationale for magnesium taurate.

https://www.ncbi.nlm.nih.gov/pubmed/8692051

And I talked about  how Magnesium has been used to treat tinnitus in patients in this thread.

but it is kind of long and you might want to skip it and read it latter.

But here is the tinnitus talk link on the research that attributes ringing in the ears to a subclinical level of Magnesium because our electrolyte homeostatis (balance) gets' out of wack without enough Magnesim to keep our other electrlolytes in balance.

http://tinnituswise.com/remedies/tinnitus-magnesium-treatment-deficiency/

Dr. Carolyn Dean wrote the reference work on it 'The Magnesium Miracle" but you don't need to know any of that to benefit from taking Magnesium.

Just find a good bioavailable form and divide your doses by taking it with each meal.

Magnesium Citrate 3/day and/or Magnesium Glycinate (if you can afford it) is the non-flushing less harsh on the stomach form.. .. but as  I mentioned above Magnesium Citrate works well for energy, cramps, and fatigue unless you have Afib.

Magnesium usually when you begin it will cause vivid dreams in the first couple weeks.  It is a sign of good magnesium absorption and you have reached a restful dreaming state.

You might actually find yourself waking up rested and refreshed and probably before the alarm goes off for a change.

If you are sleeping 10 hours a day . . . expect only 8 hours to now be needed to make it through the day!

It is dramatic the effect in the quality of one's sleep it makes! because you now have the energy to make it through the day without taking multiple naps.

We can't make energy with out Magnesium.

As chlorophyll is to the plant (is the way I think of it) magnesium is to the animal.  And we all know the green color of plants comes from chlorophyll and it is needed by the plant to make energy from sunlight.

So too WE  need Magnesium to make energy in Humans/People.

Again I hope this is helpful.

2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the grace of God,

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@Vonney

Not all celiacs are deficient in vitamins and minerals.    Some celiacs struggle with other autoimmune disorders adding to their deficiencies.   I had iron deficiency anemia (low ferritin and hemoglobin) which resolved within three or four months on the gluten free diet and some daily iron supplementation.    My doctor checked me for other deficiencies and I had none.  Look for good food sources and talk to your doctor.  You may not need to supplement at all.  I do not.  

Supplements are processed.  Like all processed food, make sure they are gluten free.  There is no magic cure for celiac disease.  Just time and a healthy gluten free diet. 

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Thank you very much. I feel very hopeful for the future, and pray as bad as this may sound that I do just end up having celiac so I can feel better. I don' want to get this upper endoscopy and be told there  nothing wrong. I legitimatly think I'll go crazy. 

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Posted (edited)

Hi Vonney,

Your doctor may not be up on all the latest celiac information.  There's a reason most celiacs in the USA are not diagnosed.  They used to say 90% are un-diagnosed but I think it's down to 85% un-diagnosed now.  It is not a bad idea to do a search for a celiac support group or club in your area.  Local people with celiac can more likely tell you about a good local doctor to use.

My endoscopy was combined with a colonoscopy at the same time.  It was a simple thing for me,  count backwards a little bit and then wake up and it's all done.

You've got some good advice.  Keep eating gluten until all the testing is done.  Then regardless of the endoscopy results give the gluten-free diet a good 2 or 3 month trial.  The endoscopy can only reach the first 5 or so feet of the small intestine so you are not getting the whole picture with it.  So try the diet and see how your body reacts.  Total healing can take 18 months or more.  But you'll probably notice changes within a couple weeks.

Edited by GFinDC
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Off subject, but what is your major and how did you decide that major?  I have a junior in high school.  

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Vonney,

As cyclylinglady said we are all different.

Some on this board supplement others don't.

I was just trying to share what helped me with my fatigue, energy levels and cramps.

***** this in not medical advice but Magnesium is a recommended as an "appropriate nutrient supplementation in celiac diease".

see this link about a study on this topic.

https://www.ncbi.nlm.nih.gov/pubmed/24195595

here is link  to the National Institutes of Healthy fact page on Magnesium if you want to study this more.

https://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/

they do note celiac patients as being at more risk of being low in Magnesium.

quoting

Groups at Risk of Magnesium Inadequacy

"Magnesium inadequacy can occur when intakes fall below the RDA but are above the amount required to prevent overt deficiency. The following groups are more likely than others to be at risk of magnesium inadequacy because they typically consume insufficient amounts or they have medical conditions (or take medications) that reduce magnesium absorption from the gut or increase losses from the body.

People with gastrointestinal diseases

The chronic diarrhea and fat malabsorption resulting from Crohn’s disease, gluten-sensitive enteropathy (celiac disease), and regional enteritis can lead to magnesium depletion over time [2]."

As to other signs of a Magnesium deficiency here is some the NIH list for a Magnesium deficiency.

quoting again

"Early signs of magnesium deficiency include loss of appetite, nausea, vomiting, fatigue, and weakness. As magnesium deficiency worsens, numbness, tingling, muscle contractions and cramps, seizures, personality changes, abnormal heart rhythms, and coronary spasms can occur [1,2]. Severe magnesium deficiency can result in hypocalcemia or hypokalemia (low serum calcium or potassium levels, respectively) because mineral homeostasis is disrupted [2]."

so in theory magnesium supplementation as Magnesium Citrate or Magnesium Glycinate should help your fatigue symptoms if it is not related to low iron levels.

I took it for my chronic fatigue and muscle cramps which got better with/on supplementation.

taking a b-complex might help too if you are low in b-12.

see this article on celiac.com about how B-Vitamin supplementation can help celiac's.

As always this is not medical advice only my personal experience with taking Magnesium.

But I do  know Ennis_Tx on this board often talks about  how Magnesium helps him.

This will  not treat your celiac disease as cyclyinglady noted but it can help with the associated vitamins and minerals you become low and why supplementation if your fatigue is related to being low in Magnesium and  how it helps some celiac's.

I will caution you to not get  a Magnesium Oxide because it is not well absorbed.

I was only trying to share the best way to take magnesium (with each meal) and what forms are best available to the body. . . Citrate and Glycinate.

watch this house md episode on celiac and how secondary deficiency can develop in patients who have villious atrophy.

the part about impaired absorption begins about the 34m:30s mark.

