Rate this topic

Recommended Posts

I apologize in advance for the long post.  I am extremely frustrated with my doctors.  A year ago, I saw 3 different doctors for extreme bloat, yellow diarrhea, stomach and back pain. (Also had migraines, chronic fatigue, red splotchy face and brain fog, but didn’t connect them). I told all 3 doctors that I had celiac in my immediate family.  Did ANY of them take blood? NO! Of course not. They all said “stop eating gluten, you probably have a sensitivity “.  Me, not knowing you have to be eating gluten to be tested dutifully did so. One a-hole doctor, looking at my extremely bloated stomach said “you’re fat and you carry your weight like a man, just lose weight”.  Lots of tears after that appointment!  (I was also subjected to thousands of dollars of needless tests for gallbladder etc. but no blood work).  Almost a year later, I had one bite of licorice before I realized the first ingredient was wheat.  I thought,  “I just have a sensitivity, it probably won’t affect me much “. WRONG, I blew up like a balloon, had back and stomach pain and the lovely yellow diarrhea came back. My intestines felt like they were on fire.  So I go back to the original doctor and tell him about this reaction. He says “oh, you definitely have celiac disease”. WHAT?!?  “Let’s run an antibody test” he says.   I tell him I haven’t had a molecule of gluten for a year except for that one bite and have recently learned the test will be negative if I’m not actively eating gluten. I have crappy insurance and I have to pay for the blood work out of pocket, so what’s the point? He says “you might have antibodies, so we’re gonna go ahead and run it”. WTF!  You didn’t think to run the test a year ago when I was so bloated you were flicking my stomach like a watermelon saying “something is very wrong” so I could have an accurate diagnosis? So the doctor says I have it, but I know the test will be negative. So when people ask me if I have celiac I feel like a liar no matter what I say. Not to mention all the money wasted.  I am so frustrated I could cry.  And to add insult to injury, I took my husband out to eat today for his birthday and despite my best efforts got glutened. *sigh*.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

If you were willing to go on gluten for 12 weeks I would give you my spiel on how to order your own blood test for celiac for $300. But I suspect you're not. So I won't :)

You might be interested in purchasing a Nima sensor in order to check your food when you go to restaurants. It is a great tool for attempting to eliminate the gluten in your life. But it's not perfect so if you buy one you should read about it and watch the YouTube videos.

  • Like 1

Share this post


Link to post
Share on other sites

I have my own embarrassing and frustrating story with a F'ed up dia. I had gluten ataxia, constipation, brain fog fatigue, gut pains, etc. I got extremely looping thought processes from the ataxia that would confuse me and make me angry (snap like Mr. Hyde) topped with pain from distention etc. Was running a bucket list and about 5 doctors in before I started a gluten-free diet and got relief (mother doing frantic research suggested celiac), then I went to the doctors and like you too late for the antibody test. I ate gluten in the office for proof which included motor control loss and vomiting that got me in for a endoscope. I had not been gluten free too long so the damage still showed. I was honestly too embarrassed for years to even admit here that I got the endo scheduled and dia by eating a jack in the box breakfast sandwich in a doctors office for proof of concept lol.

PS check the FindMeGlutenFree app and try to find some 100% dedicated gluten free restaurants or caters for special events and parties. Check reviews by fellow celiacs.  And Ditto on the nima, I found it great for testing sauces, supplements or anything new into my diet or regime.

If you need help finding foods I have a whole list of gluten free options for EVERYTHING.
 

Share this post


Link to post
Share on other sites
21 minutes ago, Ennis_TX said:

I ate gluten in the office for proof which included motor control loss and vomiting that got me in for a endoscope. I had not been gluten free too long so the damage still showed. I was honestly too embarrassed for years to even admit here that I got the endo scheduled and dia by eating a jack in the box breakfast sandwich in a doctors office for proof of concept lol.

Lol. I like how you think. 😂

Share this post


Link to post
Share on other sites

tessa25, Ennis_TX. Thank you for replying. I will absolutely look into the Nima. I had no idea anything like that existed. Any help, lists, links, you care to share I would greatly appreciate. I try to be vigilant about gluten but I obviously screwed up today. I feel terrible. You’re right Tessa25, I will never put myself through this just for tests. So not worth it. Ennis_TX, i’m Also in N Texas, so if you have any suggestions for restaurants, I’d appreciate it.

Share this post


Link to post
Share on other sites
Ads by Google:
6 hours ago, Brandi1969 said:

tessa25, Ennis_TX. Thank you for replying. I will absolutely look into the Nima. I had no idea anything like that existed. Any help, lists, links, you care to share I would greatly appreciate. I try to be vigilant about gluten but I obviously screwed up today. I feel terrible. You’re right Tessa25, I will never put myself through this just for tests. So not worth it. Ennis_TX, i’m Also in N Texas, so if you have any suggestions for restaurants, I’d appreciate it.

