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hup1703

Son Always Sick

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My son has had a horrible immune system since losing his dad to cancer 5 years ago. Three months ago he started getting migraines and acid reflux. He is 14. He was also constantly  getting 4 or 5 mouth ulcers at a time. This year he had missed 27 days of school. My dad goes to a homeopathic dr. and he told me to take him off wheat and gluten. I did and he felt great for 3 days. Then he got really sick with migraines and acid reflux. After a week and a half of this I took him to a Dr. for blood work and to be tested for Celiac. The tests came back fine. I had him off of wheat for 2 weeks before the test tho. After another week of being sick I sent him back to school. He was fine for 3 days and then symptoms came back. He has now missed 42 days of school. I ordered a DNA test for Celiac but it will only tell me if it is NOT Celiac. The school is not being supportive. The principal told me ,"if he is not burning up with fever or bleeding out the eyeballs, he should be in school."

 

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36 minutes ago, hup1703 said:

My son has had a horrible immune system since losing his dad to cancer 5 years ago. Three months ago he started getting migraines and acid reflux. He is 14. He was also constantly  getting 4 or 5 mouth ulcers at a time. This year he had missed 27 days of school. My dad goes to a homeopathic dr. and he told me to take him off wheat and gluten. I did and he felt great for 3 days. Then he got really sick with migraines and acid reflux. After a week and a half of this I took him to a Dr. for blood work and to be tested for Celiac. The tests came back fine. I had him off of wheat for 2 weeks before the test tho. After another week of being sick I sent him back to school. He was fine for 3 days and then symptoms came back. He has now missed 42 days of school. I ordered a DNA test for Celiac but it will only tell me if it is NOT Celiac. The school is not being supportive. The principal told me ,"if he is not burning up with fever or bleeding out the eyeballs, he should be in school."

 

It could be Celiac related it could not I would suggest checking here on a gluten challenge and getting the testing done with the complete panel, https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/
 

IT could be many things, autoimmune disease normally show in in blood test in some form, the ulcers could be a sign of food allergies or a immune response to something, or they could be many other things like a simple imbalance or deficiency. I get these nasty blood blisters in my mouth from corn which I am allergic to. The taking him off and seeing a improvement is a clue. If all else fails I would suggest assuming he had Non Celiac Gluten Sensitivity and to remove it from his diet. The rebound you saw could have a small trace of gluten from a cross contaminated meal, or snack that was not gluten free. After removal of something that offends the body or immune system it can jump back with higher sensitivity if the offenders is reintroduced...few other things I can think of be should let the doctors do more test and see if immune response markers are present before giving those theories.
https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
If you wish to forgo the challenge an assume wheat is the only issue do read the newbie 101 threads....medical gluten free is very strict compared to the "fad diet" gluten free. We have to have dedicated cook ware and often avoid eating out without proper research and places with dedicated gluten free cook ware and training.
https://www.celiac.com/forums/topic/91878-newbie-info-101/
For now start keeping a food diary, record everything he eats, seasonings, how it fixed and any symptoms, how he feels with times. Look for patterns to find what is causing his issues.
https://www.wikihow.com/Keep-a-Food-Diary

 


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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I think you should consider getting some second opinions.  Perhaps push for a GI consult.  A 14 year old should not have acid reflux which could be due to so many things.  

If you suspect celiac disease (make sure he was given the entire panel and not just the screening TTG with an IgA deficiency test) and wish to move forward, consider a gluten challenge (under a doctor’s care) during the summer.  

http://www.cureceliacdisease.org/screening/


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

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I have fibromyalgia and I have the exact same symptoms as your son. I've been tested for everything. The only thing that helps me is being on a strict organic diet. My body simply cannot handle the insecticides and junk in our food. Fragrances and chemicals in household products and personal hygiene stuff doesn't help either.

I can eat non-organic fruits and veggies, but any animal product and anything with wheat, corn, or soy will set me off with a serious migraine. I still have to take priolosec for the acid reflux, but it's a lot better than it used to be. Sugar can also cause problems if its from sugar beats, as those are GMO and doused with extra chemicals as well. I do alright sticking to pure cane sugar though.

One other thing, some organic brands seem to have inferior products. I had to try three different brands of organic peanut butter before I found one that didn't make me sick (Laura Scudders brand). Hope that helps, I'll be praying for ya'll.

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