Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

About a year and a half ago I went to the doctor with GI symptoms. She tested me for Celiac and it came back positive.

TISSUE TRANSGLUTAMINASE IgG 1.03 Index <=0.90 Index
Tissue transglutaminase IgA 1.39 Index <=0.90 Index

 

Unfortunately she told me to stop eating gluten instead of sending me to a GI doctor. Once I finally got to a GI doctor I had been gluten free for about 3 months. We did a biopsy anyways and it came back negative but I was not eating gluten so that does not say much. About a year later we rechecked my labs to see if they had gone down on a gluten free diet. They had so the doctors thought it was Celiac.

Tissue transglutaminase IgA 0.68 Index <=0.90 Index
TISSUE TRANSGLUTAMINASE IgG 0.46 Index

<=0.90 Index

 

I am still having GI problems and nothing has made them better so last week the GI doctor ordered more labs and some of them were for Celiac. I thought I was still eating gluten free but one of the labs came back positive. Do you think this is because I am somehow eating gluten or do you think this is more indicative of another autoimmune disease? I find it weird that one is positive and the other is negative.

COMPONENT YOUR VALUE STANDARD RANGE
TISSUE TRANSGLUTAMINASE IGA (U/ML) 15.9 U/mL <=14.9 U/mL
DEAMIDATED GLIADIN PEPTIDE IGA, QUALITATIVE, EIA 3.8 U/mL <=14.9 U/mL

Share this post


Link to post
Share on other sites

I am sorry that you are still not well.  

The good news is that you have healed on the gluten-free diet.  It sounds like you may have had a gluten exposure or you could be developing another autoimmune disorder.  The most common thing would be a gluten exposure.  

I can tell you that just having one positive on the celiac panel means something.  Do not discount it.   You do not need a positive for every test on the celiac panel.  I test positive (with gluten) only to the DGP IgA even in followup tests.  I have never had a positive TTG or EMA and I have two other autoimmune disorders and am biopsy confirmed. 

What to do now?  Consider trialing the Fasano diet for a few months.    It is strict.  No processed foods.  Only rice is allowed.  No canned or frozen veggies or fruit, etc.  No eating out!    If your symptoms dissipate, then you know gluten was probably the cause of your elevated TTG IgA.  If symptoms do not improve, your GI and you should rule out SIBO, UC, Crohn’s, etc.  

I trialed this diet a while back.  It did not work.  A repeat endoscopy showed healed villi, but that I had autoimmune Gastritis (unfortunately, the gluten-free diet does not help it).  

https://res.mdpi.com/nutrients/nutrients-09-01129/article_deploy/nutrients-09-01129.pdf?filename=&attachment=1

 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Doritos does make a few gluten-free versions.     
  • Blog Entries

  • ×
    ×
    • Create New...