I hope you feel better and the magnesium helps you with your fatigue and energy levels the way it did me/mine.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

**** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

Posterboy by the grace of God,

 

 

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On 3/29/2018 at 9:05 AM, cyclinglady said:

Off subject, but what is your major and how did you decide that major?  I have a junior in high school.  

That's totally fine. I enjoy speaking to all of you. I am majoring in Biology, emphasis on biomedical. So pre-med. I decides that major before even attending because I want to be an OB/GYN but I didn' take a whole lot of major classes until this school year tho. My freshmen year I kept it open to most of my generals but added classes I was also interested in so art or sociology to see if I wanted to pick up a minor or double major. I did take spanish for the first two semesters as well. 

What is your junior thinking? 

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On 3/27/2018 at 5:37 AM, ravenwoodglass said:

Welcome to the board. You only need one test to be positive to have celiac. In fact you can be negative on all blood tests and still have celiac! Your doctor seems to be unaware of this and should have had you get an endo after they had that positive test. Do be sure to keep eating a regular gluten diet until after your endo. Also make sure they are taking the biopsies of the small intestine they need to take for celaic. They should take at least 6. Keep in mind that damage can be patchy and missed. After all celiac related testing is done get onto the diet strictly. Go with whole foods for a bit. Limit dairy and don't try gluten free oats until you are well healed.  The gluten free lifestyle can take some getting used to and we are here to help in any way we can. Be sure to read the Newbie 101 thread as it will have a lot of info to keep you safe.  Enjoy your favorite gluten foods over the next couple weeks. Have some puff pastry for me. It is the only thing I haven't found a gluten free replacement for but most other stuff like pizza, artisan breads, cakes and cookies etc have good replacements to try after you have healed a bit.

There is a light at the end of the tunnel but it can take a bit of time to heal. Be patient with your body and I hope your constant pain and D resolve quickly.

Hey, is it possible to have moments where you feel great? Like usually I feel extremely terrible but this whole week if been good. No migraines, not dizzy, not fatigued. Like almost as if my symptoms have vanished 

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6 hours ago, Vonney said:

Hey, is it possible to have moments where you feel great? Like usually I feel extremely terrible but this whole week if been good. No migraines, not dizzy, not fatigued. Like almost as if my symptoms have vanished 

Yes, at least in my case. For many years my symptoms would come and go before they became a daily and nightly misery.

Just a quick off topic on your junior. Many go into college without a clear idea of what they want their life's work to be. Even those who are convinced they want to follow one route will often change paths once they get into college.  Our family saw that in not just my kids but also in myself. One wanted to work in womens health and ended up doing cancer research and the other went from car mechanic to engineering. Tell your young adult not to stress too much about it and don't let yourself get stressed either. They will find the right path when the time comes.

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Ok everyone. I got my lab results back from my upper endoscopy and colonoscopy and they said its gastritis. GASTRITIS? if all of this is due to needed tums, I will be mad. I don't Know what to do. I have a follow up appointment on may 10th. So, ill update when I come back.

 

Anyone get this diagnosis? I guess if it says no celiac then I for sure dont have it?

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Did you get a report from the GI based on his visual or did you get the pathologist’s report?  

There are many types of gastritis.  For example, acute gastritis might be due to food poisoning or a virus (think cruise ships).  Chronic gastritis could be attributed to the H. Pylori bacteria or be autoimmune.  You need to find out what type of gastritis you have based on the pathologist’s report.  

I received a diagnosis of Chronic Autoimmune Gastritis earlier this year.  My small intestine has healed from celiac disease, so my gastritis is a separate issue.  Let’s hope you have a treatable version.  

 

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1 hour ago, Vonney said:

I got my lab results back from my upper endoscopy and colonoscopy and they said its gastritis. GASTRITIS?

Vonney,

If it is Gastritis try taking some BetaineHCL (powdered stomach acid) if it improves digestion then you are low in it and because the test for low stomach acid is invasive in nature (tube down nose) most people don't feel unwell enough to do it.

But there is a unscientific test for it called the baking soda test that you can try at home.

https://scdlifestyle.com/2012/03/3-tests-for-low-stomach-acid/

a self test is to take betaineHCL (3 or 4 capsules) with 8 ounces of water for each capsule to see if you get a  warm feeling in your stomach.

treating my low stomach acid greatly improved my digestion.

here my story with having low stomach acid and my celiac diagnosis.

I hope it helps. . .if you are not now taking a PPIs then taking BetaineHCL works for many people to treat their gastritis.

here is a research case study article about it.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4991651/

see also their figure 1 for timeline.

referenced here for easy access to the timeline (without having to read the whole/full paper).

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4991651/figure/f1-49-53/?report=objectonly

after 6 months of treatment for low stomach acid using betainHCL and other nutritional interventions their gastritis got better.

 I hope this is helpful.

Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the grace of God,

 

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5 minutes ago, cyclinglady said:

Did you get a report from the GI based on his visual or did you get the pathologist’s report?  

There are many types of gastritis.  For example, acute gastritis might be due to food poisoning or a virus (think cruise ships).  Chronic gastritis could be attributed to the H. Pylori bacteria or be autoimmune.  You need to find out what type of gastritis you have based on the pathologist’s report.  

I received a diagnosis of Chronic Autoimmune Gastritis earlier this year.  My small intestine has healed from celiac disease, so my gastritis is a separate issue.  Let’s hope you have a treatable version.  

 

Vonney,

To follow up on cyclylinglady's point.  It is a good one.

I didn't want to overload you with too much information in one posts (which I can sometimes do because I am trying to help) and didn't see her response till I posted mine.

Here is a study about the sub-types of gastritis in/with Celiac disease (and maybe NCGS which might be what you have) if they are saying gastritis is your problem.

entitled "Subtypes of chronic gastritis in patients with celiac disease before and after gluten-free diet"

http://journals.sagepub.com/doi/full/10.1177/2050640616684698

I hope this is helpful.  Read the abstract summary at the top of the study if you don't have time to read the full paper.