Well I do catering and run a small gluten-free bakery myself in Ennis, heck dream of one of these days getting and running a 100% gluten free food truck. Anyway there are a few dedicated restaurants in Dallas, Across the Pond is a English pub, the owner has 2 celiac children and has a dedicated gluten free kitchen. There used to be a Mexican restaurant owned by a celiac also, but I forget the name. I have 2 places I trust and tried in San Antonio, but for the most part I cook for myself now days.

Oh if you drink the Austin Ciders here in Texas work for a beer replacement. But here is a list of other foods, I update a new list quarterly. https://www.celiac.com/forums/topic/121802-gluten-free-food-alternative-list-2018-q3/

 

  • Like 1

Share this post


Link to post
Share on other sites

Hi Brandi,

Unfortunately your diagnosis story is not real unusual.  Most celiacs are undiagnosed today.  The testing isn't perfect but the bigger problem is doctors don't bother to test people.  Or they test people wrong, after telling them to go gluten-free.

What's scary is that most people with celiac disease don't even have GI symptoms.  But they may have other symptoms like skin rash, or trouble walking, or thyroid problems, hair loss, insomnia, etc or no symptoms at all.   These people can go years without a doctor figuring out their real issue is celiac disease.

I agree with your thinking to skip the gluten challenge now.  Sometimes people take a long time to recover from a 12 week gluten challenge.  And the result is you get to go gluten-free, which you can do anyway.

You might find peppermint tea helps with bloating.  Also Pepto Bismol can help soothe the gut.

  • Like 2

Share this post


Link to post
Share on other sites
3 hours ago, Ennis_TX said:

Well I do catering and run a small gluten-free bakery myself in Ennis, heck dream of one of these days getting and running a 100% gluten free food truck. Anyway there are a few dedicated restaurants in Dallas, Across the Pond is a English pub, the owner has 2 celiac children and has a dedicated gluten free kitchen. There used to be a Mexican restaurant owned by a celiac also, but I forget the name. I have 2 places I trust and tried in San Antonio, but for the most part I cook for myself now days.

Oh if you drink the Austin Ciders here in Texas work for a beer replacement. But here is a list of other foods, I update a new list quarterly. https://www.celiac.com/forums/topic/121802-gluten-free-food-alternative-list-2018-q3/

 

Thank you SO much!  If you ship any of your baked goods as far as Granbury, please let me know. Good luck with getting into the food truck business. We need you!

Share this post


Link to post
Share on other sites
1 hour ago, GFinDC said:

Hi Brandi,

Unfortunately your diagnosis story is not real unusual.  Most celiacs are undiagnosed today.  The testing isn't perfect but the bigger problem is doctors don't bother to test people.  Or they test people wrong, after telling them to go gluten-free.

What's scary is that most people with celiac disease don't even have GI symptoms.  But they may have other symptoms like skin rash, or trouble walking, or thyroid problems, hair loss, insomnia, etc or no symptoms at all.   These people can go years without a doctor figuring out their real issue is celiac disease.

I agree with your thinking to skip the gluten challenge now.  Sometimes people take a long time to recover from a 12 week gluten challenge.  And the result is you get to go gluten-free, which you can do anyway.

You might find peppermint tea helps with bloating.  Also Pepto Bismol can help soothe the gut.

Interesting you say that. I was diagnosed with hashimotos thyroiditis several years ago before and GI symptoms cropped up. Later severe acid reflux caused me to have major surgery to control it.  Now I am wondering if it’s been celiac all along.  I’ll try the tea and pepto. My bloating is so severe and seems to only subside a little being gluten-free. Thanks so much for the help.

  • Like 1

Share this post


Link to post
Share on other sites
10 hours ago, Brandi1969 said:

Interesting you say that. I was diagnosed with hashimotos thyroiditis several years ago before and GI symptoms cropped up. Later severe acid reflux caused me to have major surgery to control it.  Now I am wondering if it’s been celiac all along.  I’ll try the tea and pepto. My bloating is so severe and seems to only subside a little being gluten-free. Thanks so much for the help.

There have been several people with hashimoto's thyroiditis on the forum.  It is one of the conditions associated with celiac disease that we have a higher than average chance of getting.

Bloating can be made worse by eating sugary and carby foods, or dairy.  So maybe cut those out for a while and see if things improve.  Simple whole foods like meats, veggies, nuts and eggs are safer.  Carby foods (rice, bread, potatoes etc) are converted to sugars in the gut and feed bacteria that cause gas.  When our guts are irritated the bacteria get going pretty fast and meanwhile our digestive system isn't working right.  So bloating happens pretty easily.

Share this post


Link to post
Share on other sites
Ads by Google:
29 minutes ago, GFinDC said:

There have been several people with hashimoto's thyroiditis on the forum.  It is one of the conditions associated with celiac disease that we have a higher than average chance of getting.

Bloating can be made worse by eating sugary and carby foods, or dairy.  So maybe cut those out for a while and see if things improve.  Simple whole foods like meats, veggies, nuts and eggs are safer.  Carby foods (rice, bread, potatoes etc) are converted to sugars in the gut and feed bacteria that cause gas.  When our guts are irritated the bacteria get going pretty fast and meanwhile our digestive system isn't working right.  So bloating happens pretty easily.

