Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Full body sensations, anxiety and fluttering heart.


Lacylou

Recommended Posts

Lacylou Newbie

I have not been diagnosed as of now but am requesting to be tested soon. 

With that, I’ve had a long 2 years of trying to understand what seems like a very abrupt and harsh change within my body. 

I’m 29, I never had anxiety, all my life - one day - out of no where I had a full blown “anxiety attack” (this is what my doctor called it) that lasted for 6 hours.. heart palpitating, numb fingers, light headed, overall my whole body felt a wave of warmth and cold over and over... the sensations were something I’ve never felt before. This issue continued on and off - from moderate “attacks” to smaller more frequent ones.

After a year of being told I just have an anxiety problem I started to realize these attacks happened worse and more frequently after I had a big meal or ate odd foods. In due time I was able to determine it may be gluten and dairy causing some kind of terrible reaction in my body that very much mimicked an anxiety attack (in turn causing actual anxiety).

First I ask - does this seem normal? I have since cut out gluten and dairy as completely as I am aware and I must say this issue has almost completely diminished. So it seems to be the culprit. When I do accidentally eat gluten, I can tell almost immediately, I feel an anxious twitch, my heart starts to race.... it’s terrible. 

The odd thing though, I still have these.... weird sensations all over my body, almost like.. my nervous system has been effected by this issue. Shooting pains, weird tingles in my hands and feet, odd numbness, warm sensations and cold ones - that seemingly come from no where.... 

This is, needless to say, nerve wrecking. I feel my doctor may further attribute this to anxiety - I am nervous there is something seriously wrong with me or maybe this is some kind of natural reaction to gluten that people have when they are sensitive to it. Could this simply be residual from gluten that may still be in my system? Is this even remotely normal? 

HELP!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome! 

I think you need to seriously do some research about celiac disease.  First, it is an autoimmune disorder, like Lupus, except the trigger is known — gluten.  When a celiac ingests gluten it triggers an autoimmune reaction that can last for days, weeks or months.  The reaction damages the small intestine.  Some people have comparable symptoms, but do not have intestinal damage.  This is call Non-celiac Disease Gluten Sensitivity.  

You can rule out (or in) celiac disease by getting the antibodies tests.  The problem is you would need to be on a full gluten diet (8 to 12 weeks daily) before getting the test.  I am not sure how long you have been gluten free.  

Anxiety is common with celiac disease and many other conditions.  It is up to you how much you need a diagnosis or you can continue with your gluten free diet.  

http://www.cureceliacdisease.org/screening/

Link to comment
Share on other sites
GFinDC Veteran

Hi Lacylou,

If you haven't been gluten-free for very long, you should get the blood tests done ASAP.  The antibodies in the bloodstream decline when we go gluten-free and the tests become inaccurate or even useless eventually.

Anxiety is symptom some people get from celiac damage.  It may be related to deficiencies in vitamins or even gluten ataxia symptoms.  Some of  the B vitamins are used by nerve cells and they can't function at their best when the vitamin isn't available.  Celiac disease can cause poor absorption of vitamins and minerals due to gut damage.

Link to comment
Share on other sites
  • 4 weeks later...
ch88 Collaborator

You may also want to see to a doctor to see if it is an allergic reaction.  An elevated heart rate, anxiety and burning sensations can be symptoms of an allergic reaction. I don't know if this is the case or not.

Link to comment
Share on other sites
Ennis-TX Grand Master

I used to have these weird "Hyde Mode" reactions where I would get angry when exposed. I also had looping maddening thoughts, numbness in my hands/feet, this weird burning needles sensation in my back/arms/legs/chest. Most, I think was attributed to nutrient deficiencies related to the damage like B-vitamins, magnesium, etc. But some were related to gluten ataxia which was on my reactions (immune system sort of went after my nervous system and brain also).

