Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

JoanneP

New Celiac!

Rate this topic

Recommended Posts

Hello!

I was just diagnosed with Celiac about 6 weeks ago (I'm 50).  Feeling a tad overwhelmed.  I think I have a grasp on it, and then I realize I really don't have a clue!  (Example:  My husband and I were in Florida a week ago and I broke out in a rash.  Long story short, I realized sunscreen has gluten! ugh...).  What is so frustrating/confusing to me is finding real accurate information about miscellaneous products that may/may not contain gluten.  Make up?  Moisturizers?  I downloaded a gluten-free app to scan products, but so far, most things I scan come up "product bar code not known".  I use Oil of Olay facial moisturizer and I can't seem to find a definitive answer on whether it's gluten-free???  Is there an app or a website out there that is current and accurate?  So many times when I google something, I get articles from at least ten years ago.  Did I mention I'm feeling overwhelmed???

ANY information would be SO appreciated!!!!

Thanks!

Joanne

Share this post


Link to post
Share on other sites

Welcome to the forum Joanne,

I am sorry I can't help with the skin products question.  Being a man I don't use such things myself.  But I know they have been discussed on the forum many times before so maybe a helpful person will come along soon with info.

Basic info regarding starting the gluten-free diet for you though:

Try to stick to whole foods cooked at home for several months at least.  No eating out at friends or restaurants.

You may find it helpful to stop all dairy for a few months also.

Oats are a problem for some of us as well as wheat, rye and barley  So it might be good to avoid oats also.

Your rash could be DH (dermatitis herpetiformis), which is a an itchy skin rash only people with celiac get.

Sometimes people starting the gluten-free diet think they will recover in a couple weeks.  But it is more common for recovery to take months or years.

It would be wise to have your doctor check your vitamin and mineral levels for deficiencies.

Share this post


Link to post
Share on other sites

I used to use Oil of Olay sensitive skin, but when I got a Nima Sensor it tested positive for gluten and I switched to Jergens Daily moisture fragrance free.

Nima isn't meant for testing non food products, but I can't take the risk.

 

Share this post


Link to post
Share on other sites

While a Celiac reaction requires actual consumption of gluten, I take no risks.  Sunscreen might melt into my mouth a long bike trip or I could bite a nail.  

I use CeraVe lotion for my face.  In winter, I use their heavier cream.  I also use the Equate “CeraVe” version by Walmart which is made in Canada.  I use a lot of sunscreen.  I buy Equate which does not contain gluten, is recommended by Consumer reports and is inexpensive.  Do not use CeraVe sunscreen.  For some reason they changed their formula (they must have changed suppliers).   I also use plain Vaseline Intensive care lotion (white bottle)  around the house.  Eucerin Daily SPF 15 is good too for facial sunscreen.  

Google a list of gluten ingredients.  Keep it on your phone or a paper copy with you.  Soon you will have the list memorized.  Here is one example:

https://celiac.org/gluten-free-living/what-is-gluten/sources-of-gluten/

Trisha Thompson is a dietitian who has celiac disease.  She is also “the Gluten Free Watchdog” which is like subscribing to Consumer Reports.  I highly recommend a subscription.  She tests products!  Here is an article she wrote on cosmetics:

https://jandonline.org/article/S2212-2672(12)01203-8/abstract

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • May 01, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...