Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Felt Great First Week gluten-free, Now I Feel Bad Again


DeviD

Recommended Posts

DeviD Rookie

Hello all. I suspect that I am gluten intolerant. I went gluten free last Monday. About two days after that I felt great! However, yesterday I started feeling bad again. Today is even worse.

I'm having leg cramps again, bloating (it's like I went up two sizes in two days!), bad cramps, muscle spasms and joint pain. Is it possible to go through gluten withdrawl after feeling better? I've also been very careful with my diet too.  I've also been more on edge and angry. I am not an angry person...

Link to comment
Share on other sites
  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NotChelsea Newbie

If you are 100% gluten free(which includes beauty products and soaps) then it will probably take over 6 months for the gluten to leave your system and you will see major improvements in your symptoms. I say that you should continue to eat gluten free, probably get tested for celiac(if you haven’t already), and be extra careful about what your touching and what you’re putting into your body. It personally, took me over 2 years before my body started to normalize and the symptoms went away

Link to comment
Share on other sites
kareng Grand Master
1 hour ago, NotChelsea said:

If you are 100% gluten free(which includes beauty products and soaps) then it will probably take over 6 months for the gluten to leave your system and you will see major improvements in your symptoms. I say that you should continue to eat gluten free, probably get tested for celiac(if you haven’t already), and be extra careful about what your touching and what you’re putting into your body. It personally, took me over 2 years before my body started to normalize and the symptoms went away

I am going to disagree with some of this.  First - for a Celiac, it isn't important if all beauty products are gluten-free, just ones that might be "eaten" - hand lotion, lipsticks, etc.

Gluten does not hide out in a body.  It is either broken down or passed on thru, just like any other food.  So, even for a constipated person - it will be out of your system in a week or so.

Eating gluten free and then testing for Celiac is a very bad idea.  You need to be consuming a regular gluten diet to get a positive test.  

 

To the Original poster - I am not sure why you went gluten free.  So maybe gluten isn't actually the problem.  Perhaps, by eating gluten-free you are missing something in your new diet that you need to feel well?  Perhaps you caught a virus.  

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,988
    • Most Online (within 30 mins)
      7,748

    Jenny B.
    Newest Member
    Jenny B.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...