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lonewolf

Barley Grass And Wheat Grass

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I am really wondering about the juice from the grass only of barley and wheat. I was told by a doctor that they DO NOT contain gluten - that only the grain part of the plant contains gluten. If this is true, then it would open up a lot of vitamins and healthy "green drinks". If the doctor was wrong, then he's wrong, but I don't want to avoid something unneccessarily.

I'm wondering if it's like being allergic or intolerant to milk and avoiding beef because it comes from the same basic source. Would this make sense? (I don't think so.)

Does anyone KNOW for sure? I've tried looking it up and haven't had much luck or time.

Liz


Liz

Started Specific Carbohydrate Diet on 8-16-09 because son was diagnosed with Ulcerative Colitis and want to give him moral support.

Diagnosed with Minimal Change Nephrotic Syndrome in 2003. Discovered that going completely gluten-free put me in remission.

I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Psalms 27:13

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you can't *know* for sure, because of the process. as the grain sprouts, it uses up the energy stores that it's been holding - that includes the protein. it appears that what it gets metabolized into (the final, fully mature blade) does not contain the same proteins. but, when dealing with things made from wheat grass, you have to ask: is the blade fully mature, having used up *all* of the protein in the original grain? the process of using the energy in the grain is gradual - how do you know when it's "done"? is the grass harvested so cleanly that *no* grain particles are harvested along with the blades?


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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One of the things that happened to me that made me start noticing wheat as being a problem for me was when I almost passed out after drinking wheat grass. Which was scary because I was home alone with my 1yo and 2.5yo. Who know what they could have gotten into. :blink:

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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The only people who I have ever heard say they are safe are non-celiacs. I wont take the chance. My sister is a dietician and she had a discussion with someone about wheat and barley grass and she told him that until he was celiac and could prove it didnt do damage, then she wasn't trying it. She has celiacs too. So, I will never even try it. Personelly, I dont understand why anyone would want it anyways! Deb


