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floridanative

Nervous About Endoscopy

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I just need to vent about this idiot GI that did my biopsy. Still today no one has bothered to call me with my results which they have admitted are in. The doc was to be in today so his nurse told me he'd call me. When he hadn't called by 10:30 I left a v-mail. Then I left another v-mail at 2:30. Now I have resorted to faxing them, just once a minute ago. I'm out almost all day tomorrow so I'm guessing if they don't call in the next few minutes, I'll be in lingo until at least Wed. But I'm in the office all day that day so I'm going to resend my fax every hour on the hour, hoping they get tired of me wasting their time, paper and toner and get someone to freakin' call me. Okay, now I feel better. And the way I see it, if it was bad news, surely they would feel compelled to call me instead of ignoring me.

HI, I do not know where you are or the time there. If he is anything like mine he called me very late in the day after his office hours were over. Said that is when he makes those kinds of calls. So hopefully you will here from him today. If not how far is his office from you? I would just take a ride to his office and tell them you need a copy right away of it to take to another doctor.

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It amazes me sometimes that the doctors really have no clue how it feels to be sitting at home waiting patiently for results, expecting the worst usually. I realize how busy they can be, but can't they devise some system for allowing their assistants/secretaries to give out results that aren't "terminal"? I can understand if someone was getting results that showed terminal cancer or something, then yeah, I wouldn't want some secretary breaking the news to me. But can't the secretary say, "Okay, results are in, says here you do indeed have celiac disease, and doctor will be calling you in the next day or two to discuss it". I see nothing wrong with that! And will save us all so much tension and worry.

Okay, done my rant!

Hugs.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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We had a different experience than this. After tests I called for hubby's results (blood test) and "nurse" told us that the tests were negative but Dr. still wanted us to come in. At that point, thinking the test was neg for celiac disease, hubby ate wheat/oat/rye/barley as a non celiac would. Got to appointment about two weeks later only to be told that he does have celiac disease. But Dr. should call you back within 24 hrs of your first call, if the test results are in. But I agree, see it in black & white on paper and get a copy even if you chose to stay with this doctor. He sounds like he has sense with respect to medicine, maybe he's not too swift on returning calls in non-emergent situations..


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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