SO basically i need to go low carb to get rid of this bloat and terrible gas. That makes sense.  Even though my other symptoms are so much better with no gluten, the bloat/gas hasn’t really improved at all. Thanks for the info. I hadn’t thought bacteria was the problem.

Share this post


Link to post
Share on other sites

Read the Newbie 101 which is pinned to the top of the Coping section. There are oodles of tips there.

  • Like 1

Share this post


Link to post
Share on other sites
Posted (edited)
On 7/12/2018 at 8:41 PM, Brandi1969 said:

SO basically i need to go low carb to get rid of this bloat and terrible gas. That makes sense.  Even though my other symptoms are so much better with no gluten, the bloat/gas hasn’t really improved at all. Thanks for the info. I hadn’t thought bacteria was the problem.

Hi Brandi,

Yes, that's the ticket.  Eliminate the easy to eat bacteria foods that they love to consume.  Normally when our digestive system is working right we don't have huge problems with those foods.  But when things are out of whack due to celiac damage all bets are off.

The other big potential problem food is all milk. There is an enzyme made by the villi lining the small intestine that breaks down milk sugar.  When those villi are damaged, the enzyme is missing and the sugar (lactose) becomes bacteria food.   So it is often a good idea to skip dairy for the first few months of the gluten-free diet.  If things go well, the villi will begin to heal and start making the dairy enzyme (lactase) again.

You may be able to eat hard cheese though as most of the lactose is already broken down by the cheese making process.

Edited by GFinDC

Share this post


Link to post
Share on other sites

Sorry to hear you're dealing with all that... I have a similar story with some different symptoms. So many doctors either don't know much about Celiac/gluten intolerance and are trying to keep up the authoritative facade, or just have their mental database of similar lists of symptoms with different labels.

Despite my obvious and quick reactions to gluten and soy, for example... I've had doctors suppose I have an STD, accuse me of hypochondria and chuckle, tell me I'm just getting old, etc...

With the whole gluten free thing being more popular and mainstream now, hopefully some of the medical school graduates of more recent times will make it their business to better understand Celiac, and food intolerances/allergies of various kinds. As you said, the symptoms are miserable, I think I would describe it in their terms as having the flu and a cold and bipolar disorder all at the same time, when I first had the reactions that alerted me to the possibility that I no longer tolerate gluten or soy.

Anyway, best wishes to you getting through this bs. Hopefully karma is a thing and I mean, you were taking your husband out for his birthday... not drunkenly chomping on a slice of pizza by your own choices leading to impaired judgments. But even if that were the case, no one deserves to suffer these things.

Share this post


Link to post
Share on other sites
21 hours ago, GFinDC said:

Hi Brandi,

Yes, that's the ticket.  Eliminate the easy to eat bacteria foods that they love to consume.  Normally when our digestive system is working right we don't have huge problems with those foods.  But when things are out of whack due to celiac damage all bets are off.

The other big potential problem food is all milk. There is an enzyme made by the villi lining the small intestine that breaks down milk sugar.  When those villi are damaged, the enzyme is missing and the sugar (lactose) becomes bacteria food.   So it is often a good idea to skip dairy for the first few months of the gluten-free diet.  If things go well, the villi will begin to heal and start making the dairy enzyme (lactase) again.

You may be able to eat hard cheese though as most of the lactose is already broken down by the cheese making process.

Yeah, dairy is definitely not my friend. I seem to be able of handle a little mozzarella cheese, but milk, ice cream etc. are no go.

Share this post


Link to post
Share on other sites
8 hours ago, Brogrammer said:

Sorry to hear you're dealing with all that... I have a similar story with some different symptoms. So many doctors either don't know much about Celiac/gluten intolerance and are trying to keep up the authoritative facade, or just have their mental database of similar lists of symptoms with different labels.

Despite my obvious and quick reactions to gluten and soy, for example... I've had doctors suppose I have an STD, accuse me of hypochondria and chuckle, tell me I'm just getting old, etc...

With the whole gluten free thing being more popular and mainstream now, hopefully some of the medical school graduates of more recent times will make it their business to better understand Celiac, and food intolerances/allergies of various kinds. As you said, the symptoms are miserable, I think I would describe it in their terms as having the flu and a cold and bipolar disorder all at the same time, when I first had the reactions that alerted me to the possibility that I no longer tolerate gluten or soy.

Anyway, best wishes to you getting through this bs. Hopefully karma is a thing and I mean, you were taking your husband out for his birthday... not drunkenly chomping on a slice of pizza by your own choices leading to impaired judgments. But even if that were the case, no one deserves to suffer these things.

Wow, I hate that your doctor treated so badly.  Here’s hoping you’re right about karma.  I feel like many doctors have a god complex. Its like they thought I was stupid and due to my lack of a medical degree, couldn’t possibly know that something was actually wrong with my body. I am just so tired of being patronized. We shouldn’t dread going to the doctors who took an oath to help us.