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I agree with Tiffany...even if the protein has been eliminated--what a risk for contamination! I use products with wheat or barely or oat grass. Which is a bummer, b/c I had some great vitamins w/them once :(


~~~~~~~

Jen

Indianapolis, IN

gluten-free since Feb 2005

dairy-free

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Thanks for the responses. I just realized that my vitamins have barley grass juice in them - had run out for about 6 weeks and just got more. I guess I'll pass them on instead of taking a chance.


Liz

Started Specific Carbohydrate Diet on 8-16-09 because son was diagnosed with Ulcerative Colitis and want to give him moral support.

Diagnosed with Minimal Change Nephrotic Syndrome in 2003. Discovered that going completely gluten-free put me in remission.

I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Psalms 27:13

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Watch out for VEGA bars. They say gluten-free but they have wheat grass in them!


Tapioca intolerant

First cousin dx'd with Celiac Disease

Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.

Gluten-free since June 2005

Dx with IBS February 2005

Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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I tried a protein/whey powder with "greens" including barley grass

container SAYS "gluten free"

BUT I get a (mild, but quite noticeable) reaction

So I'm steering clear for now


gluten-free (except unintentionally) from 7 Dec 2007

3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)

suspect mother was celiac (also, cousin suspects my mother's twin is celiac)

Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies

Staying off gluten - dietary reaction is compelling for me!

"Hi, I'm the gluten-free diner at your table."

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I was at wholefoods last night and was looking at green drinks. I complained to DH audibly that they all had wheat grass in them and this lady next to me said "Well wheat grass is good for you". I explained that I was allergic to gluten and she looked at me like I was crazy and told me that wheatgrass is gluten free. It just seemed very counterintuitive to me that anything with wheat in the name would be safe so I didn't buy it and come here to check it out. Nice to know that I'm not crazy. Just the CC risk is mind boggling.


Pre-diagnosis misdiagnoses: endometriosis, migraines, psoriatic arthritis, psoriasis

Diagnosed April 2006 with multiple food sensitivities (gluten, yeast, eggs, cow dairy, legumes, some nuts and veggies) and a systemic candida infection -no pre-diagnosis symptoms since!

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I was at wholefoods last night and was looking at green drinks. I complained to DH audibly that they all had wheat grass in them and this lady next to me said "Well wheat grass is good for you". I explained that I was allergic to gluten and she looked at me like I was crazy and told me that wheatgrass is gluten free. It just seemed very counterintuitive to me that anything with wheat in the name would be safe so I didn't buy it and come here to check it out. Nice to know that I'm not crazy. Just the CC risk is mind boggling.

Hi Psipsina,

It is hard to know who to trust these days. :rolleyes: I would certainly check it out anyway. I also had a lady tell me that something did not have gluten in it at whole foods the other day.... I think it was sorghum. :) I've only been with this for a short time, so I"m learning too.

Here is what I found: I'll post here and the link is at the bottom if you want to check it out.

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I ask Clan Thompson this question awhile ago. I don't have the relpy any longer but the message was clear...... STAY AWAY FROM WHEAT GRASS, now I didn't mention Barley grass but my guess is the answer would be the same.

Hey, Jenvan, its good to see you on here again.... How are you...I've missed chatting with you!!!

blessings

mamaw

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The seed planted contains gluten. If it is allowed to continue to grow, a seed/kernel will form that contains gluten. The stalk never contains gluten.

If you are sure the wheatgrass was harvested prior to seeds forming at the top and that it was cut and no roots (the partially used up gluten in the seed alluded to in an earlier post) were pulled up, you will have gluten free wheatgrass.

While this is a celiac message board by title, there are people here who avoid gluten for other reasons. If you have a wheat allergy - which can occur with and without celiac - you have reason to avoid wheatgrass regardless of gluten content.

The disagreement seems to be between technically gluten free and the high risk of cross-contamination.

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Well, ;)

It seems that some say it is okay and some say it is not. Whom do we believe on this?

Your body.

Challenge it by taking it at least 3 times a day with no other suspect items for a week. If after a week you still feel fine then that particular brand of that item will be something you can add.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Tim n Va has the good definition.. I for one would not take a chance.

I have asked other doctors who said stay away from it why take the risk.

I agree with Tim how do you prove there is no CC...

mamaw

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Tim n Va has the good definition.. I for one would not take a chance.

I have asked other doctors who said stay away from it why take the risk.

I agree with Tim how do you prove there is no CC...

mamaw

This is what I'm thinking too. There's no way to guarantee no cross contamination and my gluten reaction isn't worth the risk. I guess I'll be juicing at home instead of buying all the green juice products that are on the market with this in it.


Pre-diagnosis misdiagnoses: endometriosis, migraines, psoriatic arthritis, psoriasis

Diagnosed April 2006 with multiple food sensitivities (gluten, yeast, eggs, cow dairy, legumes, some nuts and veggies) and a systemic candida infection -no pre-diagnosis symptoms since!

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Well,

I did try it as I'm a glutton for punishment. I got really sick twice. I don't remember ever being that sick over something......... I thank the Lord for Activated charcoal. It was the only thing that got me cured from the severe sick stomach and pains almost like ulcer pains.

