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HannahBick

My husband is celiac. We have 10 kids. Is it likely that any of the kids have celiac disease?

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Thank you for all the recipes! All of my sons and daughters (including the non-celiac ones) have been gluten free for the past few weeks and I can't believe the difference it has made in their health. It's a miracle! For the first time, my youngest (learning disabled) is actually communicating in sentences. They are sleeping through the night and sugar is no longer making them 'naughty'. I am very sorry I did not get onto this earlier. My husband said we need to make sure the kids don't eat much sugar because it will make them behave wildly and feed the germs.

Unfortunately, one of my sons (who recently went gluten-free) was officially diagnosed with type 1 diabetes yesterday. We have been baking a lot of gluten free sweets in the past week due to having friends coming over and my son was getting up several times during the night to the restroom after we indulged ourselves. He had mild unexplained GI symptoms and poor weight gain all his life up until 2 weeks ago and my husband thinks my changing his diet so drastically and suddenly has shocked his system and caused him to become a diabetic. I don't believe a word of it, since he is healthier in every other way.

Our endocrinologist thinks the untreated celiac disease had more to do with it since she said you won't become type 1 diabetic overnight. She also mentioned that she has only seen three people develop type 1 diabetes after being diagnosed with celiac and that it's usually the other way around.

I am really upset for my son. He was the one who asked a few years ago if he might be celiac as well and we just dismissed it, hubby said he'd be crippled and unable to function if he really had it. 

So we'll be going in tomorrow and learning how to use insulin. ?

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27 minutes ago, HannahBick said:

Thank you for all the recipes! All of my sons and daughters (including the non-celiac ones) have been gluten free for the past few weeks and I can't believe the difference it has made in their health. It's a miracle! For the first time, my youngest (learning disabled) is actually communicating in sentences. They are sleeping through the night and sugar is no longer making them 'naughty'. I am very sorry I did not get onto this earlier. My husband said we need to make sure the kids don't eat much sugar because it will make them behave wildly and feed the germs.

Unfortunately, one of my sons (who recently went gluten-free) was officially diagnosed with type 1 diabetes yesterday. We have been baking a lot of gluten free sweets in the past week due to having friends coming over and my son was getting up several times during the night to the restroom after we indulged ourselves. He had mild unexplained GI symptoms and poor weight gain all his life up until 2 weeks ago and my husband thinks my changing his diet so drastically and suddenly has shocked his system and caused him to become a diabetic. I don't believe a word of it, since he is healthier in every other way.

Our endocrinologist thinks the untreated celiac disease had more to do with it since she said you won't become type 1 diabetic overnight. She also mentioned that she has only seen three people develop type 1 diabetes after being diagnosed with celiac and that it's usually the other way around.

I am really upset for my son. He was the one who asked a few years ago if he might be celiac as well and we just dismissed it, hubby said he'd be crippled and unable to function if he really had it. 

So we'll be going in tomorrow and learning how to use insulin. ?

Well I respond really bad to sugar, starches, and carbs a few years after my celiac diagnosis with UC ....not diagnosed diabetic, but when I tried cheating and eating some hashbrowns...I started feeling like I was on drugs, and my glucose monitor showed 419........

SO I now eat low carb with a high fat/protein diet (keto/atkins) and have developled sugar free treats...bit high in subsitutes but I do have recipes for several and have posted some here, like my Almond Butter Pecan Pie, Lemon Ricotta Scones...been playing with almond butter/sunbutter cookies and have 3 versions...still not quite satisfied to sell them yet. I have also came up with low carb flat bread recipe and a vegan grain free cheezy bread recipe I can share.
PS both my parents are diabetic......adopted not celiac...they were well....carby bread lovers and sort of brought it on. But I cook for them now often with paleo meals low on carbs.
IF YOUR son get a craving for low carb pizza, English Muffins, Tortillas, Pasta, Rice, etc. Look at the following companies.
Miracle Noodles, Makes pasta, noodles, read to eat meals, rice...all low carb diabetic safe
Mikeys Muffines makes tortills, english muffins, etc low carb
Califlour Foods makes pizza crust....bit like a flat bread pizza but better then nothing I use the plant base crust....you can even make them in to chips.
Protes Makes low carb Nacho chips, BBQ Chips, Chili and Lime chips that are great....avoid the salted caramel ones they burn them.
Zevia Makes a type of knock of soda that works best with a tiny bit of splenda zero in it.
Lakanto makes sugar free maple syrup, and some of the best sugar free chocolate bars.
Anything else I can help point you through. I know the frustrations and spend most my life trying to invent and find foods that are safe. I also have recipes I post that are often low carb and gluten free on the reicpe blog here. Good luck and glad you and your family are working this out together.



