Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

xx_gulliver_xx

My Reintroduction Symptoms - Intolerance?

Rate this topic

Recommended Posts

Hi gang, sorry if I missed any stickies - I looked.

SHORT VERSION

Since January 1, I've been on a gluten + dairy elimination diet. A month in, I had a large portion of a likely-cross-contaminated meal, and for 3 days I had severe symptoms including nausea, diarrhea, fatigue, dysthymia, no appetite and a passing fever sensation (hot/cold swings). The nausea/stomach discomfort was so bad I would wake up and couldn't get back to sleep. This happened again last week after another contamination incident. These begin 12-24 hours after consuming gluten. Separately, I reintroduced dairy just once (whey protein powder) and had explosive gas and intestinal distress for most of the day (this one came on ~3 hours later but is a clear allergy). My questions:

  1. Are these unusual gluten intolerance symptoms? It was so severe I thought it must have been food poisoning.
  2. Does this suggest gluten/dairy sensitivity OR a natural sensitivity to foods one hasn't eaten in awhile? I.e. I'm not allergic to candy but when I had a handful after not having any for 3 months of boot camp, it was a colon crusher. And prior to the diet, I was able to eat both dairy and gluten with little to no irritation.

MORE DETAIL

  • I embarked on this diet because I've always had symptoms, accelerating in adulthood. These include:
  • A highly irregular BM schedule and volume, as well as frequent bouts of gas and bloating
  • Brain fog, and horrible/deterioriating short-term memory
  • "Sticky" weight (i.e., I'll diet + exercise for a month and lose almost no weight, while friends cut out only soda or spaghetti and lose 20 lbs)
  • Unpredictable fatigue + dysthymia/anhedonia
  • My brother is Celiac and lactose intolerant
Edited by xx_gulliver_xx

Share this post


Link to post
Share on other sites

Hi Gulliver,

I am assuming you didn't get tested for celiac disease before going on the gluten-free diet?  If true, that's unfortunate as the celiac disease antibody tests depend on having been on a regular gluten diet for up to 12 weeks.

The dairy reaction is a classic celiac symptom.  Celiac disease can cause damage to the villi lining the small intestine.  Those villi make an enzyme that digests dairy sugar (lactose).  Without the villi, there is no lactase enzyme, and no sugar breakdown.  That means the gut bacteria have a big sugar rush to feed on and start making lots of feeding byproducts.  Very fartilicious and bloaty.

Another thing, often it seems when we go gluten-free and then start eating gluten again the symptoms are worse than before stopping gluten.  The immune system is already at a high state of readiness and it just needs a little bit of gluten in the water to start a full blown attack.  Recovery from celiac damage can take 18 months or longer for some.  Also you may be low on certain nutrients like vitamins and minerals that your body and brain need to function well.  That can cause depression, fatigue and other unpleasant symptoms.

There is a sticky at the top of the Coping with section called Newbie 101, which may help some.  My guess is you have celiac disease but without testing it is hard to know for sure.

The reaction to sugary foods is probably dysbiosis, a fancy term for gut flora being all out of whack.  There's too many bad, nasty bacteria and not enough of the helpful ones.  This can happen when your gut is damaged and digestion is impaired.

I hope you feel better soon. :)

Edited by GFinDC

Share this post


Link to post
Share on other sites
20 hours ago, GFinDC said:

Hi Gulliver,

I am assuming you didn't get tested for celiac disease before going on the gluten-free diet?  If true, that's unfortunate as the celiac disease antibody tests depend on having been on a regular gluten diet for up to 12 weeks.

The dairy reaction is a classic celiac symptom.  Celiac disease can cause damage to the villi lining the small intestine.  Those villi make an enzyme that digests dairy sugar (lactose).  Without the villi, there is no lactase enzyme, and no sugar breakdown.  That means the gut bacteria have a big sugar rush to feed on and start making lots of feeding byproducts.  Very fartilicious and bloaty.

Another thing, often it seems when we go gluten-free and then start eating gluten again the symptoms are worse than before stopping gluten.  The immune system is already at a high state of readiness and it just needs a little bit of gluten in the water to start a full blown attack.  Recovery from celiac damage can take 18 months or longer for some.  Also you may be low on certain nutrients like vitamins and minerals that your body and brain need to function well.  That can cause depression, fatigue and other unpleasant symptoms.

There is a sticky at the top of the Coping with section called Newbie 101, which may help some.  My guess is you have celiac disease but without testing it is hard to know for sure.

The reaction to sugary foods is probably dysbiosis, a fancy term for gut flora being all out of whack.  There's too many bad, nasty bacteria and not enough of the helpful ones.  This can happen when your gut is damaged and digestion is impaired.

I hope you feel better soon. :)

Thank you for your kind and detailed reply!

I did not get tested; just figured since my brother is Celiac and I'd had persistent, mild to moderate symptoms for a decade+, I'd give the elimination diet a go.

It is interesting to hear that damage from Celiac can actually cause lactose intolerance... I love cheese and lots of foods with dairy ingredients, so this would be an enormous bummer whether it's primary or secondary.

I'm very curious though how unusual the gluten symptoms (borderline fever symptoms, nausea, insomnia, dysthymia, fatigue) I experienced are? Do these seem unusually severe? It definitely wasn't "just" discomfort, it felt like borderline flu (which I've already had this year, so it wasn't that). I would have thought it's food poisoning, except it happened 2x separately in 3 weeks despite not eating repeat food I think.

Share this post


Link to post
Share on other sites
2 hours ago, xx_gulliver_xx said:

.

I'm very curious though how unusual the gluten symptoms (borderline fever symptoms, nausea, insomnia, dysthymia, fatigue) I experienced are? Do these seem unusually severe? It definitely wasn't "just" discomfort, it felt like borderline flu (which I've already had this year, so it wasn't that). I would have thought it's food poisoning, except it happened 2x separately in 3 weeks despite not eating repeat food I think.

Symptoms like that are not unusual at all. Peoples symptoms can vary. Some folks get severely ill from even the tiniest amount of gluten while some celiacs are symptom free even on a regular gluten filled diet or think their symptoms are 'normal' or attribute them to something else. With a brother that is diagnosed it is likely you also are celiac. As mentioned you would need to go on a challenge for about 12 weeks to get blood work done.  If you desire a diagnosis a challenge is what you need to do.

Share this post


Link to post
Share on other sites
42 minutes ago, ravenwoodglass said:

Symptoms like that are not unusual at all. Peoples symptoms can vary. Some folks get severely ill from even the tiniest amount of gluten while some celiacs are symptom free even on a regular gluten filled diet or think their symptoms are 'normal' or attribute them to something else. With a brother that is diagnosed it is likely you also are celiac. As mentioned you would need to go on a challenge for about 12 weeks to get blood work done.  If you desire a diagnosis a challenge is what you need to do.

Just what I was looking for. Thanks all!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Very interesting, thank you for posting.
  • Blog Entries

  • ×
    ×
    • Create New...