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Fiddles

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Fiddles Newbie

Hi there!

I'm recently diagnosed with celiac.  I've been having stomach issues for a few months and thought I was imagining things when nothing was coming up on bloodwork.  Finally doctor ordered specific celiac bloodwork and my numbers were ridiculously high.  As of last Wednesday I've gone gluten free.  It's been quite the adjustment as I'm also T1 diabetes (diagnosed as an adult 3 years ago).  I'm trying to stay positive with the diagnosis but it's been pretty tough.  I look forward to all the help I will be getting here.


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ravenwoodglass Mentor

Welcome to the board. Be sure to read the newbie 101 thread at the top of the Coping section as it will have a lot of good info for you. Try to go with mostly whole foods to start as it will aid in healing. You may even find being gluten free helps with your control of your diabetes. We have a few members here who have both so be sure to post any questions you have and hopefully someone will be able to help. It is an adjustment and there can be ups and downs to start so don't get discouraged if you have a few slip ups with the diet. I hope you are feeling much better soon.

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    • xxnonamexx
      Try a multivitamin maybe it will cover what you are deficient in.
    • cristiana
      Agreed, and I can't remember exactly and haven't got time to check, but I think my blood didn't normalise for eight years! For years I read this forum thinking why can't I get my numbers down - everyone else manages to.   But my gastroenterologist didn't seem to worry about it, which makes me think he either thought I wasn't complying to the diet, or he'd seen similar cases.
    • trents
      Yes, being off gluten for 3 months would likely yield negative results. To get accurate testing redone you would need to restart gluten consumption for several weeks (the "gluten challenge") to the tune of at least 10g of gluten daily (about the amount found in 4-6 slices of wheat bread).
    • trents
      That is one of the tests covered in the article I linked you above.
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      Antibodies to Deamidated gliadin peptides.  It is another celiac antibody test. The main test is the one you had, TTG,  But a full panel will also include DGP IgA and IgG.  I was positive on all of them!
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