Also I wanted to share this article/link on Nerve Pain associated with a celiac diagnosis possible even in NCGS patients because I wanted to quote something they said that makes sense to me.  I hope it is helpful.

quoting

“As research into gluten intolerance has progressed, more and more researchers have come to regard it as “a spectrum of disease as opposed to one easily defined disease," said neurologist Sami Saba, who was not involved in the new study. While just 1 percent of Americans have celiac disease, many more could conceivably have gluten sensitivity, which is “marked by immune-system antibodies to gluten in blood tests, or symptoms of gluten sensitivity even in the absence of antibodies,” Saba said.

Which makes sense to me.  It is a "spectrum of disease" and that can be hard to easily define sometimes.

We are all different.  Try the gastritis angle if that is the direction your doctor thinks you should take.

Taking some BetaineHCL really can help if your stomach acid is low and being misdiagnosed as gastritis. . . especially if you are not now taking PPIs.

Again I hope this is helpful and this is ***** definitely not medical advice just things that helped me in my journey.

Good luck on your continued journey.

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.”

Posterboy by the grace of God,

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On 3/29/2018 at 9:05 AM, cyclinglady said:

Off subject, but what is your major and how did you decide that major?  I have a junior in high school.  

That's totally fine. I enjoy speaking to all of you. I am majoring in Biology, emphasis on biomedical. So pre-med. I decides that major before even attending because I want to be an OB/GYN but I didn' take a whole lot of major classes until this school year tho. My freshmen year I kept it open to most of my generals but added classes I was also interested in so art or sociology to see if I wanted to pick up a minor or double major. I did take spanish for the first two semesters as well. 

What is your junior thinking? 

1 hour ago, Posterboy said:

Vonney,

To follow up on cyclylinglady's point.  It is a good one.

I didn't want to overload you with too much information in one posts (which I can sometimes do because I am trying to help) and didn't see her response till I posted mine.

Here is a study about the sub-types of gastritis in/with Celiac disease (and maybe NCGS which might be what you have) if they are saying gastritis is your problem.

entitled "Subtypes of chronic gastritis in patients with celiac disease before and after gluten-free diet"

http://journals.sagepub.com/doi/full/10.1177/2050640616684698

I hope this is helpful.  Read the abstract summary at the top of the study if you don't have time to read the full paper.

Also I wanted to share this article/link on Nerve Pain associated with a celiac diagnosis possible even in NCGS patients because I wanted to quote something they said that makes sense to me.  I hope it is helpful.

quoting

“As research into gluten intolerance has progressed, more and more researchers have come to regard it as “a spectrum of disease as opposed to one easily defined disease," said neurologist Sami Saba, who was not involved in the new study. While just 1 percent of Americans have celiac disease, many more could conceivably have gluten sensitivity, which is “marked by immune-system antibodies to gluten in blood tests, or symptoms of gluten sensitivity even in the absence of antibodies,” Saba said.

Which makes sense to me.  It is a "spectrum of disease" and that can be hard to easily define sometimes.

We are all different.  Try the gastritis angle if that is the direction your doctor thinks you should take.

Taking some BetaineHCL really can help if your stomach acid is low and being misdiagnosed as gastritis. . . especially if you are not now taking PPIs.

Again I hope this is helpful and this is ***** definitely not medical advice just things that helped me in my journey.

Good luck on your continued journey.

2 Corinthians (KJV) 1:3,4  3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.”

Posterboy by the grace of God,

Yes, so I apologize, I didn't specify. 

 

Said normal small bowel, and negative for H. Pylori. Said was viewed by pathologist. And said my tissue showed norma, so no cancer or celiac sprue. That my large colon also looks well. 

 

Idk tho. Gastritis? Like all of this pain for a stomach acid problem?

 

I still have to get my gallbladder removed as well. So maybe that will help. Idk. 

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If you have stones in your gallbladder, they can prevent the bile from being released into your small intestine making it really hard to digest your food, especially fatty foods.  If celiac disease and Crohn’s has been ruled out, be thankful.  Perhaps,  look towards getting that gallbladder removed.  I wish I could have kept my gallbladder (0% non-functioning no stones), but I  would have died eventually as it was infected.   Non-functioning (not releasing bile) gallbladder’s run in my family.  We call it a curse.  Anyone with a gut issue and older family members wisely blame the gallbladder!  

Do not discount the gastritis.  Was it considered chronic?  If H.Plyori is not the culprit, find out what is causing it.  You will then be able to figure out (with your doctor) how to treat it properly.  

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Vonney,

You do have many of the symptom's of a gall bladder problem.

https://www.emedicinehealth.com/gallbladder_pain/article_em.htm#gallbladder_pain_symptoms

You can research these tips/homeremdies yourselves but their are many home remedies to move a gall stone.

Lemon Juice and some combination of juicing (other juices like Apple etc) is common.

https://www.livestrong.com/article/536262-does-lemon-juice-help-pass-gallstones/

but it helped me to understand digestion is a  north south process.

Having low stomach acid can stress your gall bladder because the pH is not strong enough to activate your food enzymes helping your digest your fats properly.

Body wisdom has a good over view of this process we call digestion.

https://bodywisdomnutrition.com/digestion-a-north-to-south-process/

quoting

"Then the pancreas secretes enzymes to further break things down, and the gall bladder secretes bile to emulsify the fats so they will be the proper size to be absorbed. At this point the food is almost totally digested and is ready to be absorbed."

Be prepared to have issues with fat's and food enzymes if you do have your gall bladder removed.

But if you have gastritis (already) it makes sense to me that the gall bladder (downstream of the stomach) would also be stressed (too much maybe).

Here is a nice thread on how low stomach acid (Not high stomach acid) as you soo often hear can be the cause of heartburn.  though that can happen too.

But taking BetaineHCL will tell you which it is .. .. truly really low stomach acid or high stomach acid as you often here today (in my opinion).

This thread has really good links provided by Gemini that talks about how low stomach acid is often confused for high stomach acid today.

Not all heartburn is equal if food triggers it then the your stomach acid is already too low to start with has been my experience.

This (low stomach acid) is a vicious cycle. STRONG stomach acid makes it a virtuous circle/cycle.

Here  also is a nice thread about food/digestive enzymes that Ennis_tx started.

