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weebl

DH biopsy

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About two weeks in to my gluten challenge. I guess you could say it's going well. 

It has gotten easier psychologically to eat foods containing gluten, and I have managed to include significant gluten in each meal, each day. 

Reaction in terms of my suspected DH has been as expected, and the rash and itchiness is back in full force. 

Some Googling seems to indicate that the ATTG blood test in this province actually contains most if not all of the full Celiac panel. So that is good. But I also know with DH, I will still likely test negative. 

I have a December appointment booked with my family doctor. I plan on going to the lab for blood work 1 week prior (and plan to stay on gluten until after I see my doctor). 

I also requested that I have a biopsy done and this is where I need help. 

Those who have had it, is it always a punch biopsy? Is there an authoritative source online I can print off regarding the proper procedure to my doctor? (I suspect he will have already looked into that, but I don't want to leave it to chance). 

Lastly, once my appointment is done, do I go gluten-free again at that point or should I wait for the biopsy? Assuming of course the blood work didn't come back positive, in which case the biopsy will be unnecessary. 

 

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https://celiac.org/about-celiac-disease/related-conditions/dermatitis-herpetiformis/

I would also print this out & bring it b/c the diagnostic criteria in regards to dh & celiac changed in 2012. Since then, all that is required is a positive dh biopsy -- no further testing is needed.

http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/

 

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BTW, you don't have to kill yourself with gluten. A bowl of pasta or a slice of bread or a couple of crackers each day is enough. You don't have to eat gluten at every meal. Remember, every time you eat gluten, those antibodies are being deposited under your skin. Once there, they are like little grenades just sitting until something triggers them to explode so don't eat any more gluten than what it takes to get the job done.

Also, you could read this for when the time comes & you go gluten free again. The Newbie 101 which is pinned to the top of the Coping section. This will help you to stay safe, explain what kitchen items you need to replace & which you don't. 

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Thanks. Anxiously awaiting my appointment now. 

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On 11/21/2018 at 6:50 PM, weebl said:

Lastly, once my appointment is done, do I go gluten-free again at that point or should I wait for the biopsy? Assuming of course the blood work didn't come back positive, in which case the biopsy will be unnecessary. 

 

Sorry, I missed answering your last question there. Keep eating gluten until the biopsy is done. 

Hang in there!

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