23 hours ago, squirmingitch said:

Read the Newbie 101 which is pinned to the top of the Coping section. There are oodles of tips there.

Will do, thanks for the info. 🙂

Share this post


Link to post
Share on other sites

Hi Brandi,  

I totally understand where you're coming from. I was just received my diagnosis a couple days ago and honestly, while it's a relief to finally know what's going on...it was an uphill battle to reach this point. Looking back at all the symptoms I have, I've had a lot of them since I was 11 or 12 (I'm 33 now) and every doctor just brushed them off as something else. It's taken me way too long, but somewhere in the last few months I remembered I had a voice lol...by that I simply mean that I started being very vocal about how I was feeling and what I wanted next (ie...celiac testing). Before I basically demanded celiac blood work, my primary care doc (who I've seen for the last 6 years, with the same symptoms each time) looked at me this last time, and told me I needed to lose weight because that would fix my problems. He told me that a lot of times people see gluten free as a trend to lose weight and it doesn't work like that and instead told me to exercise more instead of doing the latest trends. He then proceeded to tell me that since I'd been reading thru the list of possible symptoms, some of them may just be in my head. We sat in awkward silence for about 5 minutes while he typed out notes on the computer, then he turned to me and told me he was going to write me a prescription for anti depressants 😑. I lost it with him after that...I told him I didn't want/need anti depressants, I wanted/needed to know what was going on with my body and then told I wasn't leaving the exam room until I had an order for celiac testing. When that wasn't enough to get him to take me seriously I asked for a referral to a gastroenterologist. Fast forward to my first appointment with the gastroenterologist, he went thru my symptoms and he looked at me and said "So, you either have a really bad case of non-celiac gluten sensitivity or you actually have celiac. Either way gluten is not your friend, you need to quit eating it." He ordered testing just to be sure and when he gave me my results, he said it was pretty much the results he expected; I have celiac and that I needed to stay clear of all gluten. Honestly, I think I was actually excited to have the diagnosis, I know it's going to be a challenge to adjust to at first, but I'm glad to know what's going on. I only wish it hadn't taken my so many years and one very useless primary care doctor to find out.... 

  • Like 1

Share this post


Link to post
Share on other sites
4 hours ago, Susie0612 said:

Hi Brandi,  

I totally understand where you're coming from. I was just received my diagnosis a couple days ago and honestly, while it's a relief to finally know what's going on...it was an uphill battle to reach this point. Looking back at all the symptoms I have, I've had a lot of them since I was 11 or 12 (I'm 33 now) and every doctor just brushed them off as something else. It's taken me way too long, but somewhere in the last few months I remembered I had a voice lol...by that I simply mean that I started being very vocal about how I was feeling and what I wanted next (ie...celiac testing). Before I basically demanded celiac blood work, my primary care doc (who I've seen for the last 6 years, with the same symptoms each time) looked at me this last time, and told me I needed to lose weight because that would fix my problems. He told me that a lot of times people see gluten free as a trend to lose weight and it doesn't work like that and instead told me to exercise more instead of doing the latest trends. He then proceeded to tell me that since I'd been reading thru the list of possible symptoms, some of them may just be in my head. We sat in awkward silence for about 5 minutes while he typed out notes on the computer, then he turned to me and told me he was going to write me a prescription for anti depressants 😑. I lost it with him after that...I told him I didn't want/need anti depressants, I wanted/needed to know what was going on with my body and then told I wasn't leaving the exam room until I had an order for celiac testing. When that wasn't enough to get him to take me seriously I asked for a referral to a gastroenterologist. Fast forward to my first appointment with the gastroenterologist, he went thru my symptoms and he looked at me and said "So, you either have a really bad case of non-celiac gluten sensitivity or you actually have celiac. Either way gluten is not your friend, you need to quit eating it." He ordered testing just to be sure and when he gave me my results, he said it was pretty much the results he expected; I have celiac and that I needed to stay clear of all gluten. Honestly, I think I was actually excited to have the diagnosis, I know it's going to be a challenge to adjust to at first, but I'm glad to know what's going on. I only wish it hadn't taken my so many years and one very useless primary care doctor to find out.... 

Wow.  Thank you for sharing sharing your story.  So how sad is it that my initial instinct was to congratulate you on your diagnosis!  Of course they wanted to give you antidepressants. Honestly I think doctors think if they give us happy pills, we’ll just go away. I hate that you’ve suffered so long with this, but I really am thrilled you know definitively what’s wrong and what to do about it. Good for you for being so vocal. Honestly I wish I had understood how important it was to be tested while eating gluten.  I would have insisted on it, instead of letting the doctor insult me and treat me  like a fat, crazy, hypochondriac.

