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Just been diagnosed with celiac"


Katsnkids

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Katsnkids Rookie

Hi all!  I have just had a call from my doctor confirming a celiac diagnoses!  In some ways I am relieved as it will explain a lot of my (minor) symptoms.. in other ways a little overwhelmed as I am already a vegetarian so feeling a little bit limited!  My doctor did not say anything to me.. just told me to look on websites! So one of my first questions is.... if I stop eating gluten now.. will my gluten symptoms be worse than they are now if I have gluten again? (I am camping next weekend with friends and have a meal out this weekend... and not sure if it is worth changing meal plans for these.. and just do it at home for now?! I hope this makes sense!... my main symptoms are lethargy poss due to anaemia.. some bloating, gas, and reflux but no pain... 

Im sure over the coming weeks I'll be asking lots of daft questions! So I'll apologise in advance!

 

may thanks xxx


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Ennis-TX Grand Master

Well welcome the club you never wanted in, do read the newbie 101 section about how to clean out, decon the kitchen preventing contamination, and reading labels.
https://www.celiac.com/forums/topic/91878-newbie-info-101/
Yes after removing gluten many of us get much more violent reactions when it is reintroduced either due to being "numbed" to constant pain and the "normal" we perceived for so many years. Or from our immune system rebounded with renewed vigor at what it thinks is a invader......Gluten free traveling and camping can be done easily, bit more of a issue with vegan but not much. Get some Vegan Protein shakes/meal replacements (MRM Veggie meal replacement), protein bars (Julian Bakery, Kind), bags of nuts, seeds, dried fruit (nuts.com and mygerbs.com), dried kale chips, bean chips, or vegan protein chips (Rythem foods, protes, etc.) some fresh fruit, perhaps take some potatoes wrap in foil and cook in the fire.  PS the vegan protein powders and chips are great for anemia as pea protein is very high in iron, take with vitamin C supplements to maximize absorption

Got a list of some helpful foods for treating yourself, but we suggest a whole foods only diet starting off. I do some some recipes on my blog here that might interest you like Vegan Taco soup, etc.
https://www.celiac.com/forums/topic/121148-gluten-free-food-alternative-list-2018-q2/

 

Katsnkids Rookie

Wow! Thank you so much! That has been great to read through., and the beginners 101 was excellent too! Looking forward to getting this going and to l not feel like I do at the moment! :-) many thanks again for your time! 

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    • Healthierbody2026
      @trents my apologies my doctor has been saying that I’m pre-diabetic for years now sorry I didn’t include that information 
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      @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
    • Healthierbody2026
      @trents first response: can you direct me to that particular section of this site for NCGS or and are there any groups I can join for people with NCGS? second response: I can’t really remember due to it was some or a few years back but I believe she did blood tests or work on me or I think she did a glucose test on me.
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      There is not a distinct section in this particular online resource and community devoted to those with NCGS. And I cannot say with any certainty whether or not such a thing exists elsewhere online. But your question makes me think celiac.com might entertain the idea of starting a forum within our community for that purpose. I should explain that celiac.com is divided into a number of separate forums, each devoted to a different topic or concern within the gluten intolerant/gluten sensitive population. Having said that, the main is on those with celiac disease (or their support systems) rather than those with NCGS because it has more serious long-term health implications. I see. Can you elaborate on how you were tested to arrive at this diagnosis?
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      @trents not exactly sure my doctor told me I’m NCGS and I need to start a gluten free diet and I believe I can’t consume anything with wheat she diagnosed me a few years back but I thought she said I had celiac but when I had my physical recently back in February of this year to be exact I asked again and she said I had gluten sensitivity or NCGS and not celiac 
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