I would not rule out your issues, this disease affects everyone a bit differently, screening and testing would be required as mentioned. Few thoughts check deficiencies listed with different B-vitamins, vitamin D, and magnesium against your issues see if it brings it up. These are common ones with this disease. Supplementing can provide temporary relief, but without the diet and healing, it is like trying to fill up a bucket with holes in it. -_-  The big one for me was the magnesium which when really low can cause that burning tingling needle feeling, rapid heartbeat, irritability, constipation (not going once a day), cramps,  sleep disturbances or blank dreams.

Link to comment
Share on other sites
Posterboy Mentor

Lacylou,

I would ditto everything Ennis_Tx said. ... plus have your Iron and Zinc levels checked. . .they both can effect anxiety.

Here is some research that might help you. The first two or is on Zinc and Iron and anxiety connection and the last two is on B-Vitamins.

http://www.naturalhealthresearch.org/33570-2/

https://link.springer.com/article/10.1007%2Fs12011-014-9963-1

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4772032/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/

I hope this is helpful but it is not medical advice.

Posterboy,

Link to comment
Share on other sites
Fenrir Community Regular

I had similar issues as you before I was diagnosed but also had join issues, headaches, constipation, stomach pain, bloating, and fatigue. Typically, you don't just have one or two symptoms you end up with multiple. 

No way to really know unless you get tested and you'd need to be eating gluten for the tests to work right. 

If you want to see what it's like to go through the diagnosis process you can see the link to my story in my profile. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      1

      Any ideas for travelling

    2. - trents replied to Braver101's topic in Coping with Celiac Disease
      1

      Constant sweating with celiac disease

    3. - Julie Riordan posted a topic in Traveling with Celiac Disease
      1

      Any ideas for travelling

    4. - Braver101 posted a topic in Coping with Celiac Disease
      1

      Constant sweating with celiac disease

    5. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      10

      Peripheral Neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,487
    • Most Online (within 30 mins)
      7,748

    CandiceK
    Newest Member
    CandiceK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?
    • Julie Riordan
      Just wondering can anyone help me out.heading on holidays and don’t really know what expect.if I get glutened are there tablets that you can take
    • Braver101
      Does anyone else get soaking wet sweats just out of nowhere? I’m not in menopause, there’s nothing wrong with me except celiac disease and my thyroid, and I’m taking my medicine. I am 18 days gluten-free but I cannot stop sweating and it makes me freezing cold and I’m soaking wet and changing my clothes literally as I’m changing my clothes the new clothes are soaking wet and nobody will help me. Please somebody out there help me. 
    • Tlbaked13
      Sometimes I end up spitting out a drink of water! But for the most part I do ok with the liquids that I've been sticking to which Is hardly anything carbonated (meaning diet soda mainly)  I drink alot of tea which I make myself lipton cold brew sweetened with half sugar and half Splenda, smoothies when I could in the beginning but made with milk so I'm now using orange juice instead of the milk but it doesn't workout real often I drink black coffee in the mornings with no trouble usually and I've been experimenting with some juices but the sugar content is a set back I'm not a huge water fan but will drink it unfortunately where I live I can't do the tap water I'm the only one who has a problem with it apparently but for some reason I just can't...unless I'm using it in coffee or tea and the tea even took me some time to stand yes I have thought about boost/ ensure but they are very costly for someone who is scrapping the bottom at this time 
    • trents
      Do you believe your swallowing is a manifestation of your neuropathy? I'm thinking if you are having trouble getting food down you need to focus on consuming things that have a high nutritional density so that whatever you are able to get down counts for something. Have you looked at Boost and other high protein/high calorie shake products?  They are fortified with vitamins and minerals as well. Do you have any trouble with aspiration of liquids? For celiac testing purposes, the guidelines are calling for daily consumption of about 10gm of gluten - the amount in about 4-6 slices of bread - in order to ensure valid testing. That sounds like it would be a challenger for you.
×
×
  • Create New...