 

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I am sorry to hear about the T-1 diabetes diagnosis.  But your husband is not right about the "shock to his system" causing it IMHO.  Instead, it is more likely he developed it related to untreated celiac disease.  Maybe print this article out and have your husband read it.  Celiac is associated with multiple other AI diseases.  Some of the forum members here have multiple AI conditions.  T1D is one of the associated conditions with celiac disease.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3741914/  

more info:

https://www.verywellhealth.com/celiac-disease-related-conditions-4013339

Here is a link to the diabetes forum where you might find some good info.

https://www.diabetesforum.com/forum.php

The past can't be helped, but we can try to make the future better. :)

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I can't believe your husband is blaming the T1Diabetes diagnosis on you! (I noticed you said "my" changing his diet, not "our" changing his diet.) This is the same husband who is a diagnosed celiac yet opposed screening the kids, right? I imagine he is subconsciously trying to displace the guilt he feels onto you, but WOW that is not fair.  My heart goes out to you and your family - that is a lot to deal with, and I hope he is able to pull together with you instead of fingerpointing as you all learn to manage your son's (and other children's) needs.

(Also, it seems very unlikely that your son suddenly became diabetic overnight. I agree with the other posters who believe that it is more likely related to longterm undiagnosed celiac disease.)

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On 6/20/2018 at 5:34 AM, Sienna2013 said:

I can't believe your husband is blaming the T1Diabetes diagnosis on you! (I noticed you said "my" changing his diet, not "our" changing his diet.) This is the same husband who is a diagnosed celiac yet opposed screening the kids, right? I imagine he is subconsciously trying to displace the guilt he feels onto you, but WOW that is not fair.  My heart goes out to you and your family - that is a lot to deal with, and I hope he is able to pull together with you instead of fingerpointing as you all learn to manage your son's (and other children's) needs.

(Also, it seems very unlikely that your son suddenly became diabetic overnight. I agree with the other posters who believe that it is more likely related to longterm undiagnosed celiac disease.)

One of my daughters decided to eat a piece of regular birthday cake early last week at a friend's house. She never let them know about her new diet and figured this was a one-off event and the worst that could happen is the mild symptoms she'd become used to having would return for a short time.

Three hours later she experienced severe food poisoning symptoms that I took her to the hospital for she still hasn't fully recovered from to date. My daughter *didn't know why* she was sick. I only found out later she was glutened because her friend's mother mentioned the cake. 

My husband, who I thought was coming to grips with our new lifestyle, said that by pulling gluten out of her diet, her body has learned to reject it. One of our previous MDs said the same thing several years ago. I have heard that people can become more symptomatic when exposed after avoiding gluten for a long time, but looking I really think it was a problem for my kids all along.

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9 hours ago, HannahBick said:

My husband, who I thought was coming to grips with our new lifestyle, said that by pulling gluten out of her diet, her body has learned to reject it. One of our previous MDs said the same thing several years ago. I have heard that people can become more symptomatic when exposed after avoiding gluten for a long time, but looking I really think it was a problem for my kids all along.

Yes symptoms are MUCH worse after going gluten free if you get exposed after. This disease is like a chameleon always changing, and it is quite standard for the symptoms to change and wax and wane. Times for recovery will also change, form of exposure and amount will also have an effect.

Her bodies immune system was fighting gluten for a long time, it was worn out and tired, she got off it and the body had time to stand by and build up. Then the enemy showed up in her system and it hits back with all its might stronger and harder then ever. This will be a good learning experience on the tough love level, she will probably not try cheating on the diet again for awhile.
 
 

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