Share this post


Link to post
Share on other sites
6 hours ago, Susie0612 said:

Hi Brandi,  

I totally understand where you're coming from. I was just received my diagnosis a couple days ago and honestly, while it's a relief to finally know what's going on...it was an uphill battle to reach this point. Looking back at all the symptoms I have, I've had a lot of them since I was 11 or 12 (I'm 33 now) and every doctor just brushed them off as something else. It's taken me way too long, but somewhere in the last few months I remembered I had a voice lol...by that I simply mean that I started being very vocal about how I was feeling and what I wanted next (ie...celiac testing). Before I basically demanded celiac blood work, my primary care doc (who I've seen for the last 6 years, with the same symptoms each time) looked at me this last time, and told me I needed to lose weight because that would fix my problems. He told me that a lot of times people see gluten free as a trend to lose weight and it doesn't work like that and instead told me to exercise more instead of doing the latest trends. He then proceeded to tell me that since I'd been reading thru the list of possible symptoms, some of them may just be in my head. We sat in awkward silence for about 5 minutes while he typed out notes on the computer, then he turned to me and told me he was going to write me a prescription for anti depressants 😑. I lost it with him after that...I told him I didn't want/need anti depressants, I wanted/needed to know what was going on with my body and then told I wasn't leaving the exam room until I had an order for celiac testing. When that wasn't enough to get him to take me seriously I asked for a referral to a gastroenterologist. Fast forward to my first appointment with the gastroenterologist, he went thru my symptoms and he looked at me and said "So, you either have a really bad case of non-celiac gluten sensitivity or you actually have celiac. Either way gluten is not your friend, you need to quit eating it." He ordered testing just to be sure and when he gave me my results, he said it was pretty much the results he expected; I have celiac and that I needed to stay clear of all gluten. Honestly, I think I was actually excited to have the diagnosis, I know it's going to be a challenge to adjust to at first, but I'm glad to know what's going on. I only wish it hadn't taken my so many years and one very useless primary care doctor to find out.... 

Susie, why don't you send that primary care doc a copy of your positive celiac panel along with the notes from your gastro dx'ing you with celiac -- or better yet, make an appt. with him & hand them to him in person. Maybe he'll learn something.

To all of you --- the things you're saying and what you're being told by the docs who brush you off, blame your weight & want to put you on happy pills..... I wish I had a penny for every instance of that kind of treatment we've heard about. 

  • Like 1

Share this post


Link to post
Share on other sites
5 hours ago, Brandi1969 said:

Wow.  Thank you for sharing sharing your story.  So how sad is it that my initial instinct was to congratulate you on your diagnosis!  Of course they wanted to give you antidepressants. Honestly I think doctors think if they give us happy pills, we’ll just go away. I hate that you’ve suffered so long with this, but I really am thrilled you know definitively what’s wrong and what to do about it. Good for you for being so vocal. Honestly I wish I had understood how important it was to be tested while eating gluten.  I would have insisted on it, instead of letting the doctor insult me and treat me  like a fat, crazy, hypochondriac.

Haha not sad at all that you wanted to congratulate me on the diagnosis...as odd as it sounds, I was thrilled lol, I finally had answers! I'm sorry you've had to go thru what you've gone thru. Honestly, it took me years to find that voice and be vocal about my care...I always assumed the doctor was right...you know, since they're the doctor and all lol.  The only reason I knew I needed to keep consuming gluten for my testing is because when looking up the symptoms of celiac and testing done for, everything I read kept saying you need to be consuming gluten for the test. If I had stopped eating it before testing, there's no way I would have reintroduced it into my diet, I would have just gone on assuming I had at least a gluten sensitivity and left it at that. But I'm stubborn and I wanted answers. You mentioned licorice being one of your culprits...I used to eat red vines all the time, never looking at what was in them, so I never assumed that they were giving me problems...I was both shocked and sad when I realized I could no longer eat them lol! 

Share this post


Link to post
Share on other sites
Ads by Google:
4 hours ago, squirmingitch said:

Susie, why don't you send that primary care doc a copy of your positive celiac panel along with the notes from your gastro dx'ing you with celiac -- or better yet, make an appt. with him & hand them to him in person. Maybe he'll learn something.

To all of you --- the things you're saying and what you're being told by the docs who brush you off, blame your weight & want to put you on happy pills..... I wish I had a penny for every instance of that kind of treatment we've heard about. 

That's a good idea! When he was walking out of the exam room I told him that when it came time for him to need a doctor, I hope he got one with more compassion, understanding and a better bed side manner than he had...he just looked at me and walked out 🙄

As for dealing with blaming my weight and wanting me to be on happy pills, I assumed it was just me that was being told crap like that and that maybe my doctor was right. It wasn't until I stumbled across this site that I realized it wasn't just me dealing with those kinds of comments/crappy care from the doctor. 

Share this post


Link to post
Share on other sites
11 hours ago, Susie0612 said:

Haha not sad at all that you wanted to congratulate me on the diagnosis...as odd as it sounds, I was thrilled lol, I finally had answers! I'm sorry you've had to go thru what you've gone thru. Honestly, it took me years to find that voice and be vocal about my care...I always assumed the doctor was right...you know, since they're the doctor and all lol.  The only reason I knew I needed to keep consuming gluten for my testing is because when looking up the symptoms of celiac and testing done for, everything I read kept saying you need to be consuming gluten for the test. If I had stopped eating it before testing, there's no way I would have reintroduced it into my diet, I would have just gone on assuming I had at least a gluten sensitivity and left it at that. But I'm stubborn and I wanted answers. You mentioned licorice being one of your culprits...I used to eat red vines all the time, never looking at what was in them, so I never assumed that they were giving me problems...I was both shocked and sad when I realized I could no longer eat them lol! 

