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    Do you have questions about celiac disease or the gluten-free diet?

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Hi everyone,

I was diagnosed about a year ago. I am pretty good with my food, I eat a balanced diet and regularly hit around 3000 calories a day. I am 6ft2 and weigh 12 st. I never used to be very skinny, until around 17/18 years old when I began having some stomach issues (I imagine this was when my celiac developed). Since diagnosis I assumed I would start to gain weight but I am still the same weight as when I was 18. I regularly exercise. I have definitely had the odd slip up here and there in terms of contamination, I live in a house of 7 so it can be pretty difficult. 

Any ideas/help would be much appreciated!

Thanks,

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Extra Protein, and Fat, I do best with vegan proteins, collagen, and bone broth protein powders, and tons of egg whites.  Decent amount of fat (I eat keto macros with a higher protein ratio), Try adding in almond butters, sunbutter, avocados etc to up the fat intake.
I take digestive enzymes in ratio to what I eat to break down the food and was only able to start gaining muscles when I started fasting, 12-16 hours a day without any calories in that window. Supposedly it gives my body time to focus on repair and not always digesting food, but that is just one theory I got.

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You only need to have one cross contamination issue once every six weeks or so in order to have your body continually have antibodies.

I think between just being gluten free for a year, and living in a gluten household/ kitchen with six other people, you haven't been able to get clean enough for your gut to heal.

 

Have you had any follow up testing?

 

I'm not a doctor, and this is not medical advice... but I think it's very likely that you are still having autoimmune gut damage.

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I agree with Ranchers wife.  If I were a betting person, I would bet that gluten is getting into your diet.  Why?  Many celiacs  fail to heal (more than 20 to 35%).   Are they refractory?  A tiny few.  Most are getting gluten exposures causing non-responsive celiac disease.  Others have concurrent issues like SIBO or IBD.  

https://www.beyondceliac.org/celiac-disease/refractory-nonresponsive-celiac-disease/

https://www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220

Once healed, Ennis has great suggestions for gain weight.  

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On 6/26/2019 at 5:31 AM, mh94 said:

Hi everyone,

I was diagnosed about a year ago.

One thing that I have done while living with my family, one of 6, and being the only celiac was use my own spot , fridge, toaster and tools such as cutting board and more. If you continually get gluten in your diet your intestines do not have time to heal. I have had celiac disease for 17 years now.

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