So, I'm back to my own home made green drinks that never gave me any problems at all.

ML :)

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One of the things that happened to me that made me start noticing wheat as being a problem for me was when I almost passed out after drinking wheat grass. Which was scary because I was home alone with my 1yo and 2.5yo. Who know what they could have gotten into. :blink:

Nancy

I know this post is fairly old, but I do want to make a comment to it.

Passing out after a wheat grass "shot" or consuming it as an additive in a drink is a common side affect of drinking it too fast. Many people get over this symptom and just get a funny kind of high off it after their second or third shot. Wheat grass would be gluten free if it contained no seeds or grain sprouts on the tops. You can monitor the growth of the shoots for proper harvesting to assure a gluten free ingredient.

I wouldn't doubt that people with allergies to wheat would want to avoid this all together, but Celiac's is not a wheat allergy so Celiac's should be safe with avoiding the seeds and grain sprouts.


-Patricia

Celiac & Duhring Disease

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I was always under the assumption that wheat grass is natural therefore edible by Celiac standards. Where as Gluten is the process of combing processed flour and water. Now I should preface my knowledge with the fact that my research is limited as I was diagnosed only 4 months ago. Any feedback?

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Hi Brendan,

Gluten is not an unnatural product. It is a protein naturally occuring in some grains. It is often manipulated / processed and ends up with different names as ingredients. But the basic stuff is all natural and the natural stuff (gluten protein) is a problem for celiacs. Some celiacs avoid processed foods because gluten can be hidden as ingredients with other names, and because of possible cross contamination. It is easier to avoid it by using more natural, minimally processed or raw food products, than trying to weed out every possible contaminated ingredient in processed foods. At least it is for me. Some people have other food sensitivities in addition to gluten also, and avoid processed foods because of them. Personally I am trying to steer clear of gluten, dairy, yeast, nitrates and tornadoes.

Welcome to the celiac world! :)


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Two words : Cross Contamination

If we can not have oats because of cc, how in the world can we have wheat and barley products sans gluten?

Until I see actual certified gluten free wheat and barley grass, I would NEVER consider consuming it.

Stick with Nori if you want an excellent green, natural supplement!

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Hi folks.

If anyone is still curious about this topic. I bought Amazing Grass Organic "Amazing Trio" Barley Grass, Wheat Grass & Alfalfa Whole Food Drink Powder, which is labelled Gluten Free & Raw.

And, right now (2 days after drinking it), after having put it in a juice, I feel very raw on the inside! :blink: I'm not 100% sure that this caused a reaction, but it seems the overwhelmingly likely candidate, as I am very strict and careful with what I eat. And, I haven't had a reaction like this in years.

I also have post-herpetic (post-shingles) neuralgia, and after two days feel like I was in the ring with Joe Frazier, with a lot of serious diarrhea.

One spoonful of this gave me a major reaction. I have no idea how they separate the seed kernel and the roots from the stalk, but something is amiss!

They note on their website:

"Q.Are Amazing Grass products Gluten Free?

Yes, Amazing Grass products are gluten free. Our cereal grasses are harvested prior to jointing, before the grain forms and any gluten is present. We test for gluten and our products are enjoyed by people worldwide with gluten free diets including celiac disease. Please note, our Energy Bars are manufactured in a plant that processes wheat, milk, eggs, soy, peanuts and tree nuts."

I don't know how they are testing for gluten, but I'd say avoid this is you don't want take the chance.

good luck!

Seosamh


Positive blood test

Positive biopsy

Hypothyroidic

Gluten-free since Jan. 28, 2004

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The problem is the grass started from a seed which of course contains our problem. When they're talking about things in terms of ppm, parts per million, or gliaden or gluten protein molecules, how can you take a chance. Granted some are more sensitive than others but after y years of being celiac there is no chance I would ever try wheat or barley grass juice. I drink green juice many times a week but I make my own with kale and celery.

Hi folks.

If anyone is still curious about this topic. I bought Amazing Grass Organic "Amazing Trio" Barley Grass, Wheat Grass & Alfalfa Whole Food Drink Powder, which is labelled Gluten Free & Raw.

And, right now (2 days after drinking it), after having put it in a juice, I feel very raw on the inside! :blink: I'm not 100% sure that this caused a reaction, but it seems the overwhelmingly likely candidate, as I am very strict and careful with what I eat. And, I haven't had a reaction like this in years.

I also have post-herpetic (post-shingles) neuralgia, and after two days feel like I was in the ring with Joe Frazier, with a lot of serious diarrhea.

One spoonful of this gave me a major reaction. I have no idea how they separate the seed kernel and the roots from the stalk, but something is amiss!

They note on their website:

"Q.Are Amazing Grass products Gluten Free?

Yes, Amazing Grass products are gluten free. Our cereal grasses are harvested prior to jointing, before the grain forms and any gluten is present. We test for gluten and our products are enjoyed by people worldwide with gluten free diets including celiac disease. Please note, our Energy Bars are manufactured in a plant that processes wheat, milk, eggs, soy, peanuts and tree nuts."

I don't know how they are testing for gluten, but I'd say avoid this is you don't want take the chance.

good luck!

Seosamh


"Ryo tatereba mi ga tatanu"

If we try to serve both sides, we cannot stand our own ground.

Japanese proverb

Celiac.com - Celiac Disease Board Moderator

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