Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Lots of questions... I got my labs back and it was kind of hard to hear the nurse because my son was jibber jabbering. So, she said my labs were negative. But I have a general distrust of dr's and I had a strange gluten reaction, so I was trying to look up the "normal" ranges and I must be googling the wrong terms or something. Anyway, here are my numbers:

tGg 3.7

Anti-Gliadin IgA 9.4

Anti-Gliadin IgG 21.6

(I was tested 2 weeks before going gluten free, though I had cut back)

On to my gluten reaction... my son and I are gluten free and have been since mid-October (he has sensory integration disorder and I believe he is on the autism spectrum so we're trying dietary approaches). When I went off gluten, that first week I got a really strange symptom... I would get these head rushes or head "rattles" where it felt like I was sort of underwater for a second (or kind of like when you yawn). They only last a few seconds, were sporadic and after about a week of eating gluten free, they went away. This is the same thing that happened to me when I withdrew from Zoloft 3 years ago - the exact same withdrawal symptom (only then it went on for months after I'd taken my last dose). Okay, so over Thanksgiving weekend, I threw caution to the wind and had gluten (pot stickers to be exact - yum). I didn't have any gastro symptoms, but the next day, I got the brain "rattles" again which started the next day and went on for that whole day and then I felt kind of foggy for a few days (after that meal, I didn't eat anymore gluten and haven't since).

Another thing that encouraged me to test was that my paternal grandmother died at 49 from what my father terms "a very rare kind of colon cancer" which the doctors described to them as looking like "hamburger wrapped in tissue paper". He also said she was sickly for her whole life so I'm leaning towards the possiblity that she may have had celiac disease, but it will be nearly impossible for me to find out for sure (family history is sketchy, not a very close knit side of the family).

Anyway, the ranges would be helpful, but I know they are not a be all end all. I'll get answers I think when I do another food trail, but I haven't done it yet (I'm kind of scared).

Thanks in advance,

~ danielle

Share this post


Link to post
Share on other sites

You need to find out the standard ranges from the lab who did your blood work. Different labs have somewhat different methodology, and hence have different reference ranges.

Share this post


Link to post
Share on other sites

Good to know, I'll request a copy of the labs tomorrow. Thanks :-)

~ danielle

You need to find out the standard ranges from the lab who did your blood work. Different labs have somewhat different methodology, and hence have different reference ranges.

Share this post


Link to post
Share on other sites

Okay... so I got the lab reports... this is their parameters which are the same for all three tests:

negative is <20, weak positive is 20-30, positive is >30

Anti-TTG AbIgA 3.7

Anti-Gliadin AbIgG 21.6 (High)

Anit Gliadin AB IgA 9.4

The dr said the high was fine, something about them balancing each other out. But high is high, even if it's weak I would think that's in indicator of something. I'm not interesting in having celiac disease, but if it's something I should pay attention to, I don't want to ignore it either.

Any advice would be great...

~ danielle

Share this post


Link to post
Share on other sites

did they do a total IgA?

the tests that are low are IgA ones, and a fair (though not large) number of celiacs are IgA deficient, so you can't really tell anything about the IgA tests without knowing if you produce a normal amount of IgA otherwise.

Share this post


Link to post
Share on other sites
would that still be valid now that I've been gluten-free for 3 months (with one infraction midway through)?

You can still have the total IgA test....it wouldnt be affected by the diet.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...