Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rachel--24

Confused About What I'm Reading...

Rate this topic

Recommended Posts

As I mentioned in a previous post I found a new doctor knowledgeable in the area of gluten sensitivity. I visited the clinic's website and they had a special section dedicated to learning about gluten intolerance. I read something that I'm confused about regarding Amaranth, Quinoa and Teff. This is what it says....

Foods which mimic gluten in the body:

There are foods which do not strictly contain gluten (gliadin is the actual name of the offending protein) but still trigger the same unhealthy response as gluten. How? These foods contain proteins which are so similar to gliadin that people whose bodies are sensitive can’t tell the difference.

For example, soy is considered an OK food for those who are gluten intolerant. But when soy protein is concentrated in the form of tofu, tempeh or soy protein isolate (founds in soy-based protein powders and protein bars) that concentrated protein appears so similar to gluten that your body reacts to it the same as if you were consuming gluten.

Oats is another example. There are gluten free societies which will get quite impassioned when defending oats. Others don’t recommend oats due to a problem of unacceptable levels of contamination. We all agree that oats has a different protein from wheat, rye and barley. But the problem is that when a gluten intolerant person consumes oats they react to it the same as if they were consuming wheat! So please be cautious when reading other materials or consulting other web sites which say that oats, amaranth, quinoa and teff are fine. From a chemical standpoint they do have a different protein but from a practical, clinical standpoint they still create reactions which is ultimately what we are trying to avoid.

The science behind the above statements has been proven by measuring an inflammatory enzyme which gets elevated in gluten intolerant people who consume gluten. The experiment took gluten intolerant patients who had been off gluten and measured the enzyme to get a baseline. The baseline was normal. The patient then consumed one of the supposedly “OK” grains listed above. When the enzyme was retested it was found to be high, confirming a reaction to the grain.

So while we all like the sound of being able to eat oatmeal please remember that it is not okay and the above proves why.

What do you guys think? Is this why some people get gluten-like reactions from soy but others are ok with it? What about the other grains...does anyone get gluten-like reactions from them? I'm confused because although I have come accross websites saying to avoid all these...most sites say they are OK. :unsure:

Share this post


Link to post
Share on other sites

Regarding Oats-well my husband has steered well clear!

I always think that oats would be contaminated anyway as it's grown with wheat.

Of course some coeliacs do eat oats with no apparent ill effects.

As my hubbie has been so very ill it's not worth the chance.

Scientifically,I think the jury is still out on oats.

I found this thread about soy further down the board-certainly some coeliacs do have a problem with it-but scientific proof? http://www.glutenfreeforum.com/index.php?showtopic=12146&hl=

Share this post


Link to post
Share on other sites
Regarding Oats-well my husband has steered well clear!

I always think that oats would be contaminated anyway as it's grown with wheat.

Of course some coeliacs do eat oats with no apparent ill effects.

As my hubbie has been so very ill it's not worth the chance.

Scientifically,I think the jury is still out on oats.

I found this thread about soy further down the board-certainly some coeliacs do have a problem with it-but scientific proof? http://www.glutenfreeforum.com/index.php?showtopic=12146&hl=

I definately wouldnt try eating Oats...even if they are pure. I'm really curious about the amaranth and quinoa though. This past week has probably been the worst for me since going gluten-free. I've had alot of the symptoms I havent had in awhile and I've lost 4 lbs. The only new thing I've eaten is Amy's rice bowl which contains soy...I think it had tofu. I ate 3 of these in the past week but I never suspected the rice bowl. I felt fine after eating them. The only other thing thats happened is that last week at work I was on my knees stocking (I work in a grocery store)...it was before the store was open and the janitor was cleaning the floor with a machine. He accidently ran into my foot and when I turned around to look I was hit in the face with a cloud of who knows what from underneath the machine. The scrubbing pad had come off when he ran into me so everything flew into my eyes and face. Since he was cleaning the floor I thought maybe there was flour in that "cloud" but who knows....my reactions started that night. That was 9 days ago. :(

Share this post


Link to post
Share on other sites

Probably stating the obvious here but could it be a lactose or casein problem?

It's so hard constantly trying to work out where you've gone wrong(if at all)

Obviously,if you continue to lose weight you will have to discuss this with your new doc(great find by the way!).

Hope you're feeling better soon-I know my hubbie get's really disheartened when the little bit of weight he manages to put on one week,falls off twice as quick the next.

Keep us posted on your progress,sorry I can't be of more help :)

Share this post


Link to post
Share on other sites

Thanks Nikki,

I'm already casein free so its not that....that was one of the first things the doc asked. ;)

He'll be putting me on an elimination diet so hopefully we'll figure some things out.

I'm definately going to ask him more about the soy, amaranth, quinoa thing though.

Share this post


Link to post
Share on other sites
Probably stating the obvious here but could it be a lactose or casein problem?

It's so hard constantly trying to work out where you've gone wrong(if at all)

Obviously,if you continue to lose weight you will have to discuss this with your new doc(great find by the way!).

Hope you're feeling better soon-I know my hubbie get's really disheartened when the little bit of weight he manages to put on one week,falls off twice as quick the next.

Keep us posted on your progress,sorry I can't be of more help :)

Hi all

I visited a holistic practioner under the pressure of a friend of mine, and she tested me to all kinds of grains and soy. THE scary part I was allergic to soy as bad as to glutin and wheat , she even said I should stay away fro megg youlks. She apractice that utilizes meredian and allergy elimination technique.

Iam certain was not eitch craft lolY, but I didi not belive in it fully. I would stay away from oats and other shady grains like barley and malt .

The consiquences of celiac are so bad and severr that is not worth it . the thing about soy is that some people may be okay with it while others are not.i for example when I eat I feel like tired and heavy,but no GI symptoms it is almost like my body is working extra to digest it.

all the best to all

Celiac at35

Hassan

Share this post


Link to post
Share on other sites
Thanks Nikki,

I'm already casein free so its not that....that was one of the first things the doc asked. ;)

He'll be putting me on an elimination diet so hopefully we'll figure some things out.

I'm definately going to ask him more about the soy, amaranth, quinoa thing though.

In addition to my suspected problems with wheat/grains, I know I have problems with dairy...whether or not it was connected to the untreated gluten issue remains to be seen. Soy is something I've really never eaten at all. However, I've been dairy free since Thanksgiving, and I was horribly missing my cappuccinos, so I read on a coffee site about how to froth soy milk. I wanted to give it a try, and I got a horrible digestive upset from that ONE coffee drink (with about 1/2 c. soy milk in it) and it lasted for several days. So I can see I don't do well with soy either. On the other hand, I was regularly eating Irish oats from McCanns and I really didn't feel I was reacting to that in particular, but again, I can't tell at this point because everything can be so interconnected, and what you posted from that website seems plausible. Sigh.... :(

Share this post


Link to post
Share on other sites

I wonder if it isn't possible that those grains might indeed cause a reaction in some individuals, but not all? Because I know so many celiacs who happily consume teff and quinoa and so on and seem fine with it. I'd really like to see a second study about it for sure.

I've tried oats, in Finland, btw, and didn't react in any way as far as I can tell. I probably wouldn't start eating them regularly though, just to be sure.

BTW I think you might very well have been glutened by the cleaning accident. Maybe see how you feel in a couple weeks? Hope you feel better soon in any way...

Pauliina

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...