Yep, licorice. Green apple I used to love.  After 10 mos gluten free one bite made me so ill I couldn’t believe it.  It was so bad that I will never touch gluten again. But if it hadn’t happened the word “celiac” would never have come into my doctors consciousness.

Share this post


Link to post
Share on other sites
6 hours ago, Ennis_TX said:

Off topic but on the licorice note....there are several Gluten Free ones. 

https://yumearth.com/products/licorice
https://candytree.eu/en/
 

You can order by brand on luckyvitamin.com vitacost.com or amazon

Ennis_TX, thanks for this link....you just might be my new favorite person lol! 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
6 6

  • Who's Online   7 Members, 0 Anonymous, 150 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Did You Miss the Gluten-Free Fireworks This Past Fourth of July?
    Celiac.com 08/14/2018 - Occasionally, Celiac.com learns of an amusing gluten-free story after the fact. Such is the case of the “Gluten-Free Fireworks.” 
    We recently learned about a funny little event that happened leading up to Fourth of July celebrations in the town of Springdale in Northwest Arkansas. It seems that a sign advertising "Gluten Free Fireworks" popped up near a fireworks stand on interstate 49 in Springdale. 
    In case you missed the recent dose of Fourth of July humor, in an effort to attract customers and provide a bit of holiday levity, Pinnacle Fireworks put up a sign advertising "gluten-free fireworks.” 
    The small company is owned by Adam Keeley and his father. "A lot of the people that come in want to crack a joke right along with you," Keeley said. "Every now and then, you will get someone that comes in and says so fireworks are supposed to be gluten-free right? Have I been buying fireworks that have gluten? So then I say no, no they are gluten-free. It's just a little fun."
    Keeley said that their stand saw a steady flow of customers in the week leading up to the Fourth. In addition to selling “gluten-free” fireworks, each fireworks package sold by Pinnacle features a QR code. The code can be scanned with a smartphone. The link leads to a video showing what the fireworks look like.
    We at Celiac.com hope you and your family had a safe, enjoyable, and, yes, gluten-free Fourth of July. Stay tuned for more on gluten-free fireworks and other zany, tongue-in-cheek stories.
    Read more at kark.com
     

    Jefferson Adams
    Stress-Related Disorders Associated with Higher Risk for Autoimmune Disease
    Celiac.com 08/13/2018 - It’s not uncommon for people to have psychiatric reactions to stressful life events, and these reactions may trigger some immune dysfunction. Researchers don’t yet know whether such reactions increase overall risk of autoimmune disease.
    Are psychiatric reactions induced by trauma or other life stressors associated with subsequent risk of autoimmune disease? Are stress-related disorders significantly associated with risk of subsequent autoimmune disease?
    A team of researchers recently set out to determine whether there is an association between stress-related disorders and subsequent autoimmune disease. The research team included Huan Song, MD, PhD; Fang Fang, MD, PhD; Gunnar Tomasson, MD, PhD; Filip K. Arnberg, PhD; David Mataix-Cols, PhD; Lorena Fernández de la Cruz, PhD; Catarina Almqvist, MD, PhD; Katja Fall, MD, PhD; Unnur A. Valdimarsdóttir, PhD.
    They are variously affiliated with the Center of Public Health Sciences, Faculty of Medicine, University of Iceland, Reykjavík, Iceland; the Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; the Department of Epidemiology and Biostatistics, Faculty of Medicine, University of Iceland, Reykjavík, Iceland; the Department of Rheumatology, University Hospital, Reykjavík, Iceland; the Centre for Rheumatology Research, University Hospital, Reykjavík, Iceland; the National Centre for Disaster Psychiatry, Department of Neuroscience, Psychiatry, Uppsala University, Uppsala, Sweden; the Stress Research Institute, Stockholm University, Stockholm, Sweden; the Centre for Psychiatry Research, Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden; the Stockholm Health Care Services, Stockholm County Council, Stockholm, Sweden; the Astrid Lindgren Children’s Hospital, Karolinska University Hospital, Stockholm, Sweden; the Clinical Epidemiology and Biostatistics, School of Medical Sciences, Örebro University, Örebro, Sweden; the Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; and the Department of Epidemiology, Harvard T.H. Chan School of Public Health, Boston, Massachusetts.
    The team conducted a Swedish register-based retrospective cohort study that included 106, 464 patients with stress-related disorders, 1,064 ,640 matched unexposed individuals, and 126 ,652 full siblings to determine whether a clinical diagnosis of stress-related disorders was significantly associated with an increased risk of autoimmune disease.
    The team identified stress-related disorder and autoimmune diseases using the National Patient Register. They used Cox model to estimate hazard ratios (HRs) with 95% CIs of 41 autoimmune diseases beyond 1 year after the diagnosis of stress-related disorders, controlling for multiple risk factors.
    The data showed that being diagnosed with a stress-related disorder, such as post-traumatic stress disorder, acute stress reaction, adjustment disorder, and other stress reactions, was significantly associated with an increased risk of autoimmune disease, compared with matched unexposed individuals. The team is calling for further studies to better understand the associations and the underlying factors.
    Source:
    JAMA. 2018;319(23):2388-2400. doi:10.1001/jama.2018.7028  