I hope this is helpful.

remember****this is not medical advice just some practical things/tips that many members of this forum/board have used/use to help their digestion.

Some of use more than other but they are all good suggestions.

Not one solution works for everybody.

As always 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the grace of God,

 

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    Jefferson Adams
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    Farley's Kiddie Mix — Smarties, SweetTarts, Now and Later, Jaw Breakers, Super Bubble and Lolli—pops Ferrara Pan Caramels Ferrara Pan Lemonhead & Friends candy mix—including Applehead, Cherryhead, Grapehead, Chewy Lemonhead & Friends, Chewy Atomic Fireball, and Red Hots FLIX Spooky Lip Pops Lollipops, Angry Birds Lollipops, Gummy Boo Bands, Monsters, Inc. Character Candies, Lollipops and Marshmallow Eyeballs Florida's Natural Healthy Treats Nuggets, Sour String, Fruit Stiks Fright Fingers Popcorn Kit Frankford's Bugs Gummy Candy Frankford's Gummy Body Parts Frankford's Marshmallow Pals Frooties Fun Dip Fun Dip Sour G
    Game Night boxes of candy game pieces (includes Operation, Sorry!, Monopoly, Life, and Clue) Gimbal's Fine Candies Jelly Beans, Sour Lovers, Cherry Lovers, Cinnamon Lovers, Licorice Scotties Goldenberg's peanut chews Go Max Go Buccaneer Candy Bar Go Max Go Cleo's Candy Bar Go Max Go Mahalo Candy Bar Go Max Go Snap! Candy Bar Go Max Go Thumbs Up Candy Bar Go Max Go Twilight Candy Bar Goobers Go Picnic Sea Salt Caramel Lollipops Go Picnic Orbites Dark Chocolate and Tangerine Grave Gummies (Yummy Gummies) Greenbriar Skull and Bones Fruit Hard Candy, Spooky Lollipop Rings, Grave Gummies Gummy Brush Paint Shop Gummy Pirate Choppers H
    Harrison's Original Fruit Slices Harrison's Original Fruit Smiles Heath milk chocolate English toffee bar and snack size — contains almonds Hershey's Air Delight Hershey’s - Baking Bars Hershey’s Semi Sweet Baking Bar  Hershey’s Unsweetened Baking Bar Hershey’s and Reese's - Baking Chips Hershey’s Butterscotch Chips Hershey’s Cinnamon Baking Chips Mini Kisses Milk Chocolates Hershey’s Milk Chocolate Chips Hershey’s Semi-Sweet Chocolate Mini Chips Hershey’s Mint Chocolate Chips Hershey’s Premier White Chips Hershey’s Semi-Sweet Chocolate Baking Chips Hershey’s Special Dark Mildly Sweet Dark Chocolate Chips Hershey’s Sugar Free Semi-Sweet Baking Chips Reese’s Peanut Butter Baking Chips Hershey’s - Cocoa Hershey’s Cocoa Hershey’s Special Dark Cocoa Hershey’s Kisses Hershey’s Hugs Candy Hershey’s Kisses Milk Chocolate Filled with Caramel Hershey’s Kisses Milk Chocolate Filled with Cherry Cordial Crème Hershey’s Kisses Filled with Vanilla Crème Hershey’s Kisses Dark Chocolate Filled with Mint Truffle Hershey’s Kisses Pumpkin Spice Flavored Candies Hershey’s Kisses Carrot Cake Flavores Candies Hershey’s Kisses Meltaway Milk Chocolates Hershey’s Kisses Milk Chocolate Hershey’s Kisses Special Dark Mildly Sweet Chocolate Hershey’s Kisses Deluxe Chocolates Hershey’s Nuggets Hershey’s Nuggets Milk Chocolates Hershey’s Nuggets Milk Chocolate with Almonds Hershey’s Nuggets Special Dark Chocolate with Almonds Hershey’s Nuggets Extra Creamy Milk Chocolate with Toffee and Almonds Hershey’s Milk Chocolate Bar (1.55oz only) Hershey’s Milk Chocolate Bar with Almonds (1.45oz only) Hershey’s Milk Duds – All Hershey’s Spreads – All Except Hershey’s Chocolate Spread with Snacksters Graham Dippers Hershey’s and Reese's Toppings Hot Tamales Hot Tamales Spray Hubba Bubba Gum Humphrey Popcorn Balls I
    Ice Cream Dipper (Blue Raspberry, Strawberry) J
    Jelly Belly beans—gluten–free, dairy–free Jolly Rancher hard candy and Doubles Candy Jolly Rancher Hard Candy Stix, Lollipops and Fruit Chews Jujy’s Junior Caramels Junior Mints Just Born Jelly Beans Just Born marshmallow treats Justin's Nut Butters dark chocolate peanut butter cups Justin's Nut Butters milk chocolate peanut butter cups Justin's Nut Butters white chocolate peanut butter cups Justin's Nut Butters mini dark chocolate peanut butter cups Justin's Nut Butters mini milk chocolate peanut butter cups K
    KatySweet Chocolate Dipped Strawberries KatySweet Pecan Fudge KatySweet Plain Fudge KatySweet Raspberry Lemon Almond Bark KatySweet Walnut Fudge Kellogg's Spongebob Squarepants fruit flavored snacks Kenny's Green Apple Rings Kenny's Gummi Bears Kenny's Peach Rings Kenny's Sour Gummi Bears Kenny's Sour Gummi Worms Kenny's Sour Neon Gummi Worms Kenny's Watermelon Rings Kinder Surprise Eggs Kraft Caramels Kraft Jet–Puffed Boo Mallows and Ghost Mallows Kraft Swedish Fish Kraft Sour Patch Kids and Sour Patch Extreme L
