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long

Withdrawal starting after 2 week?

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Hi, I'm new here. 

A little history about myself. For over a year I have not felt good. I feel nauseated most of the time. I have throat irritation off and on. Sinus pains off and on. Light headed once in awhile, not often. I've had tingling sensations in my hands and feet. I feel tired most of the time. The best I feel is when I lay down to go to sleep. It seems laying down makes me feel better. 

I had gallstones so I got my gallbladder removed. That did nothing for me. I had an EGD done and a biopsy to check for celiac. Everything came back OK. I went on a gluten free diet on April 24th. The 2 weeks following I felt better than I had in a year. Not perfect but a lot better. Then I started to feel nauseated again. At times I have this warm feeling in my throat and my throat feels irritated. The last few days I have felt very nauseated. 

Is it possible to not have withdrawal symptoms for 2 weeks and then get them? Since my biopsy came back negative for celiac I truly to not knew if my issues are gluten related or not but it looked really promising when I felt so good after removing it from my diet. I thought I had finally figured out why I felt so bad.

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In my experiences the blood test and biopsy are unreliable. It is possible, since you are very new to this, that everything you were eating was not gluten free. It takes a long time to understand where gluten can be hidden in products, and even certified gluten free labeling can be inaccurate. I would give it a try again, stick with it for at least a month. Do your own cooking with real ingredients at home if you have the time and can afford to. Do not eat any processed foods. Then see how you feel. Easier said than done, I know but it could really help you determine what is making you feel so ill. It sounds like you're having acid reflux or gerd, and that could be why your throat is burning or irritated. Try sleeping with your head and torso propped up a bit, use a couple pillows. Also try not going to sleep or allowing your body to be horizontal after eating for at least 1 hour. I experience acid reflux symptoms after getting "glutened" so I know they go hand in hand. Also gastroparesis is common in gluten sensitive people. Might want to look into that as well. Best of luck - and if you need any advice on brands or products to avoid or to eat don't hesitate to reach out. Been doing this for 10+ years. 

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I agree that you are probably getting gluten into your diet (if gluten is your issue) as most people who are new to the gluten-free diet make mistakes.  There is a steep learning curve.  Hang in there!  

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Also read about the connection between TOO LITTLE stomach acid and GERD / acid reflux. Good articles out there by Dr Jonathan Wright a leading naturopathic doctor. This was my problem, the fumes from not having enough acid and food rots instead of digests, irritates the sphincter which allows sulphur fumes to work way up esophagus irritating throat sinuses, severe asthma. All gone now.

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44 minutes ago, Beverage said:

Also read about the connection between TOO LITTLE stomach acid and GERD / acid reflux. Good articles out there by Dr Jonathan Wright a leading naturopathic doctor. This was my problem, the fumes from not having enough acid and food rots instead of digests, irritates the sphincter which allows sulphur fumes to work way up esophagus irritating throat sinuses, severe asthma. All gone now.

I don't mean to sidetrack from the original post but would you mind explaining how you eliminated your GERD and acid reflux? Was it through a thorough gluten free diet? Because those symptoms for me have only become a problem after going gluten free. Especially that sulphur experience you describe. Happens to me about once every two years and is extremely unpleasant. 

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1 hour ago, Ali Rae said:

I don't mean to sidetrack from the original post but would you mind explaining how you eliminated your GERD and acid reflux? Was it through a thorough gluten free diet? Because those symptoms for me have only become a problem after going gluten free. Especially that sulphur experience you describe. Happens to me about once every two years and is extremely unpleasant. 

I had severe GERD before going gluten free, apple cider vinegar tablets (not the liquid) helped a lot. I am now trying half a lemon squeezed in my water instead. I used to take the apple cider vinegar with every meal, now I just take them at dinner and I can sometimes go a few days without taking them at all. Ive been gluten free for about 5 or 6 months so Im expecting it to only improve as time goes on. 

On 5/14/2019 at 2:42 PM, long said:

Hi, I'm new here. 

A little history about myself. For over a year I have not felt good. I feel nauseated most of the time. I have throat irritation off and on. Sinus pains off and on. Light headed once in awhile, not often. I've had tingling sensations in my hands and feet. I feel tired most of the time. The best I feel is when I lay down to go to sleep. It seems laying down makes me feel better. 

I had gallstones so I got my gallbladder removed. That did nothing for me. I had an EGD done and a biopsy to check for celiac. Everything came back OK. I went on a gluten free diet on April 24th. The 2 weeks following I felt better than I had in a year. Not perfect but a lot better. Then I started to feel nauseated again. At times I have this warm feeling in my throat and my throat feels irritated. The last few days I have felt very nauseated. 

Is it possible to not have withdrawal symptoms for 2 weeks and then get them? Since my biopsy came back negative for celiac I truly to not knew if my issues are gluten related or not but it looked really promising when I felt so good after removing it from my diet. I thought I had finally figured out why I felt so bad.

I had all these same symptoms, b-complex helped with the tingly hands but no longer needed as I am now 100% gluten free. It can take 6-12 months for neurological symptoms to resolve after going strictly gluten free, Ive been at it for about 6 months and my neurological problems (tingly hands, feeling light headed) are almost completely gone. Digestive problems (throat and stomach issues) resolved much quicker but still took a few months. I found going completely grain free and sticking with meats and veggies helped the most. 

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@Ali Rae — 

Consider seeing a GI.  Low stomach acid can be due to naturally aging or an illness.  I have Chronic Autoimmune Gastritis that ebbs and flows.  It is common with autoimmune thyroiditis.  Keeping my celiac disease from flaring does help, but my trigger seems to be stress.  I kept blaming celiac disease, but a repeat endoscopy revealed healed villi, but stomach damage.   Look also at EOE which is an allergy issue.  

You gave some pretty good advice above.  I wish my CAG or Hashimoto’s would be as easy to treat like celiac disease.  

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19 hours ago, Ali Rae said:

I don't mean to sidetrack from the original post but would you mind explaining how you eliminated your GERD and acid reflux? Was it through a thorough gluten free diet? Because those symptoms for me have only become a problem after going gluten free. Especially that sulphur experience you describe. Happens to me about once every two years and is extremely unpleasant. 

BEFORE I went gluten free, I used to get food stuck all the time. It wouldn't go up, it wouldn't go down. That quickly went away after going gluten-free. 

After a few years of being gluten-free I started getting hoarse throat and severe asthma. Went to specialists, nothing worked for the asthma except predisone / steroids and all those made my blood pressure go through the roof. One doc said I might have SILENT REFLUX, so here, take this prescription for acid suppressor.  Alarm bells went off, as I had read a lot about Celiac's and how we need our vitamins and common deficiencies like D, which NEEDS stomach acid to break it down to absorb it.  Ok, so I hit the books and internet and naturopath looking for more info.  Now I find a connection between LOW stomach acid and acid reflux.  Also a connection between D deficiency low stomach acid.  And acid reflux and asthma and fumes from stomach and asthma. And another connection between D deficiency and vitamin K2, which is in the news a lot now and helps you absorb D.  So I went back to doc, D levels were in range but on the low side but I was taking a lot of D3, so it shouldn't be.  So we added K2, add a little sip of apple cider vinegar just before meals with protein (you don't need much acid for meals without), and managed reducing the stomach acid just before I went to bed with 1 zantac (actually costco version of it as it is marked gluten free but zantac is not marked so) until things started healing. It took a little while but the acid reflux is pretty much gone and the asthma is completely gone.

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