    Jefferson Adams
    Gluten-Free Bacon-Wrapped Chicken Breasts
    Celiac.com 08/11/2018 - Need a quick, easy, reliable gluten-free dish that will satisfy everyone and leave the cook with plenty of time to relax? This recipe is sure to do the trick. Best of all, it's super easy. Just grab some chicken breasts, season them, hit them with a sprig of rosemary, wrap some bacon around them, and chuck them on the grill and call it dinner. Okay, you can add some rice and veggies.
    Ingredients:
    4 skinless, boneless chicken breast halves 4 thick slices bacon 4 teaspoons garlic powder 4 small sprigs fresh rosemary salt and pepper to taste Directions:
    Heat an outdoor grill to medium-high heat, and lightly oil the grate.
    Sprinkle 1 teaspoon garlic powder on a chicken breast and season with salt and pepper. 
    Place a rosemary sprig on each chicken breast. 
    Wrap the bacon around the chicken and the rosemary. 
    Hold bacon in place with a toothpick or extra rosemary stem.
    Cook the chicken breasts until no longer pink in the center and the juices run clear, about 8 minutes per side. 
    Keep an eye out for any grill flare ups from the bacon grease. 
    Remove the toothpicks and serve with steamed rice and your favorite vegetables for a winning meal.

    Connie Sarros
    Five-Minute Healthy Breakfasts
    Celiac.com 08/10/2018 - You’ve heard for years that it’s wise to start your day with a healthy breakfast.  Eating food first thing in the morning gets your metabolism revved so you have energy throughout the day.  There’s also the issue of incorporating healthy foods into your first meal of the day.  Ideally, every meal should include fiber and foods from a variety of food groups.  But the reality is that most people don’t have time in the morning to create an involved meal.  You’re busy getting ready for work, packing the kids’ lunches and trying to get everyone out of the door on time.  
    Don’t fret.  The task of preparing a healthy breakfast just got easier.  You can make 5-minute breakfasts and, with a little bit of planning, you can sneak fiber into those meals without spending a lot of extra time with preparation.  An ideal breakfast will include whole grains (from gluten-free cereals, breads, muffins, or uncontaminated oats), a low-fat dairy item (1% milk, low-fat yogurt, or low-fat cheese), and a source of protein (such as peanut butter or eggs).  Adding fruit is a plus.  
    If you can tolerate uncontaminated oats, make a bowl of oatmeal and add a little extra fiber by stirring in chopped walnuts and dried cranberries.  If you like scrambled eggs, toss some fresh spinach (sliced into thin strips), 1 chopped canned artichoke heart, two tablespoons crumbled feta cheese, and a dash of Italian seasoning to the egg as it cooks.  
    If you have time on weekends to make healthy gluten-free pancakes (which  means that you added perhaps flax seed meal or shredded apples or something that qualifies as fiber to the batter), then freeze the pancakes between sheets of wax paper, place them in a freezer bag, and freeze so they’ll be handy on busy weekday mornings.  If you don’t have time to make them prior to need, you can always use commercial frozen gluten-free pancakes.  In a bowl, mix together a few raisins, half of a chopped pear or apple, a few dashes of cinnamon and a couple of tablespoons of chopped walnuts.  Spoon this mixture down the centers of two toasted (or microwaved) pancakes, drizzle each with 1 teaspoon of pancake or maple syrup, then fold in the sides of the pancakes to make two breakfast sandwiches.
    Brown rice is brown because the bran layer is still on the rice, and the bran layer is the part that’s so high in fiber.  White rice is much lower in fiber and has less nutritional value.  Brown rice isn’t just for dinner anymore.  It offers a nice breakfast alternative from traditional hot cereals.  The next time you make brown rice for dinner, make a little extra and save some for breakfast the next morning.  In the A.M., mix the rice (about 1 cup) with a few chopped pecans, a few raisins, 1/2 cup milk, 3 tablespoons pancake syrup, a dash each of vanilla and cinnamon, then microwave the mixture for 1 minute, stirring once after 30 seconds.  Let it sit for 30 seconds to thicken before eating.  Or stir together 1 cup cooked brown rice, 1/4 teaspoon cinnamon, 1/2 navel orange diced, some chopped dates, dried cranberries, and shredded coconut; heat this in the microwave and then top it off with 1/2 cup low-fat vanilla yogurt.
    Just a note about using the microwave—it’s not an exact science.  Different ovens have different power levels so what cooks in 30 seconds in one person’s microwave may take 45 seconds in someone else’s unit.  Unless you want the food to splatter all over the sides of the oven, you’ll need to cover any liquids or soft foods with waxed paper.  
    There will be days when you don’t have time to sit down at the table and enjoy a leisurely breakfast.  On these days, make a “grab-and-go” breakfast that you can take with you.  Gluten-free wraps keep for several weeks in the refrigerator and they make great fill-and-go containers on busy mornings.  Spread a wrap with peanut butter, sprinkle some fortified gluten-free dry cereal on top, then drizzle with a teaspoon of pancake syrup; roll up the wrap and you have the perfect dashboard dining breakfast to eat on the way to work.  Or scramble an egg, spoon it down the center of the wrap, and then top it off with a little salsa and pepper-jack cheese before rolling it up. If you only have three minutes before you have to leave the house, spoon some low-fat cottage cheese into a cup, stir in a dash of cinnamon, top with a little low-fat gluten-free granola or fortified dry gluten-free cereal, sprinkle berries or chopped peaches over the top, grab a spoon, and you’re ready to go!
    Smoothies can be made in literally one minute.  Toss some frozen raspberries into a blender, add a 12-ounce container of low-fat lemon yogurt, a little milk, and two teaspoons of vanilla; blend, then pour the mixture into a large plastic cup.
    If you oversleep, don’t panic.  Have some back-up foods on hand that you can grab and eat en route to work, like a gluten-free protein bar and a banana, or a bag of nuts and dried fruit, or flax seed crackers with a handful of cheese cubes, or toss some gluten-free granola over a container of yogurt and grab a spoon to take along.
    All of the above suggestions can be made in five minutes or less.  Take the time to start your day off with a healthy breakfast—you deserve to do that for yourself and for your family.
    Apple English Muffins by Connie Sarros
    This recipe is from my newly-released book Student’s Vegetarian Cookbook for Dummies.  While this isn’t a gluten-free cookbook, most of the recipes are naturally gluten-free or can very easily be converted to gluten-free.  
    Preparation time:  4 minutes.  Cooking time:  30 seconds.  Yield:  1 serving
    Ingredients:
    1 tablespoon peanut butter  1 gluten-free English muffin, toasted  1/8 large apple, peeled, cored and sliced thin ½ teaspoon butter  ¾ teaspoon brown sugar 1/8 teaspoon cinnamon Directions:
    Spread peanut butter on one toasted English muffin half.  Lay the apple slices on top. In a small microwave safe bowl, heat the butter in the microwave on high for 15 seconds.  Stir in the brown sugar and cinnamon then nuke for another 15 seconds.  Stir until smooth.  (If necessary, pop it back into the microwave until the brown sugar melts).   Drizzle the cinnamon mixture over the apple slices then place the second half of the English muffin on top. Note:  If you’re out of apples, use a pear, ripe peach or nectarine, mango, or even a banana.

