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      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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LilyR

Maltodextrin? (vitamin ingredients)

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Does anyone have good luck if ingesting anything with maltodextrin?  I saw one article saying it can be on the worry list, but that actually it should be safe because of the way it's processed.  I am needing to find a folic acid supplement that is gluten-free and also soy-free.  I found Nature Made's and the ingredients are: folic acid, calcium (as calcium carbonate and dibasic calcium phosphate), cellulose gel, croscarmellose, sodium, maltodextrin, magnesium stearate.

With such weird ingredients I've never heard of before, it is so hard to know if this is safe to take or not. I will try contacting the company,but I've still been waiting to hear back from them on their Cholestoff supplement and have not heard back yet. 

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20 minutes ago, LilyR said:

Does anyone have good luck if ingesting anything with maltodextrin?  I saw one article saying it can be on the worry list, but that actually it should be safe because of the way it's processed.  I am needing to find a folic acid supplement that is gluten-free and also soy-free.  I found Nature Made's and the ingredients are: folic acid, calcium (as calcium carbonate and dibasic calcium phosphate), cellulose gel, croscarmellose, sodium, maltodextrin, magnesium stearate.

With such weird ingredients I've never heard of before, it is so hard to know if this is safe to take or not. I will try contacting the company,but I've still been waiting to hear back from them on their Cholestoff supplement and have not heard back yet. 

I don't worry about maltodextrin.  Didn't the Natures Made say gluten-free on it?  It usually does.

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Maltodextrin causes severe gi cramping in me as does any synthetic sugar substitute. Life extension, NOW and Solgar on Amazon have less other ingredients and are gluten free. I love the Life Extension l-methylfolate which is already converted folic acid for easy absorption. I take 3000mg for nerve pain. It has a great mood lifting benefit as well. See NIH studies on folate vs antidepressant meds.

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22 hours ago, kareng said:

I don't worry about maltodextrin.  Didn't the Natures Made say gluten-free on it?  It usually does.

I had originally not noticed it said gluten free. I had been looking near the ingredients since I tend to often see products list any allergens it contains after the ingredients, or say gluten-free after it, or on the front. But I just looked more and sure enough, it does say it.  It doesn't mention soy free though. But I don't notice anything in the ingredients that sounds like soy. Although I an not totally sure what cellulose gel is made from. 

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20 hours ago, pikakegirl said:

Maltodextrin causes severe gi cramping in me as does any synthetic sugar substitute. Life extension, NOW and Solgar on Amazon have less other ingredients and are gluten free. I love the Life Extension l-methylfolate which is already converted folic acid for easy absorption. I take 3000mg for nerve pain. It has a great mood lifting benefit as well. See NIH studies on folate vs antidepressant meds.

Thanks for the heads up on the maltodextrin could cause cramping.  It would be great to get a little mood lift.  I have been on a beta blocker for blood pressure the past few months and I hate how I feel on it. I looked up side effects and it mentioned it can cause depression.  I haven't felt totally depressed, but I've been easily irritated, bad mood, sometimes sort of blah (I guess that is like a mild depression maybe).  My dr recommended I take 1 mg of folic acid a day because bloodwork shows mine is low, and my iron has been low, and I guess the B vitamins can also help with iron?  But so 3000 mg is safe to take? Thanks for the brand suggestions on amazon. I'll go look for them.  Now my dr says my iron has gotten better over the past few months taking those supplements and says I can switch to a multi vitamin that contains iron. So now to look for a gluten-free, soy-free multi vitamin. It's always something. I never liked multi's in the past because they didn't seem to make me feel any better.  I have sluggish digestion and not half of it ever even dissolves or gets absorbed. I love finding liquid capsules, but it seems hard to find those that do not contain soy.  I already miss the magnesium liquid capsules I used to take. These hard pills I just starting taking, just not quite as good.  Such fun. 

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Nature Made still has not gotten back to me about their Cholestoff, but did get back to me about their folic acid. 