    Laffy Taffy Plain, Stretchy & Tangy and Rope Lemonheads Lemonheads & Friends Conversation Hearts Tropical Chewy Lemonhead Chewy Lemonhead & Friends Berry Chewy Lemonhead Lifesavers LifeSavers Gummies including Big Ring Gummies, Sweet 'n' Sour, and Scary Assortment Lily's Sweets 40% Original Creamy Milk Chocolate Bar Lily's Sweets 40% Salted Almond Creamy Milk Chocolate Bar Lily's Sweets 55% Almond Dark Chocolate Bar Lily's Sweets 55% Coconut Chocolate Bar Lily's Sweets 55% Crispy Rice Dark Chocolate Bar Lily's Sweets 55% Dark Chocolate Bar with Cinnamon Lily's Sweets 55% Original Dark Chocolate Bar Lily's Sweets 70% Original Dark Chocolate Bar Lily's Sweets 70% Blood Orange Chocolate Bar Lily's Sweets 70% Candy Cane Chocolate Bar Lily's Sweets 70% Chipotle Chocolate Bar Lily's Sweets 70% Sea Salt Chocolate Bar Lily's Sweets Creamy Milk and Hazelnut Chocolate Bar Lily's Sweets Milk and Gingerbread Chocolate Bar Lily's Sweets Original Double Chocolate Crunch Bar Lily's Sweets Sour Cherry Double Chocolate Crunch Bar Lollipop Paint Shop Lovely Bananas Foster Lovely Black Licorice Lovely Caramel Apple Lovely Cashmels Lovely Chocolate Peppermint Lovely Chocolate Cherry Lovely Chewy Original Caramels Lovely Chocolate Swirl Caramels Lovely Fudgee Roll Lovely Fudgee Roll Raspberry Lovely Fruit Chews Lovely Halloween Cherry Licorice Lovely Halloween Juicy Chew Lovely Hula Chew Lovely Juicy Chew Original Lovely Juicy Chew Tropical Lovely Pumpkin Spice Lovely Salted Caramel Lovely Super fruit Chews M
    M&M's—original, peanut, peanut butter Manischewitz Fruit Slices Mars M&M's—except pretzel M&M's Mars Dove chocolate products (all flavors EXCEPT for milk chocolate cinnamon graham/cookies and cream, and some holiday varieties, such as milk chocolate truffles) Mars Munch Nut bar Mars Snickers, Snickers Dark bars, fun size and mini's—may contain almonds Mary Janes Mallo Cup Marvel Heroes Candy Sticks (Hulk, Spiderman, Wolverine) Mega Warheads Melster Chocolate Covered Marshmallow Melster Peanut Butter Kisses Melster Compound-Coated Marshmallow  Melster Chocolate-Covered Creme Drops  Melster Compound Coated Creme Drops  Melster Salt Water Taffy  Melster Peanut Butter Kisses   Melster Circus Peanuts  Melster Sanded Marshmallow   Melster Coconut Toasties  Milk Duds Milky Way Midnight Bar (not the original Milky Way Bar)
    Milky Way Caramel Bar Mike and Ike Mike and Ike Spray Mini Mentos Mini Sour Dudes Straws Monstaz Pops (jack–o–lantern lollipops) Monster Hunt plastic monster eggs filled with candy bones, skulls and pumpkins (made for Target) Mounds Bars – All Mounds dark chocolate fun size bars  N
    Necco's Sky Bar 4 in 1 chocolate bar Necco Wafers Necco Mary Janes Necco Mary Jane Peanut Butter Kisses—does contain peanuts Necco Sweethearts Conversation Hearts (available for Valentine's Day only) Necco Canada Mint & Wintergreen Lozenges Necco Haviland Thin Mints and Candy Stix Necco Clark Bars Necco Skybars Necco Haviland Peppermint & Wintergreen Patties Necco Candy Eggs Necco Talking Pumpkins (available at Halloween only) Necco Squirrel Nut Caramels and Squirrel Nut Zippers Necco Banana Split and Mint Julep Chews Necco Ultramints Nestle Milk Chocolate fun size bars Nestle Baby Ruth Nestle Bit–O–Honey Nestle Butterfinger (NOT Butterfinger Crisp or Butterfinger Stixx) Nestle Goobers—does contain peanuts Nestle Nips (both regular and sugar–free) Nestle Oh Henry! Nestle Raisinets—made on equipment that processes peanuts Nestle Sno–Caps Nestle Toll House morsels and chunks (only if labeled gluten-free) Nestle Wonka Pixy Stix Nestle Wonka Laffy Taffy Nestle Wonka Lik–M–Aid Fun Dip Nestle Wonka Spree Nik—L—Nip wax bottles with juice Now and Later O
    Oh Henry! Operation Gummy Candy P
    Palmer Peanut Butter Cups—does contain peanuts Payday Candy – All Peanut M&M's Pearson's Bun candy—maple and roasted peanuts Pearson's Mint Patties, Pearson's Nut Goodies Pearson's Salted Nut Rolls Peeps Jack–O–Lanterns, Marshmallow Pumpkins, Marshmallow Ghosts, Marshmallow Tombstones, Chocolate Mousse Cats, Milk Chocolate Covered Pumpkins, Dark Chocolate Covered Pumpkins, and Milk Chocolate Dipped Orange Chicks—"Gluten Free" Pez candy—All PEZ products are "Gluten Free" Pop Rocks Popcorn Expressions Kettle Corn Snack Bags Pixie Stix Pure Fun Halloween Pure Pops R
    Rain Blo Bubble Gum Eyes of Terror Raisinets Razzles candy gum Red Bird Assorted Puffs Red Bird Dark Chocolate Peppermint Mini Red Bird Cinnamon Puffs Red Bird Cinnamon Sticks Red Bird Citrus Puffs Red Bird Cream Penny Sticks Red Bird Lemon minis Red Bird Lemon Sticks Red Bird Peppermint Puffs Red Bird Peppermint Sticks Red Hots Reese's Fast Break candy bars and snack size Reese’s Nutrageous Bar Reese's Peanut Butter Cups snack size and miniatures—Except Reese's Peanut Butter Cup Unwrapped Minis and Seasonal Shaped Items Reese's Pieces Reese’s Peanut Butter Cups – All Except Reese’s Peanut Butter Cup Unwrapped Minis and Seasonal Shaped Items Reese’s Pieces Candy - All Except Reese’s Pieces Eggs Reese’s Spreads – All Except Reese’s Spreads with Snacksters Graham Dippers Reese's Select Peanut Butter Cremes Reese's Select Clusters Reese's Whipps Riviera Spooky Candy Rings Rolo Caramels in Milk Chocolate Candies – All Except Rolo Minis Rolo chocolate covered caramels—Except ROLO Minis Russell Stover Salt Water Taffy Russell Stover Candy Corn Taffy Russell Stover Caramel Apple Taffy S