    Jefferson Adams
    Can a New Gluten-Free Cricket-Flour Cookbook Turn Americans on to Eating Bugs?
    Celiac.com 08/09/2018 - Whatever one might say about crawfish, shrimp and crustaceans in general, Americans don’t typically eat bugs. Can a former Ralph Lauren marketing executive turn the world on to flour made from crickets?
    Over the last few years, Americans have been presented with a buffet of alternative proteins and meals. Robyn Shapiro’s company, Seek, has created all-purpose, gluten-free, and Paleo blended flours, which can be used cup for cup in any recipe calling for flour. 
    The company, which makes pure cricket powder for smoothies, ice creams, and other liquid-based foods, is now selling cinnamon-almond crunch cricket protein and snack bites. To get the public interested in its cricket protein and cricket flour products, Shapiro has collaborated with famous chefs to create recipes for The Cricket Cookbook. 
    The book’s cast includes La Newyorkina chef Fany Gerson, a Mexico City native known for her cricket sundaes; noted Sioux chef and cookbook author Sean Sherman; and former Noma pastry chef Ghetto Gastro member, Malcolm Livingston, among others.
    Other companies have sought to promote the benefits of insect protein, including Chapul, which makes cricket protein bars and powders, and Exo, which makes dairy- and gluten-free cricket protein bars in flavors like cocoa nut and banana bread. These companies, along with others in the business tend to aim their products at Paleo dieters by promising more protein and no dairy.
    Seek’s chef-focused approach makes it unique. By pairing with noted chefs who already use bugs and bug protein in their cooking, Shapiro is looking to make the public more comfortable and confident in using bugs to cook and bake. So far, the response has been slow, but steady. Seek has already raised nearly $13,000 from 28 backers, well on its way toward its $25,000 goal. 
    Seek’s cricket flours and other products will initially only be available via Kickstarter. If that goes well, the products will be sold on Seek’s website. Early backers will get a discount and a chance for a signed copy of the book. Seek hopes to debut their products nationwide starting in the fall. 
    Could gluten-free cricket flour and the new cookbook be the next big gluten-free Christmas gift? Stay tuned for more on this and other gluten-free stories.
    Source:
    grubstreet.com