"We recently received your email regarding Nature Made Folic Acid 400 mcg. We appreciate your question concerning the ingredients in this product. 
Nature Made Folic Acid 400 mcg is gluten free and does not contain soy. However, the product contains corn derived ingredients, such as Maltodextrin. 
Of note, most all of our products are gluten free. Our Nature Made products will state this on the label. Please check your product's label or visit our product pages under the Vitamins & Supplements section at www.NatureMade.com. Also ingredients containing or derived from one or more of the eight known allergens will be stated on the label as required by current labeling laws. We hope you find this information helpful. If you have any further questions, you can call to speak to a Consumer Affairs Representative at 800-276-2878.
We thank you for contacting us and hope that you will continue to use and enjoy Nature Made products with complete confidence."

So I guess I may need to be careful with it because of the maltodextrin, which could be made from corn, and corn bothers me. Great. Seems like it gets harder and harder to find supplements I can take.  One article on corn said some people can handle some ingredients that are more refined or less corn traces in them. I will have to experiment. This is getting frustrating. But I know I am in good company here, with many of you having gone through are are currently going trough the same thing. Trial and error.  And trying to patiently wait for your stomach to feel better, and then stay that way. 

https://www.neocate.com/blog/corn-allergy-101/

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8 hours ago, LilyR said:

So I guess I may need to be careful with it because of the maltodextrin, which could be made from corn, and corn bothers me.

LilyR,

If you are  having trouble with Corn too you need to look into/researching about Pellagra.

As you know many of us on this forum have multiple maladies often at the time of our celiac diagnosis.

I found I also developed Pellagra with and probably because of my Celiac condition.

Here is the HouseMD episode that discusses Celiac disease and the many other disease's celiac can also present with including Pellagra.

The discussion on differential diagnosis begins at the about the 26 minute mark.

They talk about reduced vitamin absorption due to Celiac disease about the 34:40 mark triggering 2ndary Pellagra in some celiac patients.

I only know it helped many of my GI symptom's.

see my celiac.com blog post about my experience if you want to learn about how I  had Celiac and developed Pellagra.

you might also try taking some betaineHCL (powdered stomach acid) to see if it improves your digestion.

Be sure to take/drink plenty of water to help activate/drive the stomach acid reaction and to insure the capsules don't lodge in a fold in the stomach.

3 or 4 or usually a good amount to start with and adjust up or down as needed.

It (BetaineHCL) helped improve my digestion.  If your are taking a PPI's then you might need more than this to improve digestion.

good luck on your continued journey.

**** Note: This is not medical advice and should not be considered such. It is only my experience. Yours might be be different.  But what  helps one might help another and why I share.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the Grace of God,

 

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On 5/17/2018 at 7:45 PM, Posterboy said:

LilyR,

If you are  having trouble with Corn too you need to look into/researching about Pellagra.

As you know many of us on this forum have multiple maladies often at the time of our celiac diagnosis.

I found I also developed Pellagra with and probably because of my Celiac condition.

Here is the HouseMD episode that discusses Celiac disease and the many other disease's celiac can also present with including Pellagra.

The discussion on differential diagnosis begins at the about the 26 minute mark.

They talk about reduced vitamin absorption due to Celiac disease about the 34:40 mark triggering 2ndary Pellagra in some celiac patients.

I only know it helped many of my GI symptom's.

see my celiac.com blog post about my experience if you want to learn about how I  had Celiac and developed Pellagra.

you might also try taking some betaineHCL (powdered stomach acid) to see if it improves your digestion.

Be sure to take/drink plenty of water to help activate/drive the stomach acid reaction and to insure the capsules don't lodge in a fold in the stomach.

3 or 4 or usually a good amount to start with and adjust up or down as needed.

It (BetaineHCL) helped improve my digestion.  If your are taking a PPI's then you might need more than this to improve digestion.

good luck on your continued journey.

**** Note: This is not medical advice and should not be considered such. It is only my experience. Yours might be be different.  But what  helps one might help another and why I share.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the Grace of God,

 

Thanks for the info. It sure would be nice if doctors would learn more about this and be able to help guide us better.  Seems like I am meeting more and more people with different types of digestive issues, not all with gluten, but many, and some with other issues they have been struggling with and going through many tests, but still with no help or answers.  Really seems something is going on in this country with food and digestive issues. 

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