    Scharffen Berger Products – All Except Scharffen Berger Cocoa Powder Sidewalk Chalk Sixlets Skeleton Pops (lollipops) Skittles includes Original, Sour, Wild Berry, Fizzl'd Fruits, and Crazy Core, including fun—size Smarties—(the small pastel–colored candies sold in rolls and made by Ce De). Also Candy Money, Candy Necklace, Easter Smarties, Giant Smarties, Giant Smarties Pops, Love Hearts, Mega Smarties, Smarties in a Pouch, Tropical Smarties, Smarties Double Lollies, Smarties Mega Lollies, Smarties Parties, Smarties Pops, and X—TREME Sour Smarties. Manufacturer states: These products contains NO: gluten, milk, egg, fish, crustacean shellfish, tree nuts, wheat, peanuts, or soy. (US only, NOT gluten-free in Canada). Skor Toffee Bars - All Snickers Bars (all flavors) Snickers Fudge bar Sno—Caps Sno—Cone Soda Pop So Delicious Dairy Free Coconut Milk Candy Corn So Delicious Dairy Free Coconut Milk Peppermint Star Sour Patch Spooky Candy Rings (eyeballs, Frankenstein heads and other shapes on rings) Starburst Fruit Chews and fun—size Starburst Gummibursts and Sour Gummibursts Stonyfield Organic Mixed Berry Fruit Snacks Stonyfield Organic Strawberry Fruit Snacks Sugar Babies Sugar Daddy Caramel Pops Sugar Mama Caramels Super Bubble bubble gum Surf Sweets Gummy Worms Surf Sweets Gummy Swirls Surf Sweets Gummy Bears Surf SweetsFruity Bears Surf Sweets Jelly Beans Surf Sweets Sour Worms Surf Sweets Sour Berry Bears Swedish Fish Sweet's All American Mint Taffy Sweet's Apple Fruit Sours Sweet's Banana Taffy Sweet's Black Licorice Taffy Sweet's Blue Raspberry Taffy Sweet's Bubble Gum Taffy Sweet's Buttered Popcorn Taffy Sweet's Candy Cane Taffy Sweet's Candy Corn Sweet's Candy Corn Taffy Sweet's Caramel Apple Taffy Sweet's Caramel Taffy Sweet's Cherry Cola Taffy Sweet's Cherry Fruit Sours Sweet's Cherry Hearts Sweet's Cherry Taffy Sweet's Chocolate Bridge Mix Sweet's Chocolate Cinnamon Bears Sweet's Chocolate Hazelnut taffy Sweet's Chocolate Peanut Clusters Sweet's Chocolate Peanuts Sweet's Chocolate Raisins Sweet's Chocolate Taffy Sweet's Chocolate Wonder Mints Sweet's Cinnamon Bears Sweet's Cinnamon Bunnies Sweet's Cinnamon Hearts Sweet's Cinnamon Lips Sweet's Cinnamon Santa's Sweet's Cinnamon Squares Sweet's Cinnamon Taffy Sweet's Cookie Dough Taffy Sweet's Cotton Candy Taffy Sweet's Egg Nog Taffy Sweet's Fish Sweet's Fruit Slices Sweet's Fruit Sours Sweet's Grape Fruit Sours Sweet's Guava Taffy Sweet's Gum Drops Sweet's Holiday Trees Sweet's Honey Taffy Sweet's Hot Shots Sweet's Huckleberry Taffy Sweet's Jelly Beans Sweet's Jelly Beans Sweet's Key Lime Taffy Sweet's Key lime Taffy Sweet's Lemon Fruit Sours Sweet's Marshmallow Bears Sweet's Natural Fish Sweet's Natural Lemonade rings Sweet's Natural Nummy Bears Sweet's Natural Sour Worms Sweet's Neapolitan Taffy Sweet's Orange Dark chocolate Jewels Sweet's Orange Milk chocolate Jewels Sweet's Orange Slices Sweet's Orange Slices Sweet's Orange Sticks Sweet's Orange/Vanilla Taffy Sweet's Peach Taffy Sweet's Peanut Clusters (available in both milk and dark chocolate) Sweet's Peppermint Taffy Sweet's Pink Grapefruit Sours Sweet's Raspberry Dark Chocolate Jewels Sweet's Raspberry Milk Chocolate Jewels Sweet's Raspberry Sticks Sweet's Raspberry Taffy Sweet's Red and Green fruit Sours Sweet's Red Licorice Taffy Sweet's Root Beer Taffy Sweet's Rum Taffy Sweet's S'more's Taffy Sweet's Scandinavian Swimmers Sweet's Sour Bunnies Sweet's Sour Stars Sweet's Sour Stars Sweet's Strawberry and Banana Taffy Sweet's Strawberry and Crème Taffy Sweet's Strawberry Taffy Sweet's Sugar free Cinnamon Bear cubbies Sweet's Sweet's Candy Pebbles Sweet's Vanilla Taffy Sweet's Watermelon Taffy Sweet's Wild berry Taffy Sweet's Wonder mints Sweethearts conversation hearts Forbidden Fruits (candy packaging of The Twilight Saga, New Moon the movie) Sweet's Candy Corn Taffy T
    Tasty Brand Fruit Gummies- Citrus Splash Tasty Brand Fruit Gummies- Smoothie Tasty Brand Fruit Gummies- Super fruit Tasty Brand Organic Fruit Snacks- Citrus Splash Tasty Brand Organic Fruit Snacks- Mixed Fruit Tasty Brand Organic Fruit Snacks- Scary Berry Tasty Brand Organic Fruit Snacks- Smoothie Tasty Brand Organic Fruit Snacks- Spooky Tasty Brand Organic Fruit Snacks- Super fruit Tasty Brand Organic Fruit Snacks- Wild Berry Tic Tacs Tootsie Caramel Apple Pops Tootsie Pops—original and mini Tootsie Fruit Rolls Tootsie Peppermint Pops Tootsie Rolls Tropical Dots Tootsie Rolls Midgies and snack bars Topps — Baby Bottle Pop, Ring Pops, Push Pops, Ring Pop Gummies, Bazooka Gum, Bazooka Gum Nuggets Trader Joe's Citrus Gum Drops Trader Joe's Mango Taffy Trader Joe's Sour Gummies Transformers Candy Mix—gummy shields, fruit chews, candy shields, gum rocks Tropical Stormz Pops TruJoy Fruit Chews TruJoy Organic Choco Chews TruSweet Jelly Beans TruSweet Gummy Bears TruSweet Fruity Hearts TruSweet Fruity Bears TruSweet Gummy Worms TruSweet Sour Worms TruSweet Sour Berry Bears TruSweet Watermelon Rings TruSweet Peach Rings TruSweet Spring Mix Jelly Beans TruSweet Spooky Spiders TruSweet Organic Fruity Bears TruSweet Organic Fruity Hearts TruSweet Organic Jelly Beans TruSweet Organic Peach Rings TruSweet Organic Watermelon Rings Twist and Glow, Twist and Glow Heart, Twist and Glow Pumpkin Two Moms in the Raw Gluten Free Almond Butter Cacao Truffles Two Moms in the Raw Almond Butter Cayenne Truffles Two Moms in the Raw Almond Butter Green Tea Vanilla Truffles U
