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chocolatesunrise

Test results and question about gluten challenge

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Hooray, hooray, hooray!!!!!! I too hope you get a definitive answer! Let us know ho wit goes please.

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So I did my prep, my husband took the day off work and I went in for my endoscopy this morning only to be told they have to reschedule me!!  I’m so frustrated and mad. I made a point of telling the doctor at my first appointment that I’ve had Versed in the past and it doesn’t work well for me.  I’m still very awake and aware and so I was concerned about a procedure with only that as a sedative. Well I guess he didn’t believe me and after getting me all hooked up to monitors I asked the nurse when the anesthesiologist was coming in and she just gave me this blank stare and said “there isn’t one”. What?!?  So when I again stated my concern about sedation she brought the doctor over who informed me that since I have a history of inadequate sedation with Versed that they need to reschedule me with an anesthesiologist. Are you kidding me?!?  I did the prep for nothing?!?  I tortured myself with gluten for the last 4 weeks for nothing??  Ugh. I am so upset. To top it off nobody from his office will even call me back about when they can reschedule me. I had to wait 6 weeks for this appointment. I’m not doing this for another 6 weeks. I feel like I’m out of options at this point and I want to give up. I’m leaning towards just assuming I have celiac or at least gluten intolerance and going off gluten. Ok. Rant over. 😜😝

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So sorry this happened to you. Versed doesn't work for me either. Sounds like your doctor doesn't listen very well. I ended up changing doctors and having my endo done by a doctor who really listens to his patient. You may want to call your insurance company and tell them what happened cause I can assure you the doctors office will try to charge you anyway. I don't remember if you did but if you had positive blood work I would consider just going gluten free and then rechecking antibody levels in six months or so.

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Thank you for your kind words. I’m emotionally drained and discouraged. I feel like it was a mistake to even try and get my strange GI symptoms diagnosed. Maybe it is all in my head and I’m just crazy. I’m tired of having to explain myself over and over and having nobody take me seriously. This is the third GI doctor I’ve been to and I’m just done. I can’t keep beating my head against this wall.  😝😔

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It's not in your head. I am so sorry your doctors have let you down so badly. You're not alone in that so don't lose heart. ((((((((HUGS))))))))

The GI who finally diagnosed me asked what was the best part about being gluten free at a follow up. I told him 'not being woken up by gut wrenching pain and 2 to 3 hours of D every night'. He asked why I didn't tell him that was happening since the 'IBS' I had been told I had didn't wake someone up.  I told him I had, many times. He just wasn't listening.

While it is ideal to get a doctors diagnosis sometimes we have no choice but to take our health in our own hands. You could talk to your GP to have vitamin and mineral panels done as those can be ordered by any doctor. The GP can even order repeat celiac panels.

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Ohhhhhhhhhhhhh man! I know you are devastated!!!! What a major, major let down. I would be hair pulling livid!!! There are no words for this debacle. Inexcusable!

I agree with the others & it is NOT in your head!!!!

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I can't even say how sorry I am that you have to eat gluten for another 5 days! Aw geez! It must feel like you're stuck in the movie Groundhog Day.

Sending you some really big, very gentle virtual hugs. {{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}

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4 hours ago, squirmingitch said:

I can't even say how sorry I am that you have to eat gluten for another 5 days! Aw geez! It must feel like you're stuck in the movie Groundhog Day.

Sending you some really big, very gentle virtual hugs. {{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}

Lol!!  It is like Groundhog Day!!  Thank you again for your understanding.  🥰

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Yikes. Not a stack of fun. I think it wise, though, to reschedule with an anaethstatist. 

 

Fingers crossed it all goes well for you this time. 

 

I understand all too well about feeling crazy and it is all in your head. I had many symptoms of mild haemophilia, some that landed me in hospital for weeks, yet not a single dr thought about haemophilia. It is a male only disorder. I was told all the pain etc was in my head. 

 

Erm, symptomatic carriers CAN get mild haemophilia I am now told. *told them so, but who am I??*

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7 hours ago, Keight said:

Yikes. Not a stack of fun. I think it wise, though, to reschedule with an anaethstatist. 

 

Fingers crossed it all goes well for you this time. 

 

I understand all too well about feeling crazy and it is all in your head. I had many symptoms of mild haemophilia, some that landed me in hospital for weeks, yet not a single dr thought about haemophilia. It is a male only disorder. I was told all the pain etc was in my head. 

 

Erm, symptomatic carriers CAN get mild haemophilia I am now told. *told them so, but who am I??*

There is nothing more discouraging and maddening then being dismissed when you know something is wrong. I think often the medical world doesn’t want to be bothered with patients who have symptoms that don’t neatly fit into a simple diagnosis. They don’t want to spend the time or put in the effort to “work” for a diagnosis. It just baffles me...why go into medicine as a profession if you don’t want to invest in patient care and using all that knowledge from medical school to diagnose people?!?  I’m so sorry to hear you’ve also been placed on the “crazy train” as I call it. Lol. It feels like the only way to get off is to get a diagnosis so you can finally prove to the world you aren’t just making stuff up!!  

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