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Breezy1

How quickly does ferritin drop in untreated celiac?

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Hi! I haven’t posted in awhile, still haven’t gotten a diagnosis but I’ve finally gone in to see my family doctor and hoping to get proper testing done. 

Awhile back I had some regular blood work done and my ferritin was low, at 27 (lab range said under 50 was probable iron deficiency) and one celiac test ttg iga which was negative. 

Recently I went to my doctor and he ordered a complete blood count as well as ferritin, and thyroid test. My hemoglobin was normal, but my ferritin has dropped to 18, and my thyroid dropped as well but is still in normal range. 

So, I’m wondering if my ferritin dropping from 27 to 18 in roughly 7 months is a big drop? I’m still having all my symptoms, migraines, stomach aches, bloating, diarrhea, dizziness, constant heartburn, muscle/joint pain, memory problems, anxiety, depression, but some of them have gotten worse over the last little bit. 

I see my doctor to go over my results in a week and plan on asking for the celiac panel, but I was just wondering if anyone here had ferritin levels drop like this before diagnosis, or would they drop faster? I eat a lot of foods that are high in iron so I don’t understand what else the problem could be!

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I was told eating all the iron you want will not really help much if your body cannot absorb the iron for storage. My ferritin is at 17 and tried to consume meat and other high iron foods with no luck.  I think it is a good idea for additional testing for Celiac. By all your symptoms it sure sounds like Celiac. I know it is frustrating. In my case my Doc 5 years ago (new Doc now) just ignore the low ferritin and elevated liver enzyme results. Good to hear you are on it. More blood work and endoscopy probably would be useful.

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Breezy1,

Jherm21 had a similar question(s) about Iron.

vvicin02 is right.

36 minutes ago, vvicin02 said:

I was told eating all the iron you want will not really help much if your body cannot absorb the iron for storage.

See this recent thread in another topic about Iron.  You might be also low in B-12 too and/or Vitamin D and will want to be tested for these deficiencies.

Also try taking 200mg Magnesium Cirate with meals to help with any fatigue issues you might be having from your low iron levels.

I hope this is helpful but it is not medical advice.

Good luck on your continued journey.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the Grace of God,

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