    Unreal Halloween Treats Unreal Dark Chocolate Almond Butter Cups Unreal Dark Chocolate Peanut Butter Cups Unreal Dark Chocolate Peanut Butter Cups with Coconut Unreal Dark Chocolate Peanut Butter Cups with Crispy Quinoa Unreal Milk Chocolate Peanut Butter Cups Unreal Milk Chocolate Peanut Butter Cups with Crispy Quinoa V
    Vosges Haut Chocolate Bacon Dark Chocolate Bar Vosges Haut Chocolate Coconut & Cherry Caramel Bar Vosges Haut Chocolate Crispy Carrot Bar W
    Warheads Extreme Sour hard candy and Sour QBZ chewy cubes Warheads Sour Chewy Cubes Warheads Super Sour Spray, Sour Dippers, Double Drops Welches Fruit Snacks—All flavors Wild Ophelia Peanut Butter Banana Cup Wild Ophelia Peanut Butter and Cherry Cup Wild Ophelia Peanut Butter and Toasted Coconut Cup Wild Ophelia Peanut Butter and Smoked Salt Cup Wonka Bottlecaps Wonka Chocolate Laffy Taffy Wonka Giant Chewy Nerds Jelly Beans Wonka Giant Pixy Stix Wonka Gobstopper Everlasting Wonka Gobstopper Chewy Wonka Fruit Tart Chews Wonka Fun Dip and Fun Dip Sour Wonka Laffy Taffy Ropes Wonka Mix–Ups Wonka Monster Mix–Ups—SweetTarts Skulls and Bones, Spooky Nerds, Howlin' Laffy Taffy Wonka Nerds—carry a cross contamination warning on the Spooky Nerds orange and fruit punch flavors Wonka Pixy Stix Wrigley's Gum Wrigley’s Creme Savers X
    X–scream Mouth Morphers Fruit Gushers Y
    York Peppermint Patties - All Except York Pieces Candy, York Minis, and York Shapes (5 oz.)s YumEarth Organic Fruit Snacks YumEarth Gummy Fruits Z
    Zed Candy Skulls and Bones Zip-A-Dee-Mini Pops
    With all these selections, finding some good, gluten–free candy should be a snap. As always, be sure to read labels, as some ingredients can vary.
    **WARNING! THESE UNSAFE CANDIES CONTAIN OR MAY CONTAIN GLUTEN:
    AIRHEADS Packaging states that Airheads are: "Manufactured in a facility that processes wheat flour." Airheads.com FAQs state that: "Airheads do not contain gluten; however, they are processed in a facility that uses wheat flour, so the company does not guarantee that Airheads are gluten-free. Airheads Xtremes Rolls contains wheat flour ALTOIDS Contain gluten as wheat maltodextrin ANNABELLE'S Abba Zabba—contains: peanuts, soybean oil and soy lecithin, wheat/gluten Big Hunk—Package statement: "made in a facility that uses milk, egg, tree nuts, wheat and peanuts" Look—Contains: milk, peanuts, soy lecithin, eggs, wheat/gluten Rocky Road, Rocky Road Mint, Rocky Road Dark—Contain wheat/gluten Uno—Contains: milk, almonds, soy lecithin, wheat/gluten AMERICAN LICORICE CO. Sour Punch Sticks, Twists, Bits, Bites, Straws—contains wheat/gluten Red Vines—all varieties and flavors contain wheat/gluten BEE INTERNATIONAL Zombee Bloody Bites (glow in the dark plastic fangs with oozing candy blood bags) Zombee Candy Corn (in a tall tube with plastic pumpkin lid) Package statement: "Made in a facility that also processes milk, wheat, peanuts, tree nuts." BRACH'S All Brach's candy should be considered NOT gluten–free! Please be careful, as I have seen Brach's candies included on gluten-free safe lists! Brach's Candy Corn, Brach's Jelly Bean Nougats, and Brach's Halloween Mellowcremes ARE all processed in a facility that processes wheat. CADBURY ADAMS Sour Patch Xploderz CHUCKLES Chuckles Ju Jubes CVS Candy Corn, Autumn Mix, Candy Pumpkins Ingredients free of: wheat/gluten, milk, tree nuts, peanuts Package statement: "This product was packaged in a facility where other products containing peanuts, tree nuts, milk, wheat, soy and egg are also packaged." DOVE CHOCOLATE  Milk chocolate cinnamon graham/cookies and cream, and some holiday varieties, such as milk chocolate truffles FARLEY'S AND SATHERS Harvest Mix and Candy Corn—This product is made by Brach's. All Brach's candies are considered to contain gluten. See Brach's listings. Heide candies—Jujyfruits, Jujubes, Red Raspberry Dollars, Red Hot Dollars Wild Cherry, Heide Gummi Bears Super Bubble and Super Bubble Blast Trolli Gummi Bears, Trolli Sour Brite (Frite) Crawlers "Packaged on equipment that packages products containing traces of milk, wheat, egg, peanuts, tree nuts and/or soy protein." FERRERO Ferrero Rocher Chocolates FLIX Bag of Boogers Gummies — "Manufactured in a facility that processes gluten (wheat), milk, egg, peanuts, tree nuts and soy." FRANKFORD Frankford Fun Size Mix (Peanut Butter, Caramel and Crispy Chocolate Covered Candies) Crispy Candies SpongeBob Gummy Krabby Patties GOETZE Goetze's Caramel Creams, Cow Tales—Contain wheat flour, milk, and soy HARIBO Bears (the package now says: Dextrose - wheat or corn) Black Licorice Wheels Brixx Clark Bars Fruity Pasta Konfekt and Pontefract Cakes Red Licorice Wheels Sour S'ghetti HERSHEY Hershey Snack Sized Bars — ALL Kit Kat—contains wheat Mr. Goodbar Reese's Minis Reese's Peanut Butter Pumpkins Reese's Seasonal Rolo Minis Twizzlers—contains wheat Whoppers—contains barley malt and wheat flour Hershey's Bliss (Milk Chocolate, Milk Chocolate with Almonds, Milk Chocolate with Meltaway Center, White Chocolate with Meltaway Center, Milk Chocolate with Raspberry Meltaway Center, Dark Chocolate)—No gluten ingredients, but not on Hershey's official gluten-free list. Hershey's Special Dark Bar (note that this is confusing, since several other Special Dark products are considered gluten-free, so make sure you know what you're buying) Hershey's Cookies 'N' Creme Bar Hershey's Milk Chocolate Drops Hershey's Miniatures (any flavor, including flavors that are considered gluten-free in larger sizes) Mr. Goodbar Symphony Bar Hershey's Extra Dark Chocolate Hershey's Kisses that do not appear on the gluten-free list above Hershey's Good & Plenty Hershey's Mr. Goodbar fun size Hershey's Twizzlers, Flavored Twists IMPACT CONFECTIONS Warheads Sour Twists—contain wheat/gluten, milk Warheads Sour Jelly Beans—made in facility shared with wheat, peanuts, milk, egg and soy Warheads Sour Candy Canes—contain soy; made in facility shared with wheat, peanuts, tree nuts, milk, egg, and soy Warheads Sour Coolers—contains oat fiber MARS and WRIGLEY Mars Bar Mars Combos (a snack mix) M&M White Chocolate, Mint and M&M Coconut flavors—Check individual packages to be sure M&M Pretzel flavor and some M&M seasonal flavors Milky Way—contains barley malt Twix—contains wheat NESTLE Butterfinger Crisp or Butterfinger Stixx—contains wheat flour Butterfinger Giant Bar Butterfinger Hearts Butterfinger Jingles Butterfinger Medallions Butterfinger Pumpkins Butterfinger Snackerz Butterfinger Stixx Chewy Spree Crunch—contains barley malt Everlasting Gobstopper Hundred Grand Bar—contains barley malt Kit Kat Bar 100 Grand Bar—contains barley malt Sweetarts—Contain both maltodextrin and dextrin, which can be made from wheat and barley, and are not listed on Nestle’s gluten-free candy list) Wonka Bar (all flavors) Wonka Gummies Wonka Kazoozles Wonka Nerds Wonka Oompas and the Wonka Bar are NOT gluten–free. Wonka Oompas and the Wonka Bar are NOT gluten–free. NEWMAN'S OWN Organic Dark Chocolate & Milk Chocolate Peanut Butter Cups (Made on equipment that processes products containing peanuts, tree nuts, milk, wheat, soybean and egg products.) PALMER Palmer Bag of Boo's fudge bars Palmer Tricky Treats (mix of Googley Eyes, Boneheads, and Pumpkin Patch chocolate candies) Palmer Trick or Treat Mix Palmer Peppermint Patties RUSSELL STOVER'S—Russell Stover's products are produced on equipment that also processes peanuts, tree nuts, eggs and wheat gluten. YORK York Pieces, York Minis and York Shapes WONKA Wonka Bar Wonka Chewy Runts Wonka Chewy Spree Wonka Giant and Mini Chewy SweeTarts Wonka Nerds Wonka Oompas Wonka Runts Wonka Runts Chewy Wonka SweetTarts Wonka Sweetarts (regular) Wonka Sweetarts Chew Wonka Sweetarts Chewy Twists Wonka Sweetarts Giant Chewy Wonka Sweetarts Mini Chewy Wonka Shockers Wonka Sweetarts Gummy Bugs—contains wheat/gluten Wonka Sweetarts Rope—contains wheat/gluten Wonka Sweetarts Shockers Wonka Tart N Tinys Wonka Tart N Tinys Chew Wonka SweetTarts Boo Bag Mix Additional information and lists of gluten-free safe and unsafe Halloween candies can be found at:
    About.com Celiac.com Celiaccentral.com CeliacSupportAssociation.org Celiacfamily.com DivineCaroline.com Foodallergyfeast Glutenawayblog.com Glutenfreefacts Gluten Intolerance Group Medpedia Surefoodliving.com Urbantastebud.com Verywellfit.com Here is a partial list of major candy manufacturers and how to contact them:
    Adams & Brooks American Licorice Co. BEE International  Ferrara Candy Company  Ferrero Rocher  FLIX  Gimbal's Fine Candies  Goetze's Candy Company  Hershey's. Here's a link to Hershey's official gluten-free list. Impact Confections  Jelly Belly Just Born. Here's a link to Just Born Gluten-free FAQs Justin’s Nut Butters products are certified gluten-free by the Gluten-Free Certification Organization, which requires products to have less than 10 parts per million of gluten in them. Kraft Foods Mars Chocolate Necco  Nestle USA Palmer Pearson's PEZ  Pop Rocks  Tootsie Roll —Tootsie Roll Industries, which also makes Charms products, says that, as of fall 2018, all of the company's confections are considered gluten-free except Andes cookies. "Tootsie does not use wheat, barley, rye, oats, triticale, spelt, or any of their components, either as ingredients or as part of the manufacturing process. Corn and soy products are used during the manufacturing process," the company says.

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