Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Testing Advice

Melissa33

Recommended Posts

Melissa33 Newbie
Melissa33
Posted

Hi everyone- My daughter tested positive (IgA and tag IgA) in March while presenting with a subcutaneous manifestation of Lupus called Chilblains. Ugh- yes all at once. They were ordered by her Rheumatologist and shared with the Ped. GI. 

She is 12 and she's 5'8 and 100 pounds. No symptoms like belly pain, etc but her diet was poor and anemia was very concerning. She has always been a very picky eater. Mac and Cheese was her go-to. So, now we are seeing a GI and he wants to run the same bloodwork. She has been gluten free since March 30. What would those of you with experience do with your child:

1- Start gluten again- her bloodwork is next week. 

2. Stay gluten free and remind her doc of the gluten-free diet.

3. I have no other clue at this point.

Any help or advice would be a blessing. Thanks to all.

 

 

Link to comment
Share on other sites
  • 6 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

I'm sorry you didn't get a fast reply, normally we do better. 

A formal diagnosis of celiac disease can only be made while someone is eating gluten, typically on a daily basis at least 2 months before testing. Only you know how badly it will affect her, and must decide whether or not it is worth it. The biggest issue for someone so young is whether or not they will continue their diet for life if they don't have a formal diagnosis.

Most doctors would likely recommend getting a formal diagnosis.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,173
    • Most Online (within 30 mins)
      7,748
    Art34
    Newest Member
    Art34
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      Sore muscles

      By Eldene · Posted

      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      Trader Joe's grocery prodcuts

      By LovintheGFlife · Posted

      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      Gluten challenge

      By Beverley Ann Johnson · Posted

      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
    • Denise I
      Celiac Disease Dietician

      By Denise I · Posted

      I did reach out to them on April 4th and left a message. I will try calling again. Thank you!
×
×
  • Create New...