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    Do you have questions about celiac disease or the gluten-free diet?

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Greetings!  I am a 51 yr. old 4 year post diagnosis Celieac.  Between the drawn out healing process, and just plain getting older, I'm discover the need to find a pain reviler for the aches and pains associated with the for mentioned symptoms of discomfort.  I have found a product called Curamine, which is a curry based, and has been helpful, but the stuff is horribly expensive and makes my stomach a little upset sometimes.  Anyone have verified knowledge Celiac friendly pain relievers?  Please, don't bother listing anything that is not VERIFIED as those are easy to find, and the number of, "does not list specific gluten products, but may have cross contamination" (take your chances products) listed are a dime a dozen....   Very frustrating....    Thanks for any and all input!

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You might want to specify what country.  In the US, many are gluten-free and some are labeled gluten-free.  Target labels some of their acetaminophen gluten-free.  There are other brands that do, too.  

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17 minutes ago, kareng said:

You might want to specify what country.  In the US, many are gluten-free and some are labeled gluten-free.  Target labels some of their acetaminophen gluten-free.  There are other brands that do, too.  

I am in the U.S.....   And I have searched for those miracle words, "gluten free" on pain relievers and I've been utterly unsuccessful...   

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https://www.target.com/p/acetaminophen-extra-strength-pain-reliever-fever-reducer-caplets-up-up-153/-/A-51217955

But if you really want to do something about the labeling of things like this then write, call or email your US House representative & urge them to co-sponsor this bill:

https://www.congress.gov/bill/116th-congress/house-bill/2074/all-info#cosponsors-content

You can use this as a template:

This is to request you co-sponsor H.R. 2074 - Gluten in Medicine Disclosure act of 2019. As things stand now, when a celiac has a prescription (as well as when refilling one), we have to have the pharmacy call the manufacturer & give them the lot # to make sure the pills do not contain a gluten ingredient or derivative. As you can imagine, this takes time, often many hours. If it happens to fall on the weekend or after hours, then obviously the pharmacy can not call the manufacturer & get an answer thus causing days delay in patients being able to begin their prescribed medication. H.R. 2074 is extremely important to protect celiac patients.

OR

Please personalize this sample letter adapted from a letter provided by Rachel Jenkins, Legislative Assistant to Congressman Tim Ryan (OH-13) by including a personal story about why this bill is meaningful to you or a loved one.

Cosponsor H.R. 2074: The Gluten in Medicine Disclosure Act of 2019

Dear [Name of your representative]:

According to the Mayo Clinic, the rate of celiac disease has almost quadrupled over the past 50 years. Celiac disease is a serious, genetic autoimmune disorder in which ingesting gluten causes damage to the villi of the small intestine. It affects nearly 3 million people in the United States. In comparison, Alzheimer’s disease affects approximately 2 million people. 

The only treatment is the total elimination of gluten-containing products, including wheat, barley, and rye sources. For some, failure to avoid these can lead to life-threatening complications. Currently, this is nearly impossible to determine the presence of gluten in prescription medicine. 

In 2004, the Food Allergen Labeling Consumer Protection Act required packaged food labels to identify all ingredients containing wheat and other allergens. This requirement does not extend to prescription drugs. After repeated efforts to shed light on this issue, the FDA released draft guidance in 2017 encouraging drug manufacturers to disclose the presence of gluten. While some manufacturers have taken this step, it has not been implemented consistently. This leads to anxiety of not knowing whether or not your medicine is causing more harm than good. 

That is why Representatives Tim Ryan and Tom Cole introduced the Gluten in Medicine Disclosure Act, which will make it easier to identify gluten in prescription drugs. This legislation would require drug manufacturers to label medications intended for human use with the list of ingredients, their source, and whether gluten is present. A gluten-containing drug that does not meet these requirements would be considered misbranded under Section 502 of the Federal Food, Drug, and Cosmetic Act. This labeling will allow concerned consumers to know, for example, if the starch in their prescription drugs comes from wheat or corn. For the nearly 3 million Americans living with celiac disease, that small distinction is an important one. 

Please join other members in cosponsoring this important piece of legislation to make it easier and safer for individuals with celiac disease or gluten sensitivity to make informed purchases of needed medications. 

For more information or to cosponsor, please contact Rachel Jenkins (rachel.jenkins@mail.house.gov) in Congressman Ryan’s Office or Shane Hand (shane.hand@mail.house.gov) in Congressman Cole’s Office. 

Sincerely,

 

 

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