Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

rgarton

Unusual symptoms, any help appreciated

Rate this topic

Recommended Posts

Hey guys,

I'm having an awful evening and it's not the first. I've been having unusual symptoms and hoping someone else can either give advice, sympathy or explanation. 

Been dx for 7 years now. Pretty severe, actually so severe they decided against a biopsy (I had to be on a drip, have a blood transfusion etc) so my celiac doesn't seem to run the usual course. It took about 4 years to feel any difference after changing my first and I'm super ocd about it so the likelihood of being contaminated is about 0.1% 

About 3 years ago I started having these random episodes of severe body tremor, like epilepsy without epilepsy. But it rarely happened so I waved it off. 

Now it happens every couple of weeks. For roughly 6/8 hours I'm bed bound by it. Along side my temp goes completely askew, bordering around low grade fever. Severe shaking. Upset stomach, loose stools. Nausea. Flushed cheeks. 

I can't explain how much it affects me. No one can seem to find a reason so far. 

Share this post


Link to post
Share on other sites

I have but not had any answers... Been checked for a ton of things but nothing unusual exception of elevated igf-1 levels without Acremogoly or any brain tumor. 

Share this post


Link to post
Share on other sites
1 hour ago, rgarton said:

I have but not had any answers... Been checked for a ton of things but nothing unusual exception of elevated igf-1 levels without Acremogoly or any brain tumor. 

Have you had any re- check for Celiac?  Are you anemic or vitamin deficient... something like that?

Share this post


Link to post
Share on other sites

Sympathy and explanations......

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/

This article explains how certain vitamin deficiencies can cause tremors, shaking, tics, etc.   

Celiac Disease causes malabsorption which results in malnutrition.  

I had vitamin deficiencies.  I had episodes like what you've described with the shaking and fever, etc.  

Have you been checked for nutritional deficiencies?   Many doctors seem to overlook vitamin deficiencies as a source of problems. 

Also found this article that links vitamin D to IGF1...

https://www.ncbi.nlm.nih.gov/pubmed/24005315

Hope this helps!

Share this post


Link to post
Share on other sites

Doesn't sound very much like celiac disease if you are sure there is no cross contamination is going on. Also an idea would be to keep track of everything you eat or do leading up to an episode to see if you have any other food sensitivities. 

Share this post


Link to post
Share on other sites

I've had all my blood and vitamins/minerals checked. Vitamin D is perfect too. Definitely not anemic. Celiac levels are within normal range. ? I take supplements every day too. 

I got a BP monitor and did some readings through the episode. My BP was very high and it kept showing an irregular heart beat so I think you're right it might not be to do with my celiac at all. 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


    • July 08, 2019 Until July 09, 2019
      0  
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Tracks
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
       
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
×
×
  • Create New...