Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


DH ,Lichen sclerosis and now oral Lichen planus

Rate this topic

Recommended Posts

I am 74 yr old female, dx with DH 2011, after 7 yrs telling docs.... "its not eczema" so I am still on Dapsone 1 tab a day......I am very careful with my diet, but when I go out to eat I sometimes get caught....I have been having trouble with a sore mouth on and off for about 12 months and this last year getting very sore....doc. put me on anti fungal tabs o n 2 different occasions ...it didn't work,so eventually sent to ENT who has dx she thinks (waiting for results of biopsy) its Oral Lichen Planus....I was dx with Lichen sclerosis about 2012, and use a strong steroid cream, Clobetasol, which keeps it reasonably under control

Does anyone out there also have these 3 skin conditions?



Share this post

Link to post
Share on other sites

Hi Betty,

Welcome to the forum! :)

I don't have DH myself, but we do have members with it who check in fairly often.  Hopefully you'll get responses from them.

In the meantime though, you can try searching for info using the magnifier near the top right side of the forum banner.  It should be under your user name.  You may find some old post by people with the conditions you are interested in.

I did a search on lichen planus below.  The first 5 or so links are advertisements, so ignore those.

https://www.celiac.com/search/?q=lichen planus&fromCSE=1

Here is a link to search on lichen sclerosis:

Advertisments are at the top also.

https://www.celiac.com/search/?q=lichen sclerosis&fromCSE=1

Share this post

Link to post
Share on other sites

Welcome to the board Betty. Do be sure to read the Newbie 101 thread at the top of the Coping page. Being gluten free and staying safe is a bit more complicated than just the food we choose. While I don't have LP I do have DH.  I never took Dapsone even though my DH was severe before diagnosis. I had been on so many meds for so many years that I just wanted a life without pills. In addition the side effects can be nasty and I had some liver impact from the celiac so I didn't want to risk it. I do hope your doctor has been doing regular blood work to check liver function etc. I am going to post a link to the side effects so you and your doctor can decide if you want to stay on the drug.


There can be some rebounding of the DH, from what folks have stated, when the med is stopped. You still likely have antibodies lurking in and those need time to clear. Limiting iodine can help. I just switched from iodized salt and made sure there was none in any supplements but many have to avoid high iodine foods for a bit also. Iodine is an important nutrient so do be sure to add it back in when you stop getting new lesions.

There are folks who have gotten relief from LP gluten free so that may clear up for you on it's own. Have they done any follow-up blood work since your diagnosis to see if your antibody levels have gone down?  Be aware that if you are on or using steroid pills or creams that can cause a false negative with blood testing. If you levels need to be checked then you need to stop the cream for a time.

Please try to eat as much unprocessed food as you can for a bit and only eat out in places that you know for sure are using safe practices. I hope things improve for you soon.



Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.

    • July 08, 2019 Until July 09, 2019
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
  • Create New...