Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Upset!


watkinson

Recommended Posts

watkinson Apprentice

My daughter and I (who are both celiacs) stopped by a store that we frequent in Clarksville Maryland. It's called Root's. A great store! However.....We were thrilled to see on the wall in the back, rack after rack of gluten-free foods, with a big sign that said "welcome to our new gluten free section". Wow!! :D escellent!!

But looking through the stuff we found several items that are not gluten-free, just wheat free. Example: Newman's chocolate cookies (kinda like oreo's). My daughter had made the mistake last year and bought a package. My daughter couldn't understand why she was so sick all the time. We finally discovered that they have barley flour in them. <_< Anyway.... we told the mananger at the store that these were not gluten-free just wheat free. He said "the packages that are gluten-free state on the front of the package that it is gluten free, if it's just wheat free it won't say gluten-free". We told him that he should change the sign since it says gluten-free section, it should read gluten-free and wheat free section. He said that "the customers know that it is the alternative foods section." We said "no, you have it listed with a big sign "GLUTEN FREE SECTION" with several racks of gluten-free stuff. The Newman products are immediatly next to the sign. Most people would obviously asume they are gluten-free. We told him that wheat free does not mean gluten-free and that if I ate one of those cookies, that I would be sick for probably 2 weeks. In the end...he did nothing. As far as I know the sign is still the same way. I KNOW people will be getting sick and make the same mistake we did. If anyone else knows about this store please say someithing to the management. And if you are eating the Newman cookies check out the ingredients. Some of them are gluten-free but a couple aren't

Thanks, Wendy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

I say go over his head until you find someone who listens to you. Go to the owner of the company if you have to. If they won't listen to you even at that level, maybe ask your diagnosing doctor to call them and read them the riot act. If they still won't correct the situation, call the media. There is one TV station in my area that has a consumer reports type department where they will help you out if you're getting a serious run-around by a company. Like those stories we all hear about when a contractor runs out on a half-done remodeling job. I think this would SERIOUSLY qualify as a consumer problem. It would be like a store saying their cakes and cookies were sugar-free for diabetics, and they weren't. That would raise a stink, and so would this.

This isn't what normal people think of as an allergy. We aren't talking about getting a rash, or just feeling nauseous for a few hours. This will DESTROY the lining of people's intestines. This isn't like diabetes where people can usually have a little bit of sugar. This is on a completely different level. Especially since some people don't get many symptoms and don't know when they've been cross-contaminated or have been eating something with hidden gluten. So people can be eating something they've been told is gluten-free for years without realizing it.

This whole situation just gives me chills up my spine. How dare they.

Nancy

Judyin Philly Enthusiast

Good Job Wendy---keep up the good work and hopefully others who are celiac disease and using the store will speak to the management too.

Thanks, Judy in Philly

Becky6 Enthusiast

That is awful! I agree! Go above him! And some people who are new to this are just so happy to see safe foods that they may not even look at the label! Good for you for standing up for it!

watkinson Apprentice

Thanks guys :)

I did E-mail the company yesterday. I asked for a reponse, but have still not recieved one. It's a great idea to talk to the owner, that will be my next step. Your'e all right though...it is terribe!! I mean obviously this guy just didn't get it, this is a serious disease with serious ramifications. I'll let you all know when or if I get a response from them.

Thanks, Wendy

jenvan Collaborator

I also agree with Nancy. Get a district manager etc... It's different than wanting to complain about an incident that happened to you alone...you are trying to protect other people from getting sick. Good for you to take initiative! Let us know how it goes.

nettiebeads Apprentice

I bet he was thinking "militant mom nut case" but we know how important the difference is between wheat free and gluten free. I wonder if the Better Business Bureau would be interested? It is false advertising.

Annette


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star

That sucks, Wemdy. i know there are some places like that too that its a health food store, but they have the gluten containing items mixed in between the gluten-free ones, and the gluten-free ones mixed in between the gluten containing items. But I can understand, very tight for space. (VERY tight).

But since you say "racks and racks" i assume that its a bigger store.

i think you should keep talking to whoever you can to get that problem fixed, maybe they think just because they dont have the disease themselves they dont think there is a difference between wheat-free and gluten-free, or even more probable, they just dont care.

good luck with that!

~ lisa ~

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.