Jump to content
Frequently Asked Questions About Celiac Disease Read more... ×
  • Sign Up

Rate this topic

Recommended Posts

I was diagnosed with Celiac in March of 2018 and, since then, I have adhered to a strict gluten free diet. I was just told that, though my initial levels were around 51, they are now up in the low hundreds. This makes NO sense to me seeing as I check everything and am super careful to make sure I am not eating anything with gluten in it. Why would my levels go up after completely cutting out gluten??? 

Share this post


Link to post
Share on other sites

Posting full results maybe someone can give better insight. My thoughts are that perhaps it was getting better, your system put the guard down then some time before the test something slipped in?

This diet has a HUGE learning curve, and you have to rely on yourself and not others to fix food. No eating out, limiting processed foods, avoiding stuff prepared by stores or in deli. Heck you have to throw out your cutting boards, colanders, butter containers, jam, and nut butters, etc when you change over as all can be CCed, you scratched pans and pots can be issues worn porous plastic bowls and Tupperware. It can take years for many to clean out and get everything down. PLUS Antibodies can stay raised for over 6 weeks after a exposure.

Share this post


Link to post
Share on other sites

Were the tests run by the same lab?  Each manufacturer has their own ranges and results can